Cargando…

Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan

BACKGROUND: A primary brain cancer diagnosis is a distressing, life changing event. It adversely affects the quality of life for the person living with brain cancer and their families (‘carers’). Timely access to evidence-based information is critical to enabling people living with brain cancer, and...

Descripción completa

Detalles Bibliográficos
Autores principales:	Schaefer, Isabelle, Heneka, Nicole, Luckett, Tim, Agar, Meera R., Chambers, Suzanne K., Currow, David C., Halkett, Georgia, Disalvo, Domenica, Amgarth-Duff, Ingrid, Anderiesz, Cleola, Phillips, Jane L.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7827995/ https://www.ncbi.nlm.nih.gov/pubmed/33485331 http://dx.doi.org/10.1186/s12904-021-00715-4

Ejemplares similares

The Dilemma of Treating Delirium: the Conundrum of Drug Management
por: Agar, Meera R., et al.
Publicado: (2022)

A systematic review of the overlap of fluid biomarkers in delirium and advanced cancer-related syndromes
por: Amgarth-Duff, Ingrid, et al.
Publicado: (2020)

Systems to identify potentially inappropriate prescribing in people with advanced dementia: a systematic review
por: Disalvo, Domenica, et al.
Publicado: (2016)

Delirium researchers’ perspectives of the challenges in delirium biomarker research: A qualitative study
por: Amgarth-Duff, Ingrid, et al.
Publicado: (2021)

Cancer control policy in Australia
por: Anderiesz, Cleola, et al.
Publicado: (2006)

Supportive care of patients diagnosed with high grade glioma and their carers in Australia
por: Halkett, Georgia K. B., et al.
Publicado: (2022)

Exploratory multi-methods evaluation of an online intervention for carers of people with high-grade glioma
por: Haydon, Helen M, et al.
Publicado: (2023)

Protocol for the Care-IS Trial: a randomised controlled trial of a supportive educational intervention for carers of patients with high-grade glioma (HGG)
por: Halkett, Georgia K B, et al.
Publicado: (2015)

Defining research priorities and needs in cancer symptoms for adults diagnosed with cancer: an Australian/New Zealand modified Delphi study
por: Yenson, Vanessa M., et al.
Publicado: (2023)

The complexity of diagnosing sarcoma in a timely manner: perspectives of health professionals, patients, and carers in Australia
por: Weaver, Rhys, et al.
Publicado: (2020)

Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results
por: Halkett, Georgia K. B., et al.
Publicado: (2023)

Treatment patterns and out-of-hospital healthcare resource utilisation by patients with advanced cancer living with pain: An analysis from the Stop Cancer PAIN trial
por: McCaffrey, Nikki, et al.
Publicado: (2023)

“We’re on a Merry-Go-Round”: Reflections of Patients and Carers after Completing Treatment for Sarcoma
por: Weaver, Rhys, et al.
Publicado: (2021)

Elements of effective palliative care models: a rapid review
por: Luckett, Tim, et al.
Publicado: (2014)

Protocol for a phase III pragmatic stepped wedge cluster randomised controlled trial comparing the effectiveness and cost-effectiveness of screening and guidelines with, versus without, implementation strategies for improving pain in adults with cancer attending outpatient oncology and palliative care services: the Stop Cancer PAIN trial
por: Luckett, Tim, et al.
Publicado: (2018)

“It’s Always Been a Second Class Cancer”: An Exploration of the Experiences and Journeys of Bereaved Family Carers of People with Sarcoma
por: O’Connor, Moira, et al.
Publicado: (2021)

Assessing the exertion required to induce breathlessness in a population with advanced cancer: matching measures to the level of physical function
por: White, Kahren M., et al.
Publicado: (2019)

Conceptual Framework for Cancer Care During a Pandemic Incorporating Evidence From the COVID-19 Pandemic
por: Milch, Vivienne, et al.
Publicado: (2022)

Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department ‘near miss’ for breathlessness: a strengths-based qualitative study
por: Luckett, Tim, et al.
Publicado: (2017)

Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings
por: Vivekananda, Kitty, et al.
Publicado: (2023)

Australian medical radiation practitioners perspectives of continuing professional development: An online cross‐sectional study
por: Morgan, Tanya, et al.
Publicado: (2023)

Engaging Carers in Co-Design: Development of the Carer Readiness Tool
por: White, Sian, et al.
Publicado: (2021)

Two faces of the same coin: a qualitative study of patients’ and carers’ coexistence with chronic breathlessness associated with chronic obstructive pulmonary disease (COPD)
por: Ferreira, Diana H., et al.
Publicado: (2020)

START-online: acceptability and feasibility of an online intervention for carers of people living with dementia
por: Loi, Samantha M., et al.
Publicado: (2022)

Barriers and Enablers of Health Service Utilisation for Childhood Skin Infections in Remote Aboriginal Communities of Western Australia
por: Hendrickx, David, et al.
Publicado: (2020)

Better Informing Decision Making with Multiple Outcomes Cost-Effectiveness Analysis under Uncertainty in Cost-Disutility Space
por: McCaffrey, Nikki, et al.
Publicado: (2015)

A Focus Group Study of Palliative Physician and Consultation-Liaison Psychiatrist Perceptions of Dealing with Depression in the Dying
por: Lee, Wei, et al.
Publicado: (2022)

Implementation of a lung cancer multidisciplinary team standardised template for reporting to general practitioners: a mixed-method study
por: Rankin, Nicole M, et al.
Publicado: (2017)

A Workplace Environmental Scan of Employed Carers During COVID-19
por: Ding, Regina, et al.
Publicado: (2023)

Psychological Interventions Prior to Cancer Surgery: a Review of Reviews
por: Grimmett, Chloe, et al.
Publicado: (2022)

Earlier multidisciplinary palliative care intervention for people with lung cancer: a systematic review and meta-analysis
por: Kochovska, Slavica, et al.
Publicado: (2020)

Codesigning a supportive online resource for Australian cancer carers: a thematic analysis of informal carers’ and healthcare professionals’ perspectives about carers’ responsibilities and content needs
por: Perera, Sharnel Miriam, et al.
Publicado: (2021)

Pragmatic cluster randomised controlled trial of facilitated family case conferencing compared with usual care for improving end of life care and outcomes in nursing home residents with advanced dementia and their families: the IDEAL study protocol
por: Agar, Meera, et al.
Publicado: (2015)

The importance of developing palliative care quality indicators for the prison setting: why now, and next steps
por: Schaefer, Isabelle, et al.
Publicado: (2023)

Correction: The importance of developing palliative care quality indicators for the prison setting: why now, and next steps
por: Schaefer, Isabelle, et al.
Publicado: (2023)

Caring for depression in the dying is complex and challenging – survey of palliative physicians
por: Lee, Wei, et al.
Publicado: (2022)

Feasibility and Acceptability of a Novel Online Program for Mental Health Carers
por: Fitzgeraldson, E, et al.
Publicado: (2023)

Your duty of care to patients experiencing domestic abuse
por: Halkett, Georgia
Publicado: (2021)

A randomised, double blind, placebo-controlled trial of megestrol acetate or dexamethasone in treating symptomatic anorexia in people with advanced cancer
por: Currow, David C., et al.
Publicado: (2021)

Study protocol for SKIPMDD: subcutaneous ketamine infusion in palliative care patients with advanced life limiting illnesses for major depressive disorder (phase II pilot feasibility study)
por: Lee, Wei, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_s5bi5btkr0isj3j50o6mhvi3s6