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Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling

The Welfare Genome Project (WGP) provided 1,000 healthy Korean volunteers with detailed genetic and health reports to test the social perception of integrating personal genetic and healthcare data at a large-scale. WGP was launched in 2016 in the Ulsan Metropolitan City as the first large-scale geno...

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Autores principales: Jeon, Yeonsu, Jeon, Sungwon, Blazyte, Asta, Kim, Yeo Jin, Lee, Jasmin Junseo, Bhak, Youngjune, Cho, Yun Sung, Park, Yeshin, Noh, Eui-Kyu, Manica, Andrea, Edwards, Jeremy S., Bolser, Dan, Kim, Sukyeon, Lee, Yuji, Yoon, Changhan, Lee, Semin, Kim, Byung Chul, Park, Neung Hwa, Bhak, Jong
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7900555/
https://www.ncbi.nlm.nih.gov/pubmed/33633791
http://dx.doi.org/10.3389/fgene.2021.633731
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author Jeon, Yeonsu
Jeon, Sungwon
Blazyte, Asta
Kim, Yeo Jin
Lee, Jasmin Junseo
Bhak, Youngjune
Cho, Yun Sung
Park, Yeshin
Noh, Eui-Kyu
Manica, Andrea
Edwards, Jeremy S.
Bolser, Dan
Kim, Sukyeon
Lee, Yuji
Yoon, Changhan
Lee, Semin
Kim, Byung Chul
Park, Neung Hwa
Bhak, Jong
author_facet Jeon, Yeonsu
Jeon, Sungwon
Blazyte, Asta
Kim, Yeo Jin
Lee, Jasmin Junseo
Bhak, Youngjune
Cho, Yun Sung
Park, Yeshin
Noh, Eui-Kyu
Manica, Andrea
Edwards, Jeremy S.
Bolser, Dan
Kim, Sukyeon
Lee, Yuji
Yoon, Changhan
Lee, Semin
Kim, Byung Chul
Park, Neung Hwa
Bhak, Jong
author_sort Jeon, Yeonsu
collection PubMed
description The Welfare Genome Project (WGP) provided 1,000 healthy Korean volunteers with detailed genetic and health reports to test the social perception of integrating personal genetic and healthcare data at a large-scale. WGP was launched in 2016 in the Ulsan Metropolitan City as the first large-scale genome project with public participation in Korea. The project produced a set of genetic materials, genotype information, clinical data, and lifestyle survey answers from participants aged 20–96. As compensation, the participants received a free general health check-up on 110 clinical traits, accompanied by a genetic report of their genotypes followed by genetic counseling. In a follow-up survey, 91.0% of the participants indicated that their genetic reports motivated them to improve their health. Overall, WGP expanded not only the general awareness of genomics, DNA sequencing technologies, bioinformatics, and bioethics regulations among all the parties involved, but also the general public’s understanding of how genome projects can indirectly benefit their health and lifestyle management. WGP established a data construction framework for not only scientific research but also the welfare of participants. In the future, the WGP framework can help lay the groundwork for a new personalized healthcare system that is seamlessly integrated with existing public medical infrastructure.
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spelling pubmed-79005552021-02-24 Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling Jeon, Yeonsu Jeon, Sungwon Blazyte, Asta Kim, Yeo Jin Lee, Jasmin Junseo Bhak, Youngjune Cho, Yun Sung Park, Yeshin Noh, Eui-Kyu Manica, Andrea Edwards, Jeremy S. Bolser, Dan Kim, Sukyeon Lee, Yuji Yoon, Changhan Lee, Semin Kim, Byung Chul Park, Neung Hwa Bhak, Jong Front Genet Genetics The Welfare Genome Project (WGP) provided 1,000 healthy Korean volunteers with detailed genetic and health reports to test the social perception of integrating personal genetic and healthcare data at a large-scale. WGP was launched in 2016 in the Ulsan Metropolitan City as the first large-scale genome project with public participation in Korea. The project produced a set of genetic materials, genotype information, clinical data, and lifestyle survey answers from participants aged 20–96. As compensation, the participants received a free general health check-up on 110 clinical traits, accompanied by a genetic report of their genotypes followed by genetic counseling. In a follow-up survey, 91.0% of the participants indicated that their genetic reports motivated them to improve their health. Overall, WGP expanded not only the general awareness of genomics, DNA sequencing technologies, bioinformatics, and bioethics regulations among all the parties involved, but also the general public’s understanding of how genome projects can indirectly benefit their health and lifestyle management. WGP established a data construction framework for not only scientific research but also the welfare of participants. In the future, the WGP framework can help lay the groundwork for a new personalized healthcare system that is seamlessly integrated with existing public medical infrastructure. Frontiers Media S.A. 2021-02-09 /pmc/articles/PMC7900555/ /pubmed/33633791 http://dx.doi.org/10.3389/fgene.2021.633731 Text en Copyright © 2021 Jeon, Jeon, Blazyte, Kim, Lee, Bhak, Cho, Park, Noh, Manica, Edwards, Bolser, Kim, Lee, Yoon, Lee, Kim, Park and Bhak. http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Genetics
Jeon, Yeonsu
Jeon, Sungwon
Blazyte, Asta
Kim, Yeo Jin
Lee, Jasmin Junseo
Bhak, Youngjune
Cho, Yun Sung
Park, Yeshin
Noh, Eui-Kyu
Manica, Andrea
Edwards, Jeremy S.
Bolser, Dan
Kim, Sukyeon
Lee, Yuji
Yoon, Changhan
Lee, Semin
Kim, Byung Chul
Park, Neung Hwa
Bhak, Jong
Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling
title Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling
title_full Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling
title_fullStr Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling
title_full_unstemmed Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling
title_short Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling
title_sort welfare genome project: a participatory korean personal genome project with free health check-up and genetic report followed by counseling
topic Genetics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7900555/
https://www.ncbi.nlm.nih.gov/pubmed/33633791
http://dx.doi.org/10.3389/fgene.2021.633731
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