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Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study

BACKGROUND: In the absence of a cure for the majority of rare diseases, the disease management aims to provide optimal supportive care. The goal of this study was to assess supportive care needs in patients with chronic rare diseases. METHODS: Cross-sectional mixed-method study was conducted using v...

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Detalles Bibliográficos
Autores principales:	Depping, Miram K., Uhlenbusch, Natalie, von Kodolitsch, Yskert, Klose, Hans F. E., Mautner, Victor-Felix, Löwe, Bernd
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7825171/ https://www.ncbi.nlm.nih.gov/pubmed/33482869 http://dx.doi.org/10.1186/s13023-020-01660-w

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