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Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life partic...
Autores principales: | , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7961700/ https://www.ncbi.nlm.nih.gov/pubmed/33786193 http://dx.doi.org/10.1177/2054358121995276 |
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author | Kalantar-Zadeh, Kamyar Li, Philip Kam-Tao Tantisattamo, Ekamol Kumaraswami, Latha Liakopoulos, Vassilios Lui, Siu-Fai Ulasi, Ifeoma Andreoli, Sharon Balducci, Alessandro Dupuis, Sophie Harris, Tess Hradsky, Anne Knight, Richard Kumar, Sajay Ng, Maggie Poidevin, Alice Saadi, Gamal Tong, Allison |
author_facet | Kalantar-Zadeh, Kamyar Li, Philip Kam-Tao Tantisattamo, Ekamol Kumaraswami, Latha Liakopoulos, Vassilios Lui, Siu-Fai Ulasi, Ifeoma Andreoli, Sharon Balducci, Alessandro Dupuis, Sophie Harris, Tess Hradsky, Anne Knight, Richard Kumar, Sajay Ng, Maggie Poidevin, Alice Saadi, Gamal Tong, Allison |
author_sort | Kalantar-Zadeh, Kamyar |
collection | PubMed |
description | Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries. |
format | Online Article Text |
id | pubmed-7961700 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-79617002021-03-29 Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere Kalantar-Zadeh, Kamyar Li, Philip Kam-Tao Tantisattamo, Ekamol Kumaraswami, Latha Liakopoulos, Vassilios Lui, Siu-Fai Ulasi, Ifeoma Andreoli, Sharon Balducci, Alessandro Dupuis, Sophie Harris, Tess Hradsky, Anne Knight, Richard Kumar, Sajay Ng, Maggie Poidevin, Alice Saadi, Gamal Tong, Allison Can J Kidney Health Dis Editorial Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries. SAGE Publications 2021-03-10 /pmc/articles/PMC7961700/ /pubmed/33786193 http://dx.doi.org/10.1177/2054358121995276 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Editorial Kalantar-Zadeh, Kamyar Li, Philip Kam-Tao Tantisattamo, Ekamol Kumaraswami, Latha Liakopoulos, Vassilios Lui, Siu-Fai Ulasi, Ifeoma Andreoli, Sharon Balducci, Alessandro Dupuis, Sophie Harris, Tess Hradsky, Anne Knight, Richard Kumar, Sajay Ng, Maggie Poidevin, Alice Saadi, Gamal Tong, Allison Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere |
title | Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere |
title_full | Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere |
title_fullStr | Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere |
title_full_unstemmed | Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere |
title_short | Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere |
title_sort | living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere |
topic | Editorial |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7961700/ https://www.ncbi.nlm.nih.gov/pubmed/33786193 http://dx.doi.org/10.1177/2054358121995276 |
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