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Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives

BACKGROUND: Dynamic consent has been proposed as a process through which participants and patients can gain more control over how their data and samples, donated for biomedical research, are used, resulting in greater trust in researchers. It is also a way to respond to evolving data protection fram...

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Detalles Bibliográficos
Autores principales: Wallace, Susan E., Miola, José
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7874652/
https://www.ncbi.nlm.nih.gov/pubmed/33563268
http://dx.doi.org/10.1186/s12910-021-00583-w