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Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life partic...

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Autores principales: Kalantar-Zadeh, Kamyar, Li, Philip Kam-Tao, Tantisattamo, Ekamol, Kumaraswami, Latha, Liakopoulos, Vassilios, Lui, Siu-Fai, Ulasi, Ifeoma, Andreoli, Sharon, Balducci, Alessandro, Dupuis, Sophie, Harris, Tess, Hradsky, Anne, Knight, Richard, Kumar, Sajay, Ng, Maggie, Poidevin, Alice, Saadi, Gamal, Tong, Allison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7961700/
https://www.ncbi.nlm.nih.gov/pubmed/33786193
http://dx.doi.org/10.1177/2054358121995276
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author Kalantar-Zadeh, Kamyar
Li, Philip Kam-Tao
Tantisattamo, Ekamol
Kumaraswami, Latha
Liakopoulos, Vassilios
Lui, Siu-Fai
Ulasi, Ifeoma
Andreoli, Sharon
Balducci, Alessandro
Dupuis, Sophie
Harris, Tess
Hradsky, Anne
Knight, Richard
Kumar, Sajay
Ng, Maggie
Poidevin, Alice
Saadi, Gamal
Tong, Allison
author_facet Kalantar-Zadeh, Kamyar
Li, Philip Kam-Tao
Tantisattamo, Ekamol
Kumaraswami, Latha
Liakopoulos, Vassilios
Lui, Siu-Fai
Ulasi, Ifeoma
Andreoli, Sharon
Balducci, Alessandro
Dupuis, Sophie
Harris, Tess
Hradsky, Anne
Knight, Richard
Kumar, Sajay
Ng, Maggie
Poidevin, Alice
Saadi, Gamal
Tong, Allison
author_sort Kalantar-Zadeh, Kamyar
collection PubMed
description Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.
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spelling pubmed-79617002021-03-29 Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere Kalantar-Zadeh, Kamyar Li, Philip Kam-Tao Tantisattamo, Ekamol Kumaraswami, Latha Liakopoulos, Vassilios Lui, Siu-Fai Ulasi, Ifeoma Andreoli, Sharon Balducci, Alessandro Dupuis, Sophie Harris, Tess Hradsky, Anne Knight, Richard Kumar, Sajay Ng, Maggie Poidevin, Alice Saadi, Gamal Tong, Allison Can J Kidney Health Dis Editorial Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries. SAGE Publications 2021-03-10 /pmc/articles/PMC7961700/ /pubmed/33786193 http://dx.doi.org/10.1177/2054358121995276 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Editorial
Kalantar-Zadeh, Kamyar
Li, Philip Kam-Tao
Tantisattamo, Ekamol
Kumaraswami, Latha
Liakopoulos, Vassilios
Lui, Siu-Fai
Ulasi, Ifeoma
Andreoli, Sharon
Balducci, Alessandro
Dupuis, Sophie
Harris, Tess
Hradsky, Anne
Knight, Richard
Kumar, Sajay
Ng, Maggie
Poidevin, Alice
Saadi, Gamal
Tong, Allison
Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
title Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
title_full Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
title_fullStr Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
title_full_unstemmed Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
title_short Living Well With Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
title_sort living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere
topic Editorial
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7961700/
https://www.ncbi.nlm.nih.gov/pubmed/33786193
http://dx.doi.org/10.1177/2054358121995276
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