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‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals

BACKGROUND: There is little qualitative research in the UK focussing on adolescents’ experience of their healthcare providers, and inflammatory skin conditions are a common heath problem in adolescence. AIM: To explore the experiences of adolescents with eczema and psoriasis with healthcare professi...

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Autores principales: de Vere Hunt, Isabella Joy, McNiven, Abigail, Roberts, Amanda, Parmar, Himesh, McPherson, Tess
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7849900/
https://www.ncbi.nlm.nih.gov/pubmed/33514575
http://dx.doi.org/10.1136/bmjopen-2020-041108
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author de Vere Hunt, Isabella Joy
McNiven, Abigail
Roberts, Amanda
Parmar, Himesh
McPherson, Tess
author_facet de Vere Hunt, Isabella Joy
McNiven, Abigail
Roberts, Amanda
Parmar, Himesh
McPherson, Tess
author_sort de Vere Hunt, Isabella Joy
collection PubMed
description BACKGROUND: There is little qualitative research in the UK focussing on adolescents’ experience of their healthcare providers, and inflammatory skin conditions are a common heath problem in adolescence. AIM: To explore the experiences of adolescents with eczema and psoriasis with healthcare professionals, and to distil the participants’ key messages for their healthcare providers. DESIGN: This is a secondary thematic analysis of interviews with adolescents with eczema or psoriasis. PARTICIPANTS: There were a total of 41 text transcripts of interviews with young people with eczema or psoriasis who had given permission for secondary analysis; 23 of the participants had eczema, and 18 psoriasis. Participants were living in the UK at time of interview, and aged 15–24 years old. RESULTS: We have distilled the following key messages from young people with eczema and psoriasis for healthcare providers: (1) address the emotional impact; (2) give more information, with the subtheme and (3) appreciate patient research. We identified the following eczema-specific themes: (ECZ-4) ‘It’s not taken seriously’; (ECZ-5) offer choice in treatment and (ECZ-6) lack of structure/conflicting advice. Two psoriasis-specific themes were identified: (PSO-4) feeling dehumanised/treat me as a person; and (PSO-5) think about how treatments will affect daily life. CONCLUSION: This qualitative data analysis highlights the need for greater recognition of the emotional impact of skin disease in adolescence, and for more comprehensive provision of information about the conditions. We call for greater sensitivity and flexibility in our approach to adolescents with skin disease, with important implications for healthcare delivery to this group.
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spelling pubmed-78499002021-02-02 ‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals de Vere Hunt, Isabella Joy McNiven, Abigail Roberts, Amanda Parmar, Himesh McPherson, Tess BMJ Open Dermatology BACKGROUND: There is little qualitative research in the UK focussing on adolescents’ experience of their healthcare providers, and inflammatory skin conditions are a common heath problem in adolescence. AIM: To explore the experiences of adolescents with eczema and psoriasis with healthcare professionals, and to distil the participants’ key messages for their healthcare providers. DESIGN: This is a secondary thematic analysis of interviews with adolescents with eczema or psoriasis. PARTICIPANTS: There were a total of 41 text transcripts of interviews with young people with eczema or psoriasis who had given permission for secondary analysis; 23 of the participants had eczema, and 18 psoriasis. Participants were living in the UK at time of interview, and aged 15–24 years old. RESULTS: We have distilled the following key messages from young people with eczema and psoriasis for healthcare providers: (1) address the emotional impact; (2) give more information, with the subtheme and (3) appreciate patient research. We identified the following eczema-specific themes: (ECZ-4) ‘It’s not taken seriously’; (ECZ-5) offer choice in treatment and (ECZ-6) lack of structure/conflicting advice. Two psoriasis-specific themes were identified: (PSO-4) feeling dehumanised/treat me as a person; and (PSO-5) think about how treatments will affect daily life. CONCLUSION: This qualitative data analysis highlights the need for greater recognition of the emotional impact of skin disease in adolescence, and for more comprehensive provision of information about the conditions. We call for greater sensitivity and flexibility in our approach to adolescents with skin disease, with important implications for healthcare delivery to this group. BMJ Publishing Group 2021-01-28 /pmc/articles/PMC7849900/ /pubmed/33514575 http://dx.doi.org/10.1136/bmjopen-2020-041108 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Dermatology
de Vere Hunt, Isabella Joy
McNiven, Abigail
Roberts, Amanda
Parmar, Himesh
McPherson, Tess
‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals
title ‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals
title_full ‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals
title_fullStr ‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals
title_full_unstemmed ‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals
title_short ‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals
title_sort ‘not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals
topic Dermatology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7849900/
https://www.ncbi.nlm.nih.gov/pubmed/33514575
http://dx.doi.org/10.1136/bmjopen-2020-041108
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