Cargando…

Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol

INTRODUCTION: Dementia is a public health issue and a major risk factor for poor quality of life among older adults. In the absence of a cure, enhancing health-related quality of life (HRQoL) of people with dementia is the primary goal of care. Robust measurement of HRQoL is a prerequisite to effect...

Descripción completa

Detalles Bibliográficos
Autores principales: Hoben, Matthias, Chamberlain, Stephanie A, O'Rourke, Hannah M, Elliott, Brittany, Shrestha, Shovana, Devkota, Rashmi, Thorne, Trina, Lam, Jenny, Banerjee, Sube, Hughes, Laura, Estabrooks, Carole A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7925918/
https://www.ncbi.nlm.nih.gov/pubmed/33550240
http://dx.doi.org/10.1136/bmjopen-2020-041318
_version_ 1783659356702638080
author Hoben, Matthias
Chamberlain, Stephanie A
O'Rourke, Hannah M
Elliott, Brittany
Shrestha, Shovana
Devkota, Rashmi
Thorne, Trina
Lam, Jenny
Banerjee, Sube
Hughes, Laura
Estabrooks, Carole A
author_facet Hoben, Matthias
Chamberlain, Stephanie A
O'Rourke, Hannah M
Elliott, Brittany
Shrestha, Shovana
Devkota, Rashmi
Thorne, Trina
Lam, Jenny
Banerjee, Sube
Hughes, Laura
Estabrooks, Carole A
author_sort Hoben, Matthias
collection PubMed
description INTRODUCTION: Dementia is a public health issue and a major risk factor for poor quality of life among older adults. In the absence of a cure, enhancing health-related quality of life (HRQoL) of people with dementia is the primary goal of care. Robust measurement of HRQoL is a prerequisite to effective improvement. The DEMQOL suite of instruments is considered among the best available to measure HRQoL in people with dementia; however, no review has systematically and comprehensively examined the use of the DEMQOL in research and summarised evidence to determine its feasibility, acceptability and appropriateness for use in research and practice. METHODS AND ANALYSIS: We will systematically search 12 electronic databases and reference lists of all included studies. We will include systematically conducted reviews, as well as, quantitative and qualitative research studies that report on the development, validation or use in research studies of any of the DEMQOL instruments. Two reviewers will independently screen all studies for eligibility, and assess the quality of each included study using one of four validated checklists appropriate for different study designs. Discrepancies at all stages of the review will be resolved by consensus. We will use descriptive statistics (frequencies, proportions, ranges), content analysis of narrative data and vote counting (for the measures of association) to summarise the data elements. Using narrative synthesis, we will summarise what is known about the development, validation, feasibility, acceptability, appropriateness and use of the DEMQOL. Our review methods will follow the reporting and conduct guidelines of the Cochrane Handbook for Systematic Reviews of Interventions and the Preferred Reporting Items for Systematic Reviews and Meta-Analysis. ETHICS AND DISSEMINATION: Ethical approval is not required as this project does not involve primary data collection. We will disseminate our findings through peer-reviewed publications and conference presentations. PROSPERO REGISTRATION NUMBER: CRD42020157851.
format Online
Article
Text
id pubmed-7925918
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher BMJ Publishing Group
record_format MEDLINE/PubMed
spelling pubmed-79259182021-03-19 Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol Hoben, Matthias Chamberlain, Stephanie A O'Rourke, Hannah M Elliott, Brittany Shrestha, Shovana Devkota, Rashmi Thorne, Trina Lam, Jenny Banerjee, Sube Hughes, Laura Estabrooks, Carole A BMJ Open Nursing INTRODUCTION: Dementia is a public health issue and a major risk factor for poor quality of life among older adults. In the absence of a cure, enhancing health-related quality of life (HRQoL) of people with dementia is the primary goal of care. Robust measurement of HRQoL is a prerequisite to effective improvement. The DEMQOL suite of instruments is considered among the best available to measure HRQoL in people with dementia; however, no review has systematically and comprehensively examined the use of the DEMQOL in research and summarised evidence to determine its feasibility, acceptability and appropriateness for use in research and practice. METHODS AND ANALYSIS: We will systematically search 12 electronic databases and reference lists of all included studies. We will include systematically conducted reviews, as well as, quantitative and qualitative research studies that report on the development, validation or use in research studies of any of the DEMQOL instruments. Two reviewers will independently screen all studies for eligibility, and assess the quality of each included study using one of four validated checklists appropriate for different study designs. Discrepancies at all stages of the review will be resolved by consensus. We will use descriptive statistics (frequencies, proportions, ranges), content analysis of narrative data and vote counting (for the measures of association) to summarise the data elements. Using narrative synthesis, we will summarise what is known about the development, validation, feasibility, acceptability, appropriateness and use of the DEMQOL. Our review methods will follow the reporting and conduct guidelines of the Cochrane Handbook for Systematic Reviews of Interventions and the Preferred Reporting Items for Systematic Reviews and Meta-Analysis. ETHICS AND DISSEMINATION: Ethical approval is not required as this project does not involve primary data collection. We will disseminate our findings through peer-reviewed publications and conference presentations. PROSPERO REGISTRATION NUMBER: CRD42020157851. BMJ Publishing Group 2021-02-05 /pmc/articles/PMC7925918/ /pubmed/33550240 http://dx.doi.org/10.1136/bmjopen-2020-041318 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
spellingShingle Nursing
Hoben, Matthias
Chamberlain, Stephanie A
O'Rourke, Hannah M
Elliott, Brittany
Shrestha, Shovana
Devkota, Rashmi
Thorne, Trina
Lam, Jenny
Banerjee, Sube
Hughes, Laura
Estabrooks, Carole A
Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol
title Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol
title_full Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol
title_fullStr Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol
title_full_unstemmed Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol
title_short Psychometric properties and use of the DEMQOL suite of instruments in research: a systematic review protocol
title_sort psychometric properties and use of the demqol suite of instruments in research: a systematic review protocol
topic Nursing
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7925918/
https://www.ncbi.nlm.nih.gov/pubmed/33550240
http://dx.doi.org/10.1136/bmjopen-2020-041318
work_keys_str_mv AT hobenmatthias psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT chamberlainstephaniea psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT orourkehannahm psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT elliottbrittany psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT shresthashovana psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT devkotarashmi psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT thornetrina psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT lamjenny psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT banerjeesube psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT hugheslaura psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol
AT estabrookscarolea psychometricpropertiesanduseofthedemqolsuiteofinstrumentsinresearchasystematicreviewprotocol