Cargando…

Diseases Costs and Impact of the Caring Role on Informal Carers of Children with Neuromuscular Disease

This study aims to evaluate the costs of informal care for children with neuromuscular disease and evaluate how physical and psychological health is associated with socio-demographic variables. A cross sectional design was used with a convenience sample of 110 carers that participated in this study....

Descripción completa

Detalles Bibliográficos
Autores principales:	Rodríguez, Alicia Aurora, Martínez, Óscar, Amayra, Imanol, López-Paz, Juan Francisco, Al-Rashaida, Mohammad, Lázaro, Esther, Caballero, Patricia, Pérez, Manuel, Berrocoso, Sarah, García, Maitane, Luna, Paula María, Pérez-Núñez, Paula, Passi, Nicole
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2021
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7999397/ https://www.ncbi.nlm.nih.gov/pubmed/33803993 http://dx.doi.org/10.3390/ijerph18062991

Ejemplares similares

Effects of Teleassistance on the Quality of Life of People With Rare Neuromuscular Diseases According to Their Degree of Disability
por: Martínez, Oscar, et al.
Publicado: (2021)

Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers
por: Berrocoso, Sarah, et al.
Publicado: (2020)

Intrusion errors during verbal fluency task in amyotrophic lateral sclerosis
por: Perez, Manuel, et al.
Publicado: (2020)

Using a Virtual Serious Game (Deusto-e-motion1.0) to Assess the Theory of Mind in Primary School Children: Observational Descriptive Study
por: Lázaro, Esther, et al.
Publicado: (2020)

The Role of Associations in Reducing the Emotional and Financial Impact on Parents Caring for Children with Duchenne Muscular Dystrophy: A Cross-Cultural Study
por: Rodríguez, Alicia Aurora, et al.
Publicado: (2022)

Effectiveness of teleassistance on the improvement of health related quality of life in people with neuromuscular diseases
por: Martínez, Oscar, et al.
Publicado: (2012)

Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
por: Pérez-Núñez, P., et al.
Publicado: (2021)

Quality of Life of Latin-American People with Neuromuscular Disorders and Their Families During the COVID-19 Pandemic
por: Ortega, Javiera, et al.
Publicado: (2023)

Spanish version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer)
por: Ferrer-Cascales, Rosario, et al.
Publicado: (2016)

Cost analysis of chronic obstructive pulmonary disease (COPD): a systematic review
por: Gutiérrez Villegas, Celia, et al.
Publicado: (2021)

Cognitive Functioning in Adults with Phenylketonuria in a Cohort of Spanish Patients
por: Luna, P. M., et al.
Publicado: (2023)

Using former carers’ expertise in peer support for carers of people with Parkinson’s Disease
por: Geerlings, Angelika D., et al.
Publicado: (2022)

Clapping for carers in the Covid‐19 crisis: Carers' reflections in a UK survey
por: Manthorpe, Jill, et al.
Publicado: (2021)

Current Biomarker Strategies in Autoimmune Neuromuscular Diseases
por: Oeztuerk, Menekse, et al.
Publicado: (2023)

A systematic review comparing cardiovascular disease among informal carers and non-carers
por: Lambrias, Ameer, et al.
Publicado: (2023)

The Neuromuscular Junction: Roles in Aging and Neuromuscular Disease
por: Iyer, Shama R., et al.
Publicado: (2021)

Effect of the Wii Sports Resort on the improvement in attention, processing speed and working memory in moderate stroke
por: Unibaso-Markaida, Iratxe, et al.
Publicado: (2019)

OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease
por: Casariego, Emilio, et al.
Publicado: (2018)

Induced Dipoles and Possible Modulation of Wireless Effects in Implanted Electrodes. Effects of Implanting Insulated Electrodes on an Animal Test to Screen Antidepressant Activity
por: Perez-Caballero, Laura, et al.
Publicado: (2021)

Family carers: A role in addressing chronic disease risk behaviours for people with a mental illness?
por: Bailey, Jacqueline M., et al.
Publicado: (2017)

Respiratory Insufficiency in Neuromuscular Disease (RIND): A Delphi Study to Establish Consensus Criteria to Define and Diagnose Hypoventilation in Pediatric Neuromuscular Disease
por: Mayer, Oscar Henry, et al.
Publicado: (2023)

Pediatric neuromuscular diseases /
por: Swaiman, Kenneth F., 1931-
Publicado: (1979)

Electrodiagnosis of neuromuscular diseases /
por: Goodgold, Joseph, 1920-
Publicado: (1972)

Neuromuscular Diseases and Bone
por: Iolascon, Giovanni, et al.
Publicado: (2019)

Reversal of neuromuscular block: what are the costs?
por: Bartels, Karsten, et al.
Publicado: (2023)

Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad
por: Skingley, Ann, et al.
Publicado: (2020)

Assessing carer needs in chronic obstructive pulmonary disease
por: Farquhar, Morag
Publicado: (2017)

Digital interventions for people with dementia and carers: effective, cost-effective and equitable?
por: Knapp, Martin, et al.
Publicado: (2022)

Neuromuscular disease and extubation dysphagia
por: Smithard, David G
Publicado: (2013)

Splicing therapy for neuromuscular disease()
por: Douglas, Andrew G.L., et al.
Publicado: (2013)

Molecular Diagnosis of Neuromuscular Disease
por: Sertic, Jadranka
Publicado: (2004)

Neuromuscular diseases with hypertrophic cardiomyopathy
por: Cesar, Sergi
Publicado: (2018)

Editorial: Imaging of Neuromuscular Diseases
por: Diaz-Manera, Jordi, et al.
Publicado: (2021)

Modeling neuromuscular diseases in zebrafish
por: Singh, Jaskaran, et al.
Publicado: (2022)

Adapting the eHealth Literacy Scale for Carers of People With Chronic Diseases (eHeals-Carer) in a Sample of Greek and Cypriot Carers of People With Dementia: Reliability and Validation Study
por: Efthymiou, Areti, et al.
Publicado: (2019)

Social connectedness of carers: An Australian national survey of carers
por: Poon, Abner Weng Cheong, et al.
Publicado: (2022)

Experience in neuromuscular diseases in children and adolescents and their comorbidities in a tertiary hospital
por: Gascón-Navarro, J. A., et al.
Publicado: (2021)

HL-LHC MCBXF nested corrector magnet
por: Perez, Juan Carlos, et al.
Publicado: (2022)

Cognitive impairment in Parkinson's disease: impact on quality of life of carers
por: Lawson, RA, et al.
Publicado: (2016)

Validity and Reliability of the Korean Version of the Parkinson’s Disease Questionnaire–Carer
por: Lee, JuHee, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_ts66olch1k0fl93jjug59n92is