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Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study

BACKGROUND: Mindfulness-based stress reduction is an efficacious treatment for people with chronic health problems; however, it is highly intensive and time-consuming, which is a barrier for service provision. OBJECTIVE: This study aims to develop an internet-delivered adapted version of mindfulness...

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Autores principales: Sesel, Amy-Lee, Sharpe, Louise, Beadnall, Heidi N, Barnett, Michael H, Szabo, Marianna, Naismith, Sharon L
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7967236/
https://www.ncbi.nlm.nih.gov/pubmed/33650980
http://dx.doi.org/10.2196/19309
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author Sesel, Amy-Lee
Sharpe, Louise
Beadnall, Heidi N
Barnett, Michael H
Szabo, Marianna
Naismith, Sharon L
author_facet Sesel, Amy-Lee
Sharpe, Louise
Beadnall, Heidi N
Barnett, Michael H
Szabo, Marianna
Naismith, Sharon L
author_sort Sesel, Amy-Lee
collection PubMed
description BACKGROUND: Mindfulness-based stress reduction is an efficacious treatment for people with chronic health problems; however, it is highly intensive and time-consuming, which is a barrier for service provision. OBJECTIVE: This study aims to develop an internet-delivered adapted version of mindfulness-based stress reduction for people with multiple sclerosis to make the intervention more accessible. METHODS: We co-designed a web-based mindfulness program with end users, that is, people with multiple sclerosis (N=19). Iterative feedback was also collected from a subsample of the initial group of end users (n=11), and the program was reviewed by experts (n=8). RESULTS: We identified three main themes common to people with multiple sclerosis: dealing with uncertainty and fears for the future, grief and loss, and social isolation. These themes were incorporated into narratives throughout the program. People with multiple sclerosis who reviewed the program gave feedback that the program was relatable, feasible, and acceptable. Experts agreed that the program appropriately represented the main tenets of mindfulness. Iterative feedback was used to further refine the program. CONCLUSIONS: The web-based mindfulness program that we developed was viewed positively by both experts and end users. The program reflects common concerns for people with multiple sclerosis and has the potential to meet important unmet psychological needs. A randomized controlled trial was planned to determine the efficacy of the program.
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spelling pubmed-79672362021-03-24 Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study Sesel, Amy-Lee Sharpe, Louise Beadnall, Heidi N Barnett, Michael H Szabo, Marianna Naismith, Sharon L J Med Internet Res Original Paper BACKGROUND: Mindfulness-based stress reduction is an efficacious treatment for people with chronic health problems; however, it is highly intensive and time-consuming, which is a barrier for service provision. OBJECTIVE: This study aims to develop an internet-delivered adapted version of mindfulness-based stress reduction for people with multiple sclerosis to make the intervention more accessible. METHODS: We co-designed a web-based mindfulness program with end users, that is, people with multiple sclerosis (N=19). Iterative feedback was also collected from a subsample of the initial group of end users (n=11), and the program was reviewed by experts (n=8). RESULTS: We identified three main themes common to people with multiple sclerosis: dealing with uncertainty and fears for the future, grief and loss, and social isolation. These themes were incorporated into narratives throughout the program. People with multiple sclerosis who reviewed the program gave feedback that the program was relatable, feasible, and acceptable. Experts agreed that the program appropriately represented the main tenets of mindfulness. Iterative feedback was used to further refine the program. CONCLUSIONS: The web-based mindfulness program that we developed was viewed positively by both experts and end users. The program reflects common concerns for people with multiple sclerosis and has the potential to meet important unmet psychological needs. A randomized controlled trial was planned to determine the efficacy of the program. JMIR Publications 2021-03-02 /pmc/articles/PMC7967236/ /pubmed/33650980 http://dx.doi.org/10.2196/19309 Text en ©Amy-Lee Sesel, Louise Sharpe, Heidi N Beadnall, Michael H Barnett, Marianna Szabo, Sharon L Naismith. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 02.03.2021. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Original Paper
Sesel, Amy-Lee
Sharpe, Louise
Beadnall, Heidi N
Barnett, Michael H
Szabo, Marianna
Naismith, Sharon L
Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study
title Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study
title_full Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study
title_fullStr Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study
title_full_unstemmed Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study
title_short Development of a Web-Based Mindfulness Program for People With Multiple Sclerosis: Qualitative Co-Design Study
title_sort development of a web-based mindfulness program for people with multiple sclerosis: qualitative co-design study
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7967236/
https://www.ncbi.nlm.nih.gov/pubmed/33650980
http://dx.doi.org/10.2196/19309
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