Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study

BACKGROUND: Cystic fibrosis (CF) is a rare, life-shortening, multiorgan disease, the treatment of which has seen significant increases in the life expectancy of those with CF. Many advances in CF care are thanks to the dedicated and active participation of people with CF as research participants. Un...

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Detalles Bibliográficos
Autores principales: Godfrey, Emily M, Kazmerski, Traci M, Brown, Georgia, Thayer, Erin K, Mentch, Laura, Pam, Molly, Al Achkar, Morhaf
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7974760/
https://www.ncbi.nlm.nih.gov/pubmed/33661127
http://dx.doi.org/10.2196/24302

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