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Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines

People with disabilities experience health disparities arising from social, environmental, and system‐level factors. Evidence from a range of settings suggests women with disabilities have reduced access to health information and experience barriers to screening, prevention, and care services. This...

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Autores principales: Vaughan, Cathy, Gill‐Atkinson, Liz, Devine, Alexandra, Zayas, Jerome, Ignacio, Raquel, Garcia, Joy, Bisda, Krissy, Salgado, Joy, Marco, M. Jesusa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7821201/
https://www.ncbi.nlm.nih.gov/pubmed/33078846
http://dx.doi.org/10.1002/ajcp.12468
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author Vaughan, Cathy
Gill‐Atkinson, Liz
Devine, Alexandra
Zayas, Jerome
Ignacio, Raquel
Garcia, Joy
Bisda, Krissy
Salgado, Joy
Marco, M. Jesusa
author_facet Vaughan, Cathy
Gill‐Atkinson, Liz
Devine, Alexandra
Zayas, Jerome
Ignacio, Raquel
Garcia, Joy
Bisda, Krissy
Salgado, Joy
Marco, M. Jesusa
author_sort Vaughan, Cathy
collection PubMed
description People with disabilities experience health disparities arising from social, environmental, and system‐level factors. Evidence from a range of settings suggests women with disabilities have reduced access to health information and experience barriers to screening, prevention, and care services. This results in greater unmet health needs, particularly in relation to sexual and reproductive health. Women with disabilities are also more likely to experience physical and sexual violence than women without disabilities, further undermining their health. Community‐based participatory research (CBPR) can generate knowledge and underpin action to address such health disparities and promote health equity. However, the potential and challenges of disability inclusion in CBPR, particularly in contexts of poverty and structural inequality such as those found in low‐ and middle‐income countries, are not well documented. In this paper, we reflect on our experience of implementing and evaluating W‐DARE, a three‐year program of disability‐inclusive CBPR aiming to increase access to sexual and reproductive health and violence‐response services for women with disabilities in the Philippines. We discuss strategies for increasing disability inclusion in research and use a framework of reflexive solidarity to consider the uneven distribution of the benefits, costs, and responsibilities for action arising from the W‐DARE program.
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spelling pubmed-78212012021-01-29 Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines Vaughan, Cathy Gill‐Atkinson, Liz Devine, Alexandra Zayas, Jerome Ignacio, Raquel Garcia, Joy Bisda, Krissy Salgado, Joy Marco, M. Jesusa Am J Community Psychol Original Articles People with disabilities experience health disparities arising from social, environmental, and system‐level factors. Evidence from a range of settings suggests women with disabilities have reduced access to health information and experience barriers to screening, prevention, and care services. This results in greater unmet health needs, particularly in relation to sexual and reproductive health. Women with disabilities are also more likely to experience physical and sexual violence than women without disabilities, further undermining their health. Community‐based participatory research (CBPR) can generate knowledge and underpin action to address such health disparities and promote health equity. However, the potential and challenges of disability inclusion in CBPR, particularly in contexts of poverty and structural inequality such as those found in low‐ and middle‐income countries, are not well documented. In this paper, we reflect on our experience of implementing and evaluating W‐DARE, a three‐year program of disability‐inclusive CBPR aiming to increase access to sexual and reproductive health and violence‐response services for women with disabilities in the Philippines. We discuss strategies for increasing disability inclusion in research and use a framework of reflexive solidarity to consider the uneven distribution of the benefits, costs, and responsibilities for action arising from the W‐DARE program. John Wiley and Sons Inc. 2020-10-20 2020-12 /pmc/articles/PMC7821201/ /pubmed/33078846 http://dx.doi.org/10.1002/ajcp.12468 Text en © 2020 The Authors. American Journal of Community Psychology published by Wiley Periodicals LLC on behalf of Society for Community Research and Action. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Vaughan, Cathy
Gill‐Atkinson, Liz
Devine, Alexandra
Zayas, Jerome
Ignacio, Raquel
Garcia, Joy
Bisda, Krissy
Salgado, Joy
Marco, M. Jesusa
Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines
title Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines
title_full Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines
title_fullStr Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines
title_full_unstemmed Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines
title_short Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines
title_sort enabling action: reflections upon inclusive participatory research on health with women with disabilities in the philippines
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7821201/
https://www.ncbi.nlm.nih.gov/pubmed/33078846
http://dx.doi.org/10.1002/ajcp.12468
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