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Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers

BACKGROUND: A reduction in the number of face-to-face medical examinations conducted for patients with noncommunicable diseases (NCDs) during the first wave of the COVID-19 pandemic has led to health care professionals quickly adopting different strategies to communicate with and monitor their patie...

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Autores principales: Monaco, Alessandro, Palmer, Katie, Holm Ravn Faber, Nicolaj, Kohler, Irene, Silva, Mitchell, Vatland, Anita, van Griensven, Joop, Votta, Mariano, Walsh, Donna, Clay, Vincent, Yazicioglu, Mehmet Cuneyt, Ducinskiene, Danute, Donde, Shaantanu
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7850778/
https://www.ncbi.nlm.nih.gov/pubmed/33464206
http://dx.doi.org/10.2196/25652
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author Monaco, Alessandro
Palmer, Katie
Holm Ravn Faber, Nicolaj
Kohler, Irene
Silva, Mitchell
Vatland, Anita
van Griensven, Joop
Votta, Mariano
Walsh, Donna
Clay, Vincent
Yazicioglu, Mehmet Cuneyt
Ducinskiene, Danute
Donde, Shaantanu
author_facet Monaco, Alessandro
Palmer, Katie
Holm Ravn Faber, Nicolaj
Kohler, Irene
Silva, Mitchell
Vatland, Anita
van Griensven, Joop
Votta, Mariano
Walsh, Donna
Clay, Vincent
Yazicioglu, Mehmet Cuneyt
Ducinskiene, Danute
Donde, Shaantanu
author_sort Monaco, Alessandro
collection PubMed
description BACKGROUND: A reduction in the number of face-to-face medical examinations conducted for patients with noncommunicable diseases (NCDs) during the first wave of the COVID-19 pandemic has led to health care professionals quickly adopting different strategies to communicate with and monitor their patients. Such strategies include the increased use of digital health tools. However, patient preferences, privacy concerns, a lack of regulations, overregulation, and insufficient evidence on the efficacy of digital health tools may have hampered the potential positive benefits of using such tools to manage NCDs. OBJECTIVE: This viewpoint aims to discuss the views of an advisory board of patient and caregiver association members. Specifically, we aim to present this advisory board’s view on the role of digital health tools in managing patients with NCDs during and after the COVID-19 pandemic, and to identify future directions based on patients’ perspectives. METHODS: As an initiative under the NCD Partnership (PARTners in Ncds Engage foR building Strategies to improve Healthy ageing In Patients) model of Upjohn, a web-based advisory board of patient and caregiver advocates was held on July 28, 2020, to bring together key stakeholders from public and private sectors. RESULTS: The following key themes emerged: (1) technology developers should understand that the goals of patients may differ from those of health care professionals and other stakeholders; (2) patients, health care professionals, caregivers, and other end users need to be involved in the development of digital health tools at the earliest phase possible, to guarantee usability, efficacy, and adoption; (3) digital health tools must be better tailored to people with complex conditions, such as multimorbidity, older age, and cognitive or sensory impairment; and (4) some patients do not want or are unable to use digital health care tools, so adequate alternatives should always be available. CONCLUSIONS: There was consensus that public-private partnership models, such as the Upjohn NCD Partnership, can be effective models that foster innovation by integrating multiple perspectives (eg, patients’ perspectives) into the design, development, and implementation of digital and nondigital health tools, with the main overall objective of improving the life of patients with NCDs.
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spelling pubmed-78507782021-02-05 Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers Monaco, Alessandro Palmer, Katie Holm Ravn Faber, Nicolaj Kohler, Irene Silva, Mitchell Vatland, Anita van Griensven, Joop Votta, Mariano Walsh, Donna Clay, Vincent Yazicioglu, Mehmet Cuneyt Ducinskiene, Danute Donde, Shaantanu J Med Internet Res Viewpoint BACKGROUND: A reduction in the number of face-to-face medical examinations conducted for patients with noncommunicable diseases (NCDs) during the first wave of the COVID-19 pandemic has led to health care professionals quickly adopting different strategies to communicate with and monitor their patients. Such strategies include the increased use of digital health tools. However, patient preferences, privacy concerns, a lack of regulations, overregulation, and insufficient evidence on the efficacy of digital health tools may have hampered the potential positive benefits of using such tools to manage NCDs. OBJECTIVE: This viewpoint aims to discuss the views of an advisory board of patient and caregiver association members. Specifically, we aim to present this advisory board’s view on the role of digital health tools in managing patients with NCDs during and after the COVID-19 pandemic, and to identify future directions based on patients’ perspectives. METHODS: As an initiative under the NCD Partnership (PARTners in Ncds Engage foR building Strategies to improve Healthy ageing In Patients) model of Upjohn, a web-based advisory board of patient and caregiver advocates was held on July 28, 2020, to bring together key stakeholders from public and private sectors. RESULTS: The following key themes emerged: (1) technology developers should understand that the goals of patients may differ from those of health care professionals and other stakeholders; (2) patients, health care professionals, caregivers, and other end users need to be involved in the development of digital health tools at the earliest phase possible, to guarantee usability, efficacy, and adoption; (3) digital health tools must be better tailored to people with complex conditions, such as multimorbidity, older age, and cognitive or sensory impairment; and (4) some patients do not want or are unable to use digital health care tools, so adequate alternatives should always be available. CONCLUSIONS: There was consensus that public-private partnership models, such as the Upjohn NCD Partnership, can be effective models that foster innovation by integrating multiple perspectives (eg, patients’ perspectives) into the design, development, and implementation of digital and nondigital health tools, with the main overall objective of improving the life of patients with NCDs. JMIR Publications 2021-01-29 /pmc/articles/PMC7850778/ /pubmed/33464206 http://dx.doi.org/10.2196/25652 Text en ©Alessandro Monaco, Katie Palmer, Nicolaj Holm Ravn Faber, Irene Kohler, Mitchell Silva, Anita Vatland, Joop van Griensven, Mariano Votta, Donna Walsh, Vincent Clay, Mehmet Cuneyt Yazicioglu, Danute Ducinskiene, Shaantanu Donde. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 29.01.2021. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Viewpoint
Monaco, Alessandro
Palmer, Katie
Holm Ravn Faber, Nicolaj
Kohler, Irene
Silva, Mitchell
Vatland, Anita
van Griensven, Joop
Votta, Mariano
Walsh, Donna
Clay, Vincent
Yazicioglu, Mehmet Cuneyt
Ducinskiene, Danute
Donde, Shaantanu
Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers
title Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers
title_full Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers
title_fullStr Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers
title_full_unstemmed Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers
title_short Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers
title_sort digital health tools for managing noncommunicable diseases during and after the covid-19 pandemic: perspectives of patients and caregivers
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7850778/
https://www.ncbi.nlm.nih.gov/pubmed/33464206
http://dx.doi.org/10.2196/25652
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