Quality of life: Guidelines for the care of people with spina bifida

Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of...

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Detalles Bibliográficos
Autores principales: Sawin, Kathleen J., Brei, Timothy J., Houtrow, Amy J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2020
Materias:
Spina Bifida Guideline
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7838993/
https://www.ncbi.nlm.nih.gov/pubmed/33325410
http://dx.doi.org/10.3233/PRM-200732
Descripción
Sumario:Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida. The focus of these QOL Guidelines was to summarize the evidence and expert opinions on how to mitigate factors that negatively impact QOL/HRQOL or enhance the factors positively related to QOL/HRQOL, the measurement of QOL/HRQOL and the gaps that need to be addressed in future research.

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