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Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study

BACKGROUND: Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about tr...

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Autores principales: Karlsson, Petra, Griffiths, Tom, Clarke, Michael T., Monbaliu, Elegast, Himmelmann, Kate, Bekteshi, Saranda, Allsop, Abigail, Pereksles, René, Galea, Claire, Wallen, Margaret
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7874479/
https://www.ncbi.nlm.nih.gov/pubmed/33568101
http://dx.doi.org/10.1186/s12883-021-02077-z
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author Karlsson, Petra
Griffiths, Tom
Clarke, Michael T.
Monbaliu, Elegast
Himmelmann, Kate
Bekteshi, Saranda
Allsop, Abigail
Pereksles, René
Galea, Claire
Wallen, Margaret
author_facet Karlsson, Petra
Griffiths, Tom
Clarke, Michael T.
Monbaliu, Elegast
Himmelmann, Kate
Bekteshi, Saranda
Allsop, Abigail
Pereksles, René
Galea, Claire
Wallen, Margaret
author_sort Karlsson, Petra
collection PubMed
description BACKGROUND: Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy. METHODS: A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2. RESULTS: Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained. CONCLUSION: This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12883-021-02077-z.
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spelling pubmed-78744792021-02-11 Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study Karlsson, Petra Griffiths, Tom Clarke, Michael T. Monbaliu, Elegast Himmelmann, Kate Bekteshi, Saranda Allsop, Abigail Pereksles, René Galea, Claire Wallen, Margaret BMC Neurol Research Article BACKGROUND: Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy. METHODS: A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2. RESULTS: Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained. CONCLUSION: This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12883-021-02077-z. BioMed Central 2021-02-10 /pmc/articles/PMC7874479/ /pubmed/33568101 http://dx.doi.org/10.1186/s12883-021-02077-z Text en © The Author(s) 2021 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Karlsson, Petra
Griffiths, Tom
Clarke, Michael T.
Monbaliu, Elegast
Himmelmann, Kate
Bekteshi, Saranda
Allsop, Abigail
Pereksles, René
Galea, Claire
Wallen, Margaret
Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study
title Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study
title_full Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study
title_fullStr Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study
title_full_unstemmed Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study
title_short Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study
title_sort stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a delphi study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7874479/
https://www.ncbi.nlm.nih.gov/pubmed/33568101
http://dx.doi.org/10.1186/s12883-021-02077-z
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