Cargando…

Blended cognitive behaviour therapy for children and adolescents with mitochondrial disease targeting fatigue (PowerMe): study protocol for a multiple baseline single case experiment

BACKGROUND: Mitochondrial disease is a rare, hereditary disease with a heterogeneous clinical presentation. However, fatigue is a common and burdensome complaint in children and adolescents with mitochondrial disease. No psychological intervention targeting fatigue exists for paediatric patients wit...

Descripción completa

Detalles Bibliográficos
Autores principales:	Klein, I. L., van de Loo, K. F. E., Hoogeboom, T. J., Janssen, M. C. H., Smeitink, J. A. M., van der Veer, E., Verhaak, C. M., Custers, J. A. E.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Study Protocol
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923335/ https://www.ncbi.nlm.nih.gov/pubmed/33648576 http://dx.doi.org/10.1186/s13063-021-05126-7

Ejemplares similares

Identifying trajectories of fatigue in patients with primary mitochondrial disease due to the m.3243A > G variant
por: Klein, Inge‐Lot, et al.
Publicado: (2022)

Psychological functioning in children suspected for mitochondrial disease: the need for care
por: van de Loo, Kim F. E., et al.
Publicado: (2020)

Fear of disease progression in carriers of the m.3243A > G mutation
por: Custers, José A. E., et al.
Publicado: (2018)

A conceptual disease model for quality of life in mitochondrial disease
por: van de Loo, Kim F. E., et al.
Publicado: (2022)

Reducing severe fatigue in patients with diffuse glioma: a study protocol for an RCT on the effect of blended cognitive behavioural therapy
por: Röttgering, Jantine Geertruida, et al.
Publicado: (2022)

Cognitive functioning and mental health in children with a primary mitochondrial disease
por: van de Loo, Kim F. E., et al.
Publicado: (2022)

Quality of life, fatigue and mental health in patients with the m.3243A > G mutation and its correlates with genetic characteristics and disease manifestation
por: Verhaak, Christianne, et al.
Publicado: (2016)

Fatigue affects quality of movement more in ACL-reconstructed soccer players than in healthy soccer players
por: van Melick, N., et al.
Publicado: (2018)

How Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Progresses: The Natural History of ME/CFS
por: Nacul, Luis, et al.
Publicado: (2020)

Severe Fatigue is Highly Prevalent in Patients with IPF or Sarcoidosis
por: Bloem, Ada E. M., et al.
Publicado: (2020)

Multidimensional assessment of fatigue in patients with brain metastases before and after Gamma Knife radiosurgery
por: Verhaak, Eline, et al.
Publicado: (2019)

Orthostatic chronotropic incompetence in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
por: van Campen, C. (Linda) M.C., et al.
Publicado: (2023)

Comparing Idiopathic Chronic Fatigue and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Males: Response to Two-Day Cardiopulmonary Exercise Testing Protocol
por: van Campen, C. (Linda) M. C., et al.
Publicado: (2021)

Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)
por: van Campen, C. (Linda) M. C., et al.
Publicado: (2021)

Development and initial evaluation of blended cognitive behavioural treatment for major depression in routine specialized mental health care
por: Kooistra, Lisa C., et al.
Publicado: (2016)

Tribo-Charging Behaviour of Inhalable Mannitol Blends with Salbutamol Sulphate
por: Zellnitz, S., et al.
Publicado: (2019)

The long-term course and relationship with survival of multidimensional fatigue in patients with brain metastases after Gamma Knife radiosurgery
por: Verhaak, Eline, et al.
Publicado: (2023)

The role of interoception in the mechanism of pain and fatigue in fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
por: Sharp, H., et al.
Publicado: (2021)

Testing the efficacy of web-based cognitive behavioural therapy for adult patients with chronic fatigue syndrome (CBIT): study protocol for a randomized controlled trial
por: Janse, Anthonie, et al.
Publicado: (2015)

Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database
por: Crawley, E, et al.
Publicado: (2020)

Cognitive Function Declines Following Orthostatic Stress in Adults With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
por: van Campen, C. (Linda) M. C., et al.
Publicado: (2020)

Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database
por: Crawley, E., et al.
Publicado: (2013)

Health-related quality of life, psychological distress, and fatigue in metastatic castration-resistant prostate cancer patients treated with radium-223 therapy
por: van der Doelen, Maarten J., et al.
Publicado: (2022)

Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
por: Moore, Geoffrey E., et al.
Publicado: (2023)

Usability and feasibility of E-nergEYEze: a blended vision-specific E-health based cognitive behavioral therapy and self-management intervention to reduce fatigue in adults with visual impairment
por: Veldman, M.H.J., et al.
Publicado: (2023)

The SLIM study—Shared medical appointments to change lifestyles of overweight people with haemophilia: A randomized multiple baseline (n‐of‐1) design
por: Hendriks, Marcel A. L., et al.
Publicado: (2021)

Blended versus face-to-face cognitive behavioural therapy for severe fatigue in patients with multiple sclerosis: A non-inferiority RCT
por: de Gier, Marieke, et al.
Publicado: (2023)

Designing Sustainable Polymer Blends: Tailoring Mechanical Properties and Degradation Behaviour in PHB/PLA/PCL Blends in a Seawater Environment
por: G. Engler, Leonardo, et al.
Publicado: (2023)

Predicting trajectories of behavioral adjustment in children diagnosed with acute lymphoblastic leukemia
por: Sint Nicolaas, Simone M., et al.
Publicado: (2016)

Associations between paediatric fatigue and eating behaviours
por: Oberle, Megan M., et al.
Publicado: (2020)

Cellular Immune Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
por: Cliff, Jacqueline M., et al.
Publicado: (2019)

Comparison of a 20 degree and 70 degree tilt test in adolescent myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients
por: van Campen, C. (Linda) M. C., et al.
Publicado: (2023)

Baseline predictors of remission, pain and fatigue in rheumatoid arthritis: the TITRATE trial
por: Lee, Sook Yan, et al.
Publicado: (2021)

Psychogenic Pseudosyncope: Real or Imaginary? Results from a Case-Control Study in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Patients
por: van Campen, C. (Linda) M. C., et al.
Publicado: (2022)

Implementing guided ICBT for chronic pain and fatigue: A qualitative evaluation among therapists and managers
por: van der Vaart, Rosalie, et al.
Publicado: (2019)

Feasibility and potential effectiveness of a non-pharmacological multidisciplinary care programme for persons with generalised osteoarthritis: a randomised, multiple-baseline single-case study
por: Hoogeboom, Thomas J, et al.
Publicado: (2012)

Internet-Based Cognitive Behavioral Therapy in Stepped Care for Chronic Fatigue Syndrome: Randomized Noninferiority Trial
por: Worm-Smeitink, Margreet, et al.
Publicado: (2019)

Internet-Based Cognitive Behavioral Therapy for Chronic Fatigue Syndrome Integrated in Routine Clinical Care: Implementation Study
por: Worm-Smeitink, Margreet, et al.
Publicado: (2019)

Immunosignature Analysis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
por: Günther, Oliver P., et al.
Publicado: (2018)

Fatigue among Long-Term Breast Cancer Survivors: A Controlled Cross-Sectional Study
por: Maass, Saskia W. M. C., et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_ohsf5eresr9mjasm47iebtdutd