Cargando…

Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017

OBJECTIVE: To investigate whether uncertainty surrounding the death is associated with the inaccurate reporting of intellectual disability as the underlying cause of death. DESIGN: National Vital Statistics System 2005–2017 US Multiple Cause-of-Death Mortality files. SETTING: USA. PARTICIPANTS: Adul...

Descripción completa

Detalles Bibliográficos
Autores principales: Landes, Scott D, Turk, Margaret A, Bisesti, Erin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7853001/
https://www.ncbi.nlm.nih.gov/pubmed/33518529
http://dx.doi.org/10.1136/bmjopen-2020-045360
_version_ 1783645896838217728
author Landes, Scott D
Turk, Margaret A
Bisesti, Erin
author_facet Landes, Scott D
Turk, Margaret A
Bisesti, Erin
author_sort Landes, Scott D
collection PubMed
description OBJECTIVE: To investigate whether uncertainty surrounding the death is associated with the inaccurate reporting of intellectual disability as the underlying cause of death. DESIGN: National Vital Statistics System 2005–2017 US Multiple Cause-of-Death Mortality files. SETTING: USA. PARTICIPANTS: Adults with an intellectual disability reported on their death certificate, aged 18 and over at the time of death. The study population included 26 555 adults who died in their state of residence between 1 January 2005 and 31 December 2017. PRIMARY OUTCOME AND MEASURES: Decedents with intellectual disability reported on their death certificate were identified using the International Statistical Classification of Diseases and Related Health Problems, Tenth Revision code for intellectual disability (F70–79). Bivariate analysis and multilevel logistic regression models were used to investigate whether individual-level and state-level characteristics indicative of increased uncertainty at the time of death were associated with the inaccurate reporting of intellectual disability as the underlying cause of death. RESULTS: Inaccurate reporting of intellectual disability as the underlying cause of death was associated with sociodemographic characteristics, death context characteristics and comorbidities indicative of an increased amount of uncertainty surrounding the death. Most striking were increased odds of having intellectual disability reported as the underlying cause of death for decedents who had a choking event (OR=14.7; 95% CI 12.9 to 16.6, p<0.001), an external cause of death associated with a high degree of uncertainty, reported on their death certificate. CONCLUSION: It is imperative that medical personnel not let increased uncertainty lead to the inaccurate reporting of intellectual disability as the underlying cause of death as this practice obscures cause of death trends for this population. Instead, even in instances when increased uncertainty surrounds the death, certifiers should strive to accurately identify the disease or injury causing death, and report the disability in Part II of the death certificate.
format Online
Article
Text
id pubmed-7853001
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher BMJ Publishing Group
record_format MEDLINE/PubMed
spelling pubmed-78530012021-02-11 Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017 Landes, Scott D Turk, Margaret A Bisesti, Erin BMJ Open Public Health OBJECTIVE: To investigate whether uncertainty surrounding the death is associated with the inaccurate reporting of intellectual disability as the underlying cause of death. DESIGN: National Vital Statistics System 2005–2017 US Multiple Cause-of-Death Mortality files. SETTING: USA. PARTICIPANTS: Adults with an intellectual disability reported on their death certificate, aged 18 and over at the time of death. The study population included 26 555 adults who died in their state of residence between 1 January 2005 and 31 December 2017. PRIMARY OUTCOME AND MEASURES: Decedents with intellectual disability reported on their death certificate were identified using the International Statistical Classification of Diseases and Related Health Problems, Tenth Revision code for intellectual disability (F70–79). Bivariate analysis and multilevel logistic regression models were used to investigate whether individual-level and state-level characteristics indicative of increased uncertainty at the time of death were associated with the inaccurate reporting of intellectual disability as the underlying cause of death. RESULTS: Inaccurate reporting of intellectual disability as the underlying cause of death was associated with sociodemographic characteristics, death context characteristics and comorbidities indicative of an increased amount of uncertainty surrounding the death. Most striking were increased odds of having intellectual disability reported as the underlying cause of death for decedents who had a choking event (OR=14.7; 95% CI 12.9 to 16.6, p<0.001), an external cause of death associated with a high degree of uncertainty, reported on their death certificate. CONCLUSION: It is imperative that medical personnel not let increased uncertainty lead to the inaccurate reporting of intellectual disability as the underlying cause of death as this practice obscures cause of death trends for this population. Instead, even in instances when increased uncertainty surrounds the death, certifiers should strive to accurately identify the disease or injury causing death, and report the disability in Part II of the death certificate. BMJ Publishing Group 2021-01-31 /pmc/articles/PMC7853001/ /pubmed/33518529 http://dx.doi.org/10.1136/bmjopen-2020-045360 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Public Health
Landes, Scott D
Turk, Margaret A
Bisesti, Erin
Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017
title Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017
title_full Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017
title_fullStr Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017
title_full_unstemmed Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017
title_short Uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of US mortality data from 2005 to 2017
title_sort uncertainty and the reporting of intellectual disability on death certificates: a cross-sectional study of us mortality data from 2005 to 2017
topic Public Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7853001/
https://www.ncbi.nlm.nih.gov/pubmed/33518529
http://dx.doi.org/10.1136/bmjopen-2020-045360
work_keys_str_mv AT landesscottd uncertaintyandthereportingofintellectualdisabilityondeathcertificatesacrosssectionalstudyofusmortalitydatafrom2005to2017
AT turkmargareta uncertaintyandthereportingofintellectualdisabilityondeathcertificatesacrosssectionalstudyofusmortalitydatafrom2005to2017
AT bisestierin uncertaintyandthereportingofintellectualdisabilityondeathcertificatesacrosssectionalstudyofusmortalitydatafrom2005to2017