Cargando…
Adaptation and validation of the Genetic Counseling Outcome Scale for autism spectrum disorders and related conditions
The genetics care pathway experienced by families affected by autism spectrum disorder (ASD) around the time of diagnosis is currently uncharacterized and potentially variable across contexts. The lack of consensus on outcome measures to capture the impact of genetic services for these families show...
Autores principales: | Yusuf, Afiqah, Peltekova, Iskra, Savion‐Lemieux, Tal, Frei, Jennifer, Joober, Ridha, Howe, Jennifer, Scherer, Stephen W., Elsabbagh, Mayada |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7891368/ https://www.ncbi.nlm.nih.gov/pubmed/32893416 http://dx.doi.org/10.1002/jgc4.1323 |
Ejemplares similares
-
Predictors of empowerment in parents of children with autism and related neurodevelopmental disorders who are undergoing genetic testing
por: Peltekova, Iskra, et al.
Publicado: (2021) -
Association between distress and knowledge among parents of autistic children
por: Yusuf, Afiqah, et al.
Publicado: (2019) -
Enhancing the Impact of Genomics Research in Autism through Integration of Research Results into Routine Care Pathways—A Case Series
por: Peltekova, Iskra, et al.
Publicado: (2021) -
At the cross-roads of participatory research and biomarker discovery in autism: the need for empirical data
por: Yusuf, Afiqah, et al.
Publicado: (2015) -
Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities
por: Tesfaye, Rackeb, et al.
Publicado: (2019)