Quality of life: Guidelines for the care of people with spina bifida

Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of...

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Detalles Bibliográficos
Autores principales: Sawin, Kathleen J., Brei, Timothy J., Houtrow, Amy J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2020
Materias:
Spina Bifida Guideline
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7838993/
https://www.ncbi.nlm.nih.gov/pubmed/33325410
http://dx.doi.org/10.3233/PRM-200732
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author Sawin, Kathleen J.
Brei, Timothy J.
Houtrow, Amy J.
author_facet Sawin, Kathleen J.
Brei, Timothy J.
Houtrow, Amy J.
author_sort Sawin, Kathleen J.
collection PubMed
description Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida. The focus of these QOL Guidelines was to summarize the evidence and expert opinions on how to mitigate factors that negatively impact QOL/HRQOL or enhance the factors positively related to QOL/HRQOL, the measurement of QOL/HRQOL and the gaps that need to be addressed in future research.
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spelling pubmed-78389932021-02-04 Quality of life: Guidelines for the care of people with spina bifida Sawin, Kathleen J. Brei, Timothy J. Houtrow, Amy J. J Pediatr Rehabil Med Spina Bifida Guideline Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida. The focus of these QOL Guidelines was to summarize the evidence and expert opinions on how to mitigate factors that negatively impact QOL/HRQOL or enhance the factors positively related to QOL/HRQOL, the measurement of QOL/HRQOL and the gaps that need to be addressed in future research. IOS Press 2020-12-22 /pmc/articles/PMC7838993/ /pubmed/33325410 http://dx.doi.org/10.3233/PRM-200732 Text en © 2020 – IOS Press and the authors. All rights reserved. https://creativecommons.org/licenses/by-nc/4.0/ This article is published online with Open Access and distributed under the terms of the Creative Commons Attribution Non-Commercial License (CC BY-NC 4.0).
spellingShingle Spina Bifida Guideline
Sawin, Kathleen J.
Brei, Timothy J.
Houtrow, Amy J.
Quality of life: Guidelines for the care of people with spina bifida
title Quality of life: Guidelines for the care of people with spina bifida
title_full Quality of life: Guidelines for the care of people with spina bifida
title_fullStr Quality of life: Guidelines for the care of people with spina bifida
title_full_unstemmed Quality of life: Guidelines for the care of people with spina bifida
title_short Quality of life: Guidelines for the care of people with spina bifida
title_sort quality of life: guidelines for the care of people with spina bifida
topic Spina Bifida Guideline
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7838993/
https://www.ncbi.nlm.nih.gov/pubmed/33325410
http://dx.doi.org/10.3233/PRM-200732
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