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Development of a web tool to increase research literacy in underserved populations through public library partnerships

OBJECTIVE: Inadequate diversity in clinical trials is widely recognized as a significant contributing factor to health disparities experienced by racial/ethnic minorities and other diverse populations in the US. To address this in a scalable way, we sought to develop a web tool that could help enhan...

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Autores principales: Simon, Melissa A., O’Brian, Catherine A., Tom, Laura, Wafford, Q. Eileen, Mack, Shenita, Mendez, Samuel R., Nava, Magdalena, Dahdouh, Rabih, Paul-Brutus, Rachelle, Carpenter, Kathryn H., Kern, Barbara, Holmes, Kristi L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7857632/
https://www.ncbi.nlm.nih.gov/pubmed/33534794
http://dx.doi.org/10.1371/journal.pone.0246098
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author Simon, Melissa A.
O’Brian, Catherine A.
Tom, Laura
Wafford, Q. Eileen
Mack, Shenita
Mendez, Samuel R.
Nava, Magdalena
Dahdouh, Rabih
Paul-Brutus, Rachelle
Carpenter, Kathryn H.
Kern, Barbara
Holmes, Kristi L.
author_facet Simon, Melissa A.
O’Brian, Catherine A.
Tom, Laura
Wafford, Q. Eileen
Mack, Shenita
Mendez, Samuel R.
Nava, Magdalena
Dahdouh, Rabih
Paul-Brutus, Rachelle
Carpenter, Kathryn H.
Kern, Barbara
Holmes, Kristi L.
author_sort Simon, Melissa A.
collection PubMed
description OBJECTIVE: Inadequate diversity in clinical trials is widely recognized as a significant contributing factor to health disparities experienced by racial/ethnic minorities and other diverse populations in the US. To address this in a scalable way, we sought to develop a web tool that could help enhance underserved minority participation in clinical research. METHODS: We used our research literacy support flashcard tool as the initial prototype for human-centered design and usability testing of the web tool Health for All in public library settings. After forming partnerships with leadership from Chicago Public Libraries (CPL), local medical libraries, and the Chicago Department of Public Health, we conducted seven iterative design sessions with focus groups of library patrons and library staff from six CPL branches serving underserved communities followed by two rounds of usability testing and website modification. RESULTS: Based on the qualitative research findings from Design Sessions 1–7, we enacted the design decision of a website that was a hybrid of fact-filled and vignette (personal stories) paper prototypes divided into 4 modules (trust, diversity, healthy volunteers, pros/cons), each with their own outcome metrics. The website was thus constructed, and navigation issues identified in two rounds of usability testing by library patrons were addressed through further website modification, followed by the launch of a beta version of a hybridized single-scrolling and guided module prototype to allow further development with website analytics. CONCLUSIONS: We report the development of Health for All, a website designed to enhance racial/ethnic minority participation in clinical trials by imparting research literacy, mitigating distrust engendered by longstanding racism and discrimination, and providing connections to clinical trials recruiting participants.
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spelling pubmed-78576322021-02-11 Development of a web tool to increase research literacy in underserved populations through public library partnerships Simon, Melissa A. O’Brian, Catherine A. Tom, Laura Wafford, Q. Eileen Mack, Shenita Mendez, Samuel R. Nava, Magdalena Dahdouh, Rabih Paul-Brutus, Rachelle Carpenter, Kathryn H. Kern, Barbara Holmes, Kristi L. PLoS One Research Article OBJECTIVE: Inadequate diversity in clinical trials is widely recognized as a significant contributing factor to health disparities experienced by racial/ethnic minorities and other diverse populations in the US. To address this in a scalable way, we sought to develop a web tool that could help enhance underserved minority participation in clinical research. METHODS: We used our research literacy support flashcard tool as the initial prototype for human-centered design and usability testing of the web tool Health for All in public library settings. After forming partnerships with leadership from Chicago Public Libraries (CPL), local medical libraries, and the Chicago Department of Public Health, we conducted seven iterative design sessions with focus groups of library patrons and library staff from six CPL branches serving underserved communities followed by two rounds of usability testing and website modification. RESULTS: Based on the qualitative research findings from Design Sessions 1–7, we enacted the design decision of a website that was a hybrid of fact-filled and vignette (personal stories) paper prototypes divided into 4 modules (trust, diversity, healthy volunteers, pros/cons), each with their own outcome metrics. The website was thus constructed, and navigation issues identified in two rounds of usability testing by library patrons were addressed through further website modification, followed by the launch of a beta version of a hybridized single-scrolling and guided module prototype to allow further development with website analytics. CONCLUSIONS: We report the development of Health for All, a website designed to enhance racial/ethnic minority participation in clinical trials by imparting research literacy, mitigating distrust engendered by longstanding racism and discrimination, and providing connections to clinical trials recruiting participants. Public Library of Science 2021-02-03 /pmc/articles/PMC7857632/ /pubmed/33534794 http://dx.doi.org/10.1371/journal.pone.0246098 Text en © 2021 Simon et al http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Simon, Melissa A.
O’Brian, Catherine A.
Tom, Laura
Wafford, Q. Eileen
Mack, Shenita
Mendez, Samuel R.
Nava, Magdalena
Dahdouh, Rabih
Paul-Brutus, Rachelle
Carpenter, Kathryn H.
Kern, Barbara
Holmes, Kristi L.
Development of a web tool to increase research literacy in underserved populations through public library partnerships
title Development of a web tool to increase research literacy in underserved populations through public library partnerships
title_full Development of a web tool to increase research literacy in underserved populations through public library partnerships
title_fullStr Development of a web tool to increase research literacy in underserved populations through public library partnerships
title_full_unstemmed Development of a web tool to increase research literacy in underserved populations through public library partnerships
title_short Development of a web tool to increase research literacy in underserved populations through public library partnerships
title_sort development of a web tool to increase research literacy in underserved populations through public library partnerships
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7857632/
https://www.ncbi.nlm.nih.gov/pubmed/33534794
http://dx.doi.org/10.1371/journal.pone.0246098
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