Cargando…
Perceptions of genetic testing in patients with hereditary chronic pancreatitis and their families: a qualitative triangulation
Hereditary chronic pancreatitis (HCP) is a genetically determined condition characterized by intermittent acute episodes of pancreatitis and long-term impairment of the exocrine and endocrine pancreatic functions. Genetic test results can have substantial psychological and social consequences for th...
Autores principales: | Müller, Regina, Aghdassi, Ali A., Kruse, Judith, Lerch, Markus M., Simon, Peter, Salloch, Sabine |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7852527/ https://www.ncbi.nlm.nih.gov/pubmed/32788661 http://dx.doi.org/10.1038/s41431-020-00705-9 |
Ejemplares similares
-
Lived Experience of Hereditary Chronic Pancreatitis – A Qualitative
Interview Study
por: Müller, Regina, et al.
Publicado: (2021) -
Genetic Testing for Rare Diseases: A Systematic Review of Ethical Aspects
por: Kruse, Judith, et al.
Publicado: (2022) -
Adequacy of care provision in long‐term home nursing arrangements: A triangulation of three perspectives
por: Seidlein, Anna‐Henrikje, et al.
Publicado: (2020) -
Triangulating Qualitative Methods to Evaluate Survivorship Care
por: Seaman, Aaron, et al.
Publicado: (2020) -
Collective forward-looking responsibility of patient advocacy organizations: conceptual and ethical analysis
por: Müller, Regina, et al.
Publicado: (2021)