Cargando…

Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study

Genetic results are usually not returned to research participants in Uganda despite their increased demand. We report on researchers’ perceptions and experiences of return of individual genetic research results. The study involved 15 in-depth interviews of investigators involved in genetics and/or g...

Descripción completa

Detalles Bibliográficos
Autores principales:	Mwaka, Erisa Sabakaki, Sebatta, Deborah Ekusai, Ochieng, Joseph, Munabi, Ian Guyton, Bagenda, Godfrey, Ainembabazi, Deborah, Kaawa-Mafigiri, David
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Routledge 2021
Materias:	Research Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7952062/ https://www.ncbi.nlm.nih.gov/pubmed/33762814 http://dx.doi.org/10.1080/11287462.2021.1896453

Ejemplares similares

Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members
por: Mwaka, Erisa Sabakaki, et al.
Publicado: (2022)

Perspectives and ethical considerations for return of genetics and genomics research results: a qualitative study of genomics researchers in Uganda
por: Ochieng, Joseph, et al.
Publicado: (2021)

Perspectives and experiences of researchers regarding feedback of incidental genomic research findings: A qualitative study
por: Ochieng, Joseph, et al.
Publicado: (2022)

Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study
por: Nabukenya, Sylvia, et al.
Publicado: (2022)

Students’ perspectives of undergraduate research methods education at three public medical schools in Uganda
por: Munabi, Ian Guyton, et al.
Publicado: (2016)

Musculoskeletal disorders among nursing staff: a comparison of five hospitals in Uganda
por: Munabi, Ian Guyton, et al.
Publicado: (2014)

Informed consent process for emergency surgery: A scoping review of stakeholders’ perspectives, challenges, ethical concepts, and policies
por: Kituuka, Olivia, et al.
Publicado: (2023)

Viewpoint: Antimicrobial Resistance Diagnostics Use Accelerator: Qualitative Research on Adherence to Prescriptions
por: Compaoré, Adélaïde, et al.
Publicado: (2023)

Prevalence and factors associated with periodontal disease in patients with diabetes mellitus attending Kiruddu National Referral Hospital, Uganda
por: Kiryowa, Haruna Muhmood, et al.
Publicado: (2022)

Periodontitis is associated with insulin resistance in adults living with diabetes mellitus in Uganda: a cross- sectional study
por: Kiryowa, Haruna Muhmood, et al.
Publicado: (2023)

Low bone mass in people living with HIV on long-term anti-retroviral therapy: A single center study in Uganda
por: Mwaka, Erisa Sabakaki, et al.
Publicado: (2021)

A Qualitative Assessment of a Training and Communication Intervention on Antibiotic Prescription Practices Among Health Workers and Outpatients at Public Health Facilities in Uganda
por: Kaawa-Mafigiri, David, et al.
Publicado: (2023)

Perceptions about and reasons for participation in research bronchoscopy in Uganda: A qualitative analysis
por: Kaawa-Mafigiri, David, et al.
Publicado: (2023)

Data sharing practices in collaborative human genomic research in low- and middle-income countries: A systematic review protocol
por: Ekusai-Sebatta, Deborah, et al.
Publicado: (2023)

“You would not be in a hurry to go back home”: patients’ willingness to participate in HIV/AIDS clinical trials at a clinical and research facility in Kampala, Uganda
por: Sebatta, Deborah Ekusai, et al.
Publicado: (2020)

Musculoskeletal pain and school bag use: a cross-sectional study among Ugandan pupils
por: Mwaka, Erisa S, et al.
Publicado: (2014)

Mycotic aneurysm of the femoral artery resulting from mismanagement of a pathological femur fracture due to chronic osteomyelitis: a case report
por: Mwaka, Erisa Sabakaki, et al.
Publicado: (2013)

Musculoskeletal disorder risk factors among nursing professionals in low resource settings: a cross-sectional study in Uganda
por: Munabi, Ian G, et al.
Publicado: (2014)

Ethical and human rights considerations in public health in low and middle-income countries: an assessment using the case of Uganda’s responses to COVID-19 pandemic
por: Barugahare, John, et al.
Publicado: (2020)

Informed consent in clinical practice: patients’ experiences and perspectives following surgery
por: Ochieng, Joseph, et al.
Publicado: (2015)

Experiences of patients and next of kin on informed consent process for emergency surgery in two Urban university teaching hospitals in Uganda: a comparative cross sectional study
por: Kituuka, Olivia, et al.
Publicado: (2023)

Considerations of Autonomy in Guiding Decisions around the Feedback of Individual Genetic Research Results from Genomics Research: Expectations of and Preferences from Researchers in Botswana
por: Kasule, Mary, et al.
Publicado: (2022)

Informed consent practices for surgical care at university teaching hospitals: a case in a low resource setting
por: Ochieng, Joseph, et al.
Publicado: (2014)

Impact of the Introduction of a Package of Diagnostic Tools, Diagnostic Algorithm, and Training and Communication on Outpatient Acute Fever Case Management at 3 Diverse Sites in Uganda: Results of a Randomized Controlled Trial
por: Kapisi, James, et al.
Publicado: (2023)

Traumatic spondyloptosis of the lumbar spine: a case report
por: Amesiya, Robert, et al.
Publicado: (2014)

A scoping review of genetics and genomics research ethics policies and guidelines for Africa
por: Ali, Joseph, et al.
Publicado: (2021)

A secondary analysis to determine variations of dental arch measurements with age and gender among Ugandans
por: Okori, Hilda, et al.
Publicado: (2015)

Challenges and opportunities for use of long-lasting insecticidal nets to prevent malaria during overnight travel in Uganda: a qualitative study
por: Ekusai-Sebatta, Deborah, et al.
Publicado: (2021)

Return of individual research results: What do participants prefer and expect?
por: Sayeed, Sabina, et al.
Publicado: (2021)

Advancing Access to Diagnostic Tools Essential for Universal Health Coverage and Antimicrobial Resistance Prevention: An Overview of Trials in Sub-Saharan Africa
por: Olliaro, Piero, et al.
Publicado: (2023)

Charcot arthropathy of the diabetic foot in a sub-Saharan tertiary hospital: a cross-sectional study
por: Wanzou, Jean Paul Vwakya, et al.
Publicado: (2019)

Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study
por: Kisiangani, Isaac, et al.
Publicado: (2022)

Psychiatric genomics researchers’ perspectives on best practices for returning results to individual participants
por: Kostick, Kristin, et al.
Publicado: (2019)

Research, evidence and policymaking: the perspectives of policy actors on improving uptake of evidence in health policy development and implementation in Uganda
por: Orem, Juliet Nabyonga, et al.
Publicado: (2012)

Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants
por: Staunton, Ciara, et al.
Publicado: (2021)

Level of education and preferred language of informed consent for clinical research in a multi-lingual community
por: Muzanyi, Grace, et al.
Publicado: (2020)

Effect of an eLearning Intervention on Undergraduate Health Professional Student’s General Histology and Embryology Summative Examination Scores
por: Munabi, Ian G., et al.
Publicado: (2020)

Returning individual research results in international direct-to-participant genomic research: results from a 31-country study
por: Lang, Michael, et al.
Publicado: (2022)

Returning genome sequences to research participants: Policy and practice
por: Wright, Caroline F., et al.
Publicado: (2017)

Case series on testicular torsion: an educational emergency for sub-Saharan Africa
por: Baruga, Evarist, et al.
Publicado: (2013)

Cannot write session to /tmp/vufind_sessions/sess_53qg3rtif4idfgnmsi61nouivs