Cargando…

Health-Related Quality of Life in European Childhood Cancer Survivors: Protocol for a Study Within PanCareLIFE

BACKGROUND: Survival after childhood cancer has improved to more than 80% during the last few years, leading to an increased number of childhood cancer survivors. Cancer itself, or its treatment, may cause chronic health conditions, including somatic and mental sequelae, which may affect survivors’...

Descripción completa

Detalles Bibliográficos
Autores principales:	Calaminus, Gabriele, Baust, Katja, Berger, Claire, Byrne, Julianne, Binder, Harald, Casagranda, Leonie, Grabow, Desiree, Grootenhuis, Martha, Kaatsch, Peter, Kaiser, Melanie, Kepak, Tomas, Kepáková, Kateřina, Kremer, Leontien C M, Kruseova, Jarmila, Luks, Ales, Spix, Claudia, van den Berg, Marleen, van den Heuvel-Eibrink, Marry M M, van Dulmen-den Broeder, Eline, Kuonen, Rahel, Sommer, Grit, Kuehni, Claudia
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2021
Materias:	Protocol
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7870350/ https://www.ncbi.nlm.nih.gov/pubmed/33492237 http://dx.doi.org/10.2196/21851

Ejemplares similares

Genetic variation in gonadal impairment in female survivors of childhood cancer: a PanCareLIFE study protocol
por: van der Kooi, Anne-Lotte L. F., et al.
Publicado: (2018)

Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer: Protocol for Two Pan-European Studies (PanCareLIFE)
por: van den Berg, Marleen, et al.
Publicado: (2018)

Genetic Determinants of Ototoxicity During and After Childhood Cancer Treatment: Protocol for the PanCareLIFE Study
por: Clemens, Eva, et al.
Publicado: (2019)

Association of candidate pharmacogenetic markers with platinum-induced ototoxicity: PanCareLIFE dataset
por: Langer, Thorsten, et al.
Publicado: (2020)

TCERG1L allelic variation is associated with cisplatin-induced hearing loss in childhood cancer, a PanCareLIFE study
por: Meijer, A. J. M., et al.
Publicado: (2021)

Effect of Genetic Variation in CYP450 on Gonadal Impairment in a European Cohort of Female Childhood Cancer Survivors, Based on a Candidate Gene Approach: Results from the PanCareLIFE Study
por: van der Perk, M. E. Madeleine, et al.
Publicado: (2021)

Managing a Pan-European Consortium on Late Effects among Long-Term Survivors of Childhood and Adolescent Cancer—The PanCareLIFE Project
por: Kaatsch, Peter, et al.
Publicado: (2021)

Effect of Web-Based Versus Paper-Based Questionnaires and Follow-Up Strategies on Participation Rates of Dutch Childhood Cancer Survivors: A Randomized Controlled Trial
por: Kilsdonk, Ellen, et al.
Publicado: (2015)

Increased health‐related quality of life impairments of male and female survivors of childhood cancer: DCCSS LATER 2 psycho‐oncology study
por: van Gorp, Marloes, et al.
Publicado: (2021)

A nationwide study on reproductive function, ovarian reserve, and risk of premature menopause in female survivors of childhood cancer: design and methodological challenges
por: Overbeek, Annelies, et al.
Publicado: (2012)

Die Kohorte der 41.000 Langzeitüberlebenden des Deutschen Kinderkrebsregisters
por: Kaatsch, Peter, et al.
Publicado: (2022)

Dexamethasone-Induced Sarcopenia and Physical Frailty in Children With Acute Lymphoblastic Leukemia: Protocol for a Prospective Cohort Study
por: Verwaaijen, Emma Jacobine, et al.
Publicado: (2022)

Possible modification of BRSK1 on the risk of alkylating chemotherapy-related reduced ovarian function
por: van der Kooi, Anne-Lotte L F, et al.
Publicado: (2021)

Metabolic Syndrome Parameters, Determinants, and Biomarkers in Adult Survivors of Childhood Cancer: Protocol for the Dutch Childhood Cancer Survivor Study on Metabolic Syndrome (Dutch LATER METS)
por: Pluimakers, Vincent, et al.
Publicado: (2021)

The utility of a portable muscle ultrasound in the assessment of muscle alterations in children with acute lymphoblastic leukaemia
por: Verwaaijen, Emma J., et al.
Publicado: (2023)

Parent-Child Dyadic Coping and Quality of Life in Chronically Diseased Children
por: Nap-van der Vlist, Merel M., et al.
Publicado: (2021)

