Patient- and Caregiver-Reported Burden of Transfusion-Dependent β-Thalassemia Measured Using a Digital Application

BACKGROUND AND OBJECTIVE: Transfusion-dependent β-thalassemia (TDT) is a rare genetic disease characterized by a deficiency of functional β-globin, ultimately leading to lifelong dependence on blood transfusions. There is little patient- and caregiver-reported data with which to understand the holis...

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Detalles Bibliográficos
Autores principales: Paramore, Clark, Levine, Laurice, Bagshaw, Emma, Ouyang, Chengyu, Kudlac, Amber, Larkin, Mark
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2020
Materias:
Original Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7884594/
https://www.ncbi.nlm.nih.gov/pubmed/33123986
http://dx.doi.org/10.1007/s40271-020-00473-0

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