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Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?

Background  According to current research data, individuals with migration background rarely utilize palliative care services. The potential reasons remain largely unclear, with cultural differences being suggested most frequently. A study focusing on the needs of cancer patients with migration back...

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Autores principales: Banse, Christian, Owusu-Boakye, Sonja, Schade, Franziska, Jansky, Maximiliane, Marx, Gabriella, Nauck, Friedemann
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Georg Thieme Verlag KG 2021
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7886499/
https://www.ncbi.nlm.nih.gov/pubmed/33202430
http://dx.doi.org/10.1055/a-1263-3437
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author Banse, Christian
Owusu-Boakye, Sonja
Schade, Franziska
Jansky, Maximiliane
Marx, Gabriella
Nauck, Friedemann
author_facet Banse, Christian
Owusu-Boakye, Sonja
Schade, Franziska
Jansky, Maximiliane
Marx, Gabriella
Nauck, Friedemann
author_sort Banse, Christian
collection PubMed
description Background  According to current research data, individuals with migration background rarely utilize palliative care services. The potential reasons remain largely unclear, with cultural differences being suggested most frequently. A study focusing on the needs of cancer patients with migration background in Germany provides an overview of the care problems encountered. Method  The qualitative study design focuses on biographic narratives by patients, their relatives and medical care providers (n = 57). Data were analyzed with “grounded theory” which disclosed various categories and coping strategies in dealing with both the disease and the care provided. Result  Arriving in palliative care, severely ill patients with migration background experience social exclusion. These migration-specific effects have a negative impact on coping with the disease and on palliative treatment and end-of-life care. Relatives and medical care providers face a challenge when they fail to meet the patients’ expectations. Many problems are attributed to cultural differences although patients nearing the end of their lifes tend to articulate rather generic needs. Conclusion  Individuals with migration background frequently receive palliative care without their care givers having any specific knowledge of their migration biography. In order to do justice to societal effects, the support given must go beyond the mere medical expertise.
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spelling pubmed-78864992021-02-17 Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende? Banse, Christian Owusu-Boakye, Sonja Schade, Franziska Jansky, Maximiliane Marx, Gabriella Nauck, Friedemann Dtsch Med Wochenschr Background  According to current research data, individuals with migration background rarely utilize palliative care services. The potential reasons remain largely unclear, with cultural differences being suggested most frequently. A study focusing on the needs of cancer patients with migration background in Germany provides an overview of the care problems encountered. Method  The qualitative study design focuses on biographic narratives by patients, their relatives and medical care providers (n = 57). Data were analyzed with “grounded theory” which disclosed various categories and coping strategies in dealing with both the disease and the care provided. Result  Arriving in palliative care, severely ill patients with migration background experience social exclusion. These migration-specific effects have a negative impact on coping with the disease and on palliative treatment and end-of-life care. Relatives and medical care providers face a challenge when they fail to meet the patients’ expectations. Many problems are attributed to cultural differences although patients nearing the end of their lifes tend to articulate rather generic needs. Conclusion  Individuals with migration background frequently receive palliative care without their care givers having any specific knowledge of their migration biography. In order to do justice to societal effects, the support given must go beyond the mere medical expertise. Georg Thieme Verlag KG 2021-02 2020-11-17 /pmc/articles/PMC7886499/ /pubmed/33202430 http://dx.doi.org/10.1055/a-1263-3437 Text en The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commecial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/) https://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License, which permits unrestricted reproduction and distribution, for non-commercial purposes only; and use and reproduction, but not distribution, of adapted material for non-commercial purposes only, provided the original work is properly cited.
spellingShingle Banse, Christian
Owusu-Boakye, Sonja
Schade, Franziska
Jansky, Maximiliane
Marx, Gabriella
Nauck, Friedemann
Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?
title Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?
title_full Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?
title_fullStr Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?
title_full_unstemmed Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?
title_short Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?
title_sort der migrationshintergrund als grenze der palliativversorgung am lebensende?
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7886499/
https://www.ncbi.nlm.nih.gov/pubmed/33202430
http://dx.doi.org/10.1055/a-1263-3437
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