Cargando…

Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study

BACKGROUND: Evidence suggests that health care data sharing may strengthen care coordination, improve quality and safety, and reduce costs. However, to achieve efficient and meaningful adoption of health care data-sharing initiatives, it is necessary to engage all stakeholders, from health care prof...

Descripción completa

Detalles Bibliográficos
Autores principales:	Lounsbury, Olivia, Roberts, Lily, Goodman, Jonathan R, Batey, Philippa, Naar, Lenny, Flott, Kelsey M, Lawrence-Jones, Anna, Ghafur, Saira, Darzi, Ara, Neves, Ana Luisa
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2021
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7939935/ https://www.ncbi.nlm.nih.gov/pubmed/33616532 http://dx.doi.org/10.2196/22744

Ejemplares similares

Health Care Professionals’ Perspectives on the Secondary Use of Health Records to Improve Quality and Safety of Care in England: Qualitative Study
por: Neves, Ana Luísa, et al.
Publicado: (2019)

Public perceptions on data sharing: key insights from the UK and the USA
por: Ghafur, Saira, et al.
Publicado: (2020)

Care pathway and organisational features driving patient experience: statistical analysis of large NHS datasets
por: Flott, Kelsey, et al.
Publicado: (2018)

A Patient-Centered Framework for Evaluating Digital Maturity of Health Services: A Systematic Review
por: Flott, Kelsey, et al.
Publicado: (2016)

Improving the Usefulness and Use of Patient Survey Programs: National Health Service Interview Study
por: Flott, Kelsey, et al.
Publicado: (2018)

Evaluating Digital Maturity and Patient Acceptability of Real-Time Patient Experience Feedback Systems: Systematic Review
por: Khanbhai, Mustafa, et al.
Publicado: (2019)

No patient safety without health worker safety
por: Shaw, Alexandra, et al.
Publicado: (2020)

Perceptions of chief clinical information officers on the state of electronic health records systems interoperability in NHS England: a qualitative interview study
por: Li, Edmond, et al.
Publicado: (2023)

Assessment of Patients’ Ability to Review Electronic Health Record Information to Identify Potential Errors: Cross-sectional Web-Based Survey
por: Freise, Lisa, et al.
Publicado: (2021)

How to improve patient safety in fragile, conflict-affected and vulnerable settings: a Delphi study protocol
por: Shaw, Alexandra, et al.
Publicado: (2021)

Can self-management programmes change healthcare utilisation in COPD?: A systematic review and framework analysis
por: Smalley, Katelyn R., et al.
Publicado: (2021)

Applying natural language processing and machine learning techniques to patient experience feedback: a systematic review
por: Khanbhai, Mustafa, et al.
Publicado: (2021)

The self-management abilities test (SMAT): a tool to identify the self-management abilities of adults with bronchiectasis
por: Smalley, Katelyn R., et al.
Publicado: (2022)

David Artis: Fear no worm
por: Maxmen, Amy
Publicado: (2009)

Which behaviour change techniques are most effective in improving healthcare utilisation in COPD self-management programmes? A protocol for a systematic review
por: Smalley, Katelyn Rene, et al.
Publicado: (2019)

Smart Home Sensing and Monitoring in Households With Dementia: User-Centered Design Approach
por: Tiersen, Federico, et al.
Publicado: (2021)

Identifying factors that promote and limit the effective use of real-time patient experience feedback: a mixed-methods study in secondary care
por: Khanbhai, Mustafa, et al.
Publicado: (2021)

Population-level impact of a pulse oximetry remote monitoring programme on mortality and healthcare utilisation in the people with COVID-19 in England: a national analysis using a stepped wedge design
por: Beaney, Thomas, et al.
Publicado: (2022)

Evaluating the impact of a pulse oximetry remote monitoring programme on mortality and healthcare utilisation in patients with COVID-19 assessed in emergency departments in England: a retrospective matched cohort study
por: Beaney, Thomas, et al.
Publicado: (2023)

Assessing the safety of home oximetry for COVID-19: a multisite retrospective observational study
por: Clarke, Jonathan, et al.
Publicado: (2021)

Contact with alien civilizations: our hopes and fears about encountering extraterrestrials
por: Michaud, Michael
Publicado: (2007)

Factors associated with enrolment into a national COVID-19 pulse oximetry remote monitoring programme in England: a retrospective observational study
por: Clarke, Jonathan, et al.
Publicado: (2023)

Enriching the Value of Patient Experience Feedback: Web-Based Dashboard Development Using Co-design and Heuristic Evaluation
por: Khanbhai, Mustafa, et al.
Publicado: (2022)

CERN hopes LHC report will dispel doomsday fears
Publicado: (2008)

Remote shared care delivery: a virtual response to COVID-19
por: Ramdas, Kamalini, et al.
Publicado: (2020)

Rural Residents’ Hopes and Fears about Aging in Place: The Need to Improve Access to Aging Resources
por: Brothers, Allyson, et al.
Publicado: (2021)

Worm Domains are not Gromov Hyperbolic
por: Arosio, Leandro, et al.
Publicado: (2023)

False Hopes, Unwarranted Fears: The Trouble with Medical News Stories
Publicado: (2008)

Mesenchymal stem cell therapy for doxorubicin cardiomyopathy: hopes and fears
por: Ezquer, Fernando, et al.
Publicado: (2015)

When vaccine adverse event reporting generates hope, not fear
por: Chang, Joyce C, et al.
Publicado: (2022)

Hope and Resilience Related to Fear of COVID-19 in Young People
por: Javier-Aliaga, David J., et al.
Publicado: (2022)

Possible Selves in Balance: Exploring Hopes and Fears of Indian Musicians
por: Pathak, Vrushali, et al.
Publicado: (2023)

The Fears and Hopes of Ukrainian Migrant Workers in Poland in the Pandemic Era
por: Shelest-Szumilas, Olena, et al.
Publicado: (2023)

Healthy Environments: Understanding Perceptions of Underrepresented Communities in the United Kingdom
por: Roberts, Lily F., et al.
Publicado: (2022)

Impact of sharing electronic health records with patients on the quality and safety of care: a systematic review and narrative synthesis protocol
por: Neves, Ana Luisa, et al.
Publicado: (2018)

Communities of Hope: Sharing Economies and the Production of Material Worlds
por: Casella, Eleanor Conlin, et al.
Publicado: (2023)

Impact of primary to secondary care data sharing on care quality in NHS England hospitals
por: Zhang, Joe, et al.
Publicado: (2023)

Atom-smasher to ignite big bang hopes, black hole fears
Publicado: (2008)

Personal experience: Hopes and fears - the road to recovery after psychotic illness
por: Tagore, Aashish
Publicado: (2014)

Competition Shadow: Anchoring to Fear Versus Hope in Estimating Rivals in Competition
por: Chitsaz, Ehsan, et al.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_167e1bhn7810sn40gsh2a7lnch