Assessing fatigue in childhood cancer survivors: Psychometric properties of the Checklist Individual Strength and the Short Fatigue Questionnaire––a DCCSS LATER study
por: Penson, Adriaan, et al.
Publicado: (2021)

Self-reported outcomes on oral health and oral health-related quality of life in long-term childhood cancer survivors—A DCCSS-LATER 2 Study
por: Stolze, Juliette, et al.
Publicado: (2023)

Psychosocial developmental milestones of young adult survivors of childhood cancer
por: Maurice-Stam, Heleen, et al.
Publicado: (2022)

Prevalence and risk factors of cancer‐related fatigue in childhood cancer survivors: A DCCSS LATER study
por: van Deuren, Sylvia, et al.
Publicado: (2021)

Risk factors for steroid‐induced adverse psychological reactions and sleep problems in pediatric acute lymphoblastic leukemia: A systematic review
por: van Hulst, Annelienke M., et al.
Publicado: (2021)

Effects of a combined physical and psychosocial training for children with cancer: a randomized controlled trial
por: Braam, Katja I., et al.
Publicado: (2018)

Perceived need to take medication is associated with medication non-adherence in patients with rheumatoid arthritis
por: Zwikker, Hanneke E, et al.
Publicado: (2014)

Long-Term Effects of Childhood Cancer Treatment on Dentition and Oral Health: A Dentist Survey Study from the DCCSS LATER 2 Study
por: Stolze, Juliette, et al.
Publicado: (2021)

Design of the Quality of Life in Motion (QLIM) study: a randomized controlled trial to evaluate the effectiveness and cost-effectiveness of a combined physical exercise and psychosocial training program to improve physical fitness in children with cancer
por: Braam, Katja I, et al.
Publicado: (2010)

Cardiorespiratory fitness and physical activity in children with cancer
por: Braam, Katja I., et al.
Publicado: (2015)

Incidence, Survival, and Treatment of Localized and Metastatic Neuroblastoma in Germany 1979–2015
por: Berthold, Frank, et al.
Publicado: (2017)

Psychosocial functioning of parents of Dutch long‐term survivors of childhood cancer
por: van Gorp, Marloes, et al.
Publicado: (2022)

Parents' experiences with large‐scale sequencing for genetic predisposition in pediatric renal cancer: A qualitative study
por: Bon, Sebastian B. B., et al.
Publicado: (2022)

Methodology of the DCCSS later fatigue study: a model to investigate chronic fatigue in long-term survivors of childhood cancer
por: Penson, Adriaan, et al.
Publicado: (2021)

The association between vincristine‐induced peripheral neuropathy and health‐related quality of life in children with cancer
por: van de Velde, Mirjam E., et al.
Publicado: (2021)

Questionnaire‐ and linkage‐based outcomes in Dutch childhood cancer survivors: Methodology of the DCCSS LATER study part 1
por: Teepen, Jop C., et al.
Publicado: (2022)

Nutritional Preconditioning in Cancer Treatment in Relation to DNA Damage and Aging
por: van den Boogaard, Winnie M.C., et al.
Publicado: (2021)

Pediatric AML: From Biology to Clinical Management
por: de Rooij, Jasmijn D. E., et al.
Publicado: (2015)

Long-Term Tubular Dysfunction in Childhood Cancer Survivors; DCCSS-LATER 2 Renal Study
por: Kooijmans, Esmee C. M., et al.
Publicado: (2022)

Prevalence and Risk Factors for Hyposalivation and Xerostomia in Childhood Cancer Survivors Following Different Treatment Modalities—A Dutch Childhood Cancer Survivor Study Late Effects 2 Clinical Study (DCCSS LATER 2)
por: Stolze, Juliette, et al.
Publicado: (2022)

Dutch–Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)(®)
por: Haverman, Lotte, et al.
Publicado: (2015)

Cancer patterns among children of Turkish descent in Germany: A study at the German Childhood Cancer Registry
por: Spallek, Jacob, et al.
Publicado: (2008)

Cancer survival among children of Turkish descent in Germany 1980–2005: a registry-based analysis
por: Spix, Claudia, et al.
Publicado: (2008)

Risk and Temporal Changes of Heart Failure Among 5‐Year Childhood Cancer Survivors: a DCOG‐LATER Study
por: Feijen, E. A. M. (Lieke), et al.
Publicado: (2018)

Cannot write session to /tmp/vufind_sessions/sess_de50e0usfcdgab1q27qro9o25j