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Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey

OBJECTIVES: The objective of this survey was to investigate the barriers, facilitators, expectations and patient preferences regarding joint protection (JP) programmes in people with hand arthritis. DESIGN: Cross-sectional survey. SETTING: Tertiary clinic. PARTICIPANTS: Patients with hand arthritis:...

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Autores principales: Bobos, Pavlos, MacDermid, Joy, Ziebart, Christina, Boutsikari, Eleni, Lalone, Emily, Ferreira, Louis, Grewal, Ruby
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7831706/
https://www.ncbi.nlm.nih.gov/pubmed/33483445
http://dx.doi.org/10.1136/bmjopen-2020-041935
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author Bobos, Pavlos
MacDermid, Joy
Ziebart, Christina
Boutsikari, Eleni
Lalone, Emily
Ferreira, Louis
Grewal, Ruby
author_facet Bobos, Pavlos
MacDermid, Joy
Ziebart, Christina
Boutsikari, Eleni
Lalone, Emily
Ferreira, Louis
Grewal, Ruby
author_sort Bobos, Pavlos
collection PubMed
description OBJECTIVES: The objective of this survey was to investigate the barriers, facilitators, expectations and patient preferences regarding joint protection (JP) programmes in people with hand arthritis. DESIGN: Cross-sectional survey. SETTING: Tertiary clinic. PARTICIPANTS: Patients with hand arthritis: osteoarthritis, rheumatoid arthritis, psoriatic arthritis and other forms of arthritis. PRIMARY AND SECONDARY OUTCOME MEASURES: This study used a survey among people with hand arthritis. Descriptive statistics and percentages were reported for all the data about the barriers, facilitators and preferences around JP. RESULTS: A total of 192 patients consented to participate. Most of the patients (82%) were unaware of JP. Factors that may act as barriers to participation and were regarded as ‘a very big concern’ were: cost of the programme (44%), time of offering the programme (39%), work commitments (36%) and having a centre/clinic close to the house (28%). Factors that may act as facilitators and rated as ‘extremely helpful’ were: research that shows that JP works (26%) and having the centre/clinic close to the house (25%). An online format for JP was the most preferred option (54%). Half (46%) preferred a timeframe of 1 hour, three times per week and 44% preferred a 2-hour programme, for three times per week. CONCLUSIONS: Awareness of the potential benefits of JP, and prior experience with JP programme were very low. Common potentially modifiable patient-reported barriers to participate in future JP interventions, included: cost, work commitments, distance from home to clinic and times that the intervention were provided. These barriers might be addressed with free and accessible forms of delivery of JP, which may lead to better uptake and participation in JP programmes.
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spelling pubmed-78317062021-02-01 Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey Bobos, Pavlos MacDermid, Joy Ziebart, Christina Boutsikari, Eleni Lalone, Emily Ferreira, Louis Grewal, Ruby BMJ Open Rheumatology OBJECTIVES: The objective of this survey was to investigate the barriers, facilitators, expectations and patient preferences regarding joint protection (JP) programmes in people with hand arthritis. DESIGN: Cross-sectional survey. SETTING: Tertiary clinic. PARTICIPANTS: Patients with hand arthritis: osteoarthritis, rheumatoid arthritis, psoriatic arthritis and other forms of arthritis. PRIMARY AND SECONDARY OUTCOME MEASURES: This study used a survey among people with hand arthritis. Descriptive statistics and percentages were reported for all the data about the barriers, facilitators and preferences around JP. RESULTS: A total of 192 patients consented to participate. Most of the patients (82%) were unaware of JP. Factors that may act as barriers to participation and were regarded as ‘a very big concern’ were: cost of the programme (44%), time of offering the programme (39%), work commitments (36%) and having a centre/clinic close to the house (28%). Factors that may act as facilitators and rated as ‘extremely helpful’ were: research that shows that JP works (26%) and having the centre/clinic close to the house (25%). An online format for JP was the most preferred option (54%). Half (46%) preferred a timeframe of 1 hour, three times per week and 44% preferred a 2-hour programme, for three times per week. CONCLUSIONS: Awareness of the potential benefits of JP, and prior experience with JP programme were very low. Common potentially modifiable patient-reported barriers to participate in future JP interventions, included: cost, work commitments, distance from home to clinic and times that the intervention were provided. These barriers might be addressed with free and accessible forms of delivery of JP, which may lead to better uptake and participation in JP programmes. BMJ Publishing Group 2021-01-22 /pmc/articles/PMC7831706/ /pubmed/33483445 http://dx.doi.org/10.1136/bmjopen-2020-041935 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Rheumatology
Bobos, Pavlos
MacDermid, Joy
Ziebart, Christina
Boutsikari, Eleni
Lalone, Emily
Ferreira, Louis
Grewal, Ruby
Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey
title Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey
title_full Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey
title_fullStr Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey
title_full_unstemmed Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey
title_short Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey
title_sort barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey
topic Rheumatology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7831706/
https://www.ncbi.nlm.nih.gov/pubmed/33483445
http://dx.doi.org/10.1136/bmjopen-2020-041935
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