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Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study

Background: History has recorded the tremendous concerns and apprehension expressed by African Americans about participating in research studies. This review enumerates the collaborative techniques that were utilized by the Jackson State University (JSU) Jackson Heart Study (JHS) community-focused t...

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Autores principales: Addison, Clifton, Campbell Jenkins, Brenda W., White, Monique, Thigpen-Odom, Darcel, Fortenberry, Marty, Wilson, Gregory, McCoy, Pamela, Young, Lavon, Woodberry, Clevette, Herron, Kathryn, Clark, Jermal, Payton, Marinelle, LaVigne, Donna Antoine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7830722/
https://www.ncbi.nlm.nih.gov/pubmed/33467408
http://dx.doi.org/10.3390/ijerph18020696
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author Addison, Clifton
Campbell Jenkins, Brenda W.
White, Monique
Thigpen-Odom, Darcel
Fortenberry, Marty
Wilson, Gregory
McCoy, Pamela
Young, Lavon
Woodberry, Clevette
Herron, Kathryn
Clark, Jermal
Payton, Marinelle
LaVigne, Donna Antoine
author_facet Addison, Clifton
Campbell Jenkins, Brenda W.
White, Monique
Thigpen-Odom, Darcel
Fortenberry, Marty
Wilson, Gregory
McCoy, Pamela
Young, Lavon
Woodberry, Clevette
Herron, Kathryn
Clark, Jermal
Payton, Marinelle
LaVigne, Donna Antoine
author_sort Addison, Clifton
collection PubMed
description Background: History has recorded the tremendous concerns and apprehension expressed by African Americans about participating in research studies. This review enumerates the collaborative techniques that were utilized by the Jackson State University (JSU) Jackson Heart Study (JHS) community-focused team to facilitate recruitment and retention of the JHS cohort and to implement health education and health promotion in the JHS communities. Methods: This review describes the evolution of the JSU JHS community initiatives, an innovative community-driven operation, during the period 1999–2018. Results: JSU JHS community-focused investigators published approximately 20 manuscripts, including community-led research and publications with community lead authors and co-authors, research and publications in collaboration with other JHS staff, through other JSU-funded projects. The JSU JHS community-focused unit also initiated the JHS Community Training Activities, developed the Community Health Advisory Network (CHAN), and trained and certified 137 Community Health Advisors. In addition, the JSU JHS community-focused unit developed the Collaborative Community Science Model (CCSM) that symbolized its approach to community engagement and outreach, and a Trust Scale for ascertaining African Americans’ willingness to engage in biomedical research collaborations. Conclusion: This review offers educators, public health professionals, and research investigators a useful starting point for the development, selection, or improvement of techniques to motivate, inspire, and engage community residents in a community–academia partnership that yielded maximum benefits in the areas of health education, health promotion and interventions, and biomedical research. Substantial, meaningful community engagement is possible when prioritizing elimination of health disparities and long-term improvement in health care access in the target populations.
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spelling pubmed-78307222021-01-26 Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study Addison, Clifton Campbell Jenkins, Brenda W. White, Monique Thigpen-Odom, Darcel Fortenberry, Marty Wilson, Gregory McCoy, Pamela Young, Lavon Woodberry, Clevette Herron, Kathryn Clark, Jermal Payton, Marinelle LaVigne, Donna Antoine Int J Environ Res Public Health Article Background: History has recorded the tremendous concerns and apprehension expressed by African Americans about participating in research studies. This review enumerates the collaborative techniques that were utilized by the Jackson State University (JSU) Jackson Heart Study (JHS) community-focused team to facilitate recruitment and retention of the JHS cohort and to implement health education and health promotion in the JHS communities. Methods: This review describes the evolution of the JSU JHS community initiatives, an innovative community-driven operation, during the period 1999–2018. Results: JSU JHS community-focused investigators published approximately 20 manuscripts, including community-led research and publications with community lead authors and co-authors, research and publications in collaboration with other JHS staff, through other JSU-funded projects. The JSU JHS community-focused unit also initiated the JHS Community Training Activities, developed the Community Health Advisory Network (CHAN), and trained and certified 137 Community Health Advisors. In addition, the JSU JHS community-focused unit developed the Collaborative Community Science Model (CCSM) that symbolized its approach to community engagement and outreach, and a Trust Scale for ascertaining African Americans’ willingness to engage in biomedical research collaborations. Conclusion: This review offers educators, public health professionals, and research investigators a useful starting point for the development, selection, or improvement of techniques to motivate, inspire, and engage community residents in a community–academia partnership that yielded maximum benefits in the areas of health education, health promotion and interventions, and biomedical research. Substantial, meaningful community engagement is possible when prioritizing elimination of health disparities and long-term improvement in health care access in the target populations. MDPI 2021-01-15 2021-01 /pmc/articles/PMC7830722/ /pubmed/33467408 http://dx.doi.org/10.3390/ijerph18020696 Text en © 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Addison, Clifton
Campbell Jenkins, Brenda W.
White, Monique
Thigpen-Odom, Darcel
Fortenberry, Marty
Wilson, Gregory
McCoy, Pamela
Young, Lavon
Woodberry, Clevette
Herron, Kathryn
Clark, Jermal
Payton, Marinelle
LaVigne, Donna Antoine
Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study
title Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study
title_full Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study
title_fullStr Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study
title_full_unstemmed Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study
title_short Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study
title_sort twenty years of leading the way among cohort studies in community-driven outreach and engagement: jackson state university/jackson heart study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7830722/
https://www.ncbi.nlm.nih.gov/pubmed/33467408
http://dx.doi.org/10.3390/ijerph18020696
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