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How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?

PURPOSE OF REVIEW: This paper seeks to explore the definitions of quality of life and its application to pediatric research and clinical practice. This paper also highlights some of the imperfections in evaluating patient-reported outcomes designed to measure quality of life in pediatrics. Additiona...

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Detalles Bibliográficos
Autor principal: Vente, Teresa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7953198/
https://www.ncbi.nlm.nih.gov/pubmed/33728105
http://dx.doi.org/10.1007/s40124-021-00238-9
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author Vente, Teresa
author_facet Vente, Teresa
author_sort Vente, Teresa
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description PURPOSE OF REVIEW: This paper seeks to explore the definitions of quality of life and its application to pediatric research and clinical practice. This paper also highlights some of the imperfections in evaluating patient-reported outcomes designed to measure quality of life in pediatrics. Additionally, this paper explores some of the unique challenges in promoting quality of life during the COVID-19 pandemic. RECENT FINDINGS: There are numerous different measurement scales to examine quality of life in children of different ages, and with a variety of disease states. SUMMARY: Despite the number of quality of life measurement tools, not every patient population has a validated measure, including patients with palliative care needs. There is no consensus on how to incorporate findings from patient-reported outcomes into clinical practice recommendations. Professional organizations offer guidance and resources for families to encourage focus on quality of life during the COVID-19 pandemic.
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spelling pubmed-79531982021-03-12 How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside? Vente, Teresa Curr Pediatr Rep Pediatric Palliative Care (SK Hoehn, Section Editor) PURPOSE OF REVIEW: This paper seeks to explore the definitions of quality of life and its application to pediatric research and clinical practice. This paper also highlights some of the imperfections in evaluating patient-reported outcomes designed to measure quality of life in pediatrics. Additionally, this paper explores some of the unique challenges in promoting quality of life during the COVID-19 pandemic. RECENT FINDINGS: There are numerous different measurement scales to examine quality of life in children of different ages, and with a variety of disease states. SUMMARY: Despite the number of quality of life measurement tools, not every patient population has a validated measure, including patients with palliative care needs. There is no consensus on how to incorporate findings from patient-reported outcomes into clinical practice recommendations. Professional organizations offer guidance and resources for families to encourage focus on quality of life during the COVID-19 pandemic. Springer US 2021-03-12 2021 /pmc/articles/PMC7953198/ /pubmed/33728105 http://dx.doi.org/10.1007/s40124-021-00238-9 Text en © The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2021 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Pediatric Palliative Care (SK Hoehn, Section Editor)
Vente, Teresa
How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?
title How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?
title_full How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?
title_fullStr How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?
title_full_unstemmed How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?
title_short How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?
title_sort how do you focus on quality of life when kids cannot go to school or outside?
topic Pediatric Palliative Care (SK Hoehn, Section Editor)
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7953198/
https://www.ncbi.nlm.nih.gov/pubmed/33728105
http://dx.doi.org/10.1007/s40124-021-00238-9
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