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Knowledge and Attitude of Patients with Adrenal Insufficiency
BACKGROUND: Adrenal insufficiency (AI) is a rare and a dangerous disease requiring a life-long glucocorticoid replacement therapy with dose adjustment in stressful situations which is linked to patient's knowledge and understanding. The aim of this study was to explore AI patients understanding...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Wolters Kluwer - Medknow
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8015952/ https://www.ncbi.nlm.nih.gov/pubmed/33243948 http://dx.doi.org/10.4103/aam.aam_63_19 |
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author | Bouziane, Toumader Belmahi, Nadia Salhi, Houda El Ouahabi, Hanan |
author_facet | Bouziane, Toumader Belmahi, Nadia Salhi, Houda El Ouahabi, Hanan |
author_sort | Bouziane, Toumader |
collection | PubMed |
description | BACKGROUND: Adrenal insufficiency (AI) is a rare and a dangerous disease requiring a life-long glucocorticoid replacement therapy with dose adjustment in stressful situations which is linked to patient's knowledge and understanding. The aim of this study was to explore AI patients understanding regarding their disease, risk factors of adrenal crisis, as well as their attitude in stressful situations. MATERIALS AND METHODS: We prospectively enrolled from October to January 2017, all patients with adrenal insufficiency (primary or secondary) treated and followed up in the Department of Endocrinology at University Hospital Center Hassan II of Fez. Patients were asked to fill out a questionnaire to assess their self-perceived subjective understanding to objectively evaluate their knowledge. RESULTS: A total of 55 AI patients participated in this study. Overall, 74% of patients had no sufficient understanding of their disease; more participants gave incorrect answers to how to act in different stressful situations. Eleven patients (20%) did not possess a “steroid warning card,” twenty-five patients (45%) had the injectable hydrocortisone (HC) set at home; 40% carried the HC required for the day with them. Globally, the patients self-perceived, subjective knowledge level was not good, a severe lack of knowledge had been identified concerning the knowledge of risk factors of AI. CONCLUSION: The present study shows the urgent need to develop a structured and continuous education of patients with adrenal insufficiency to improve their self-management of the disease. |
format | Online Article Text |
id | pubmed-8015952 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Wolters Kluwer - Medknow |
record_format | MEDLINE/PubMed |
spelling | pubmed-80159522021-04-05 Knowledge and Attitude of Patients with Adrenal Insufficiency Bouziane, Toumader Belmahi, Nadia Salhi, Houda El Ouahabi, Hanan Ann Afr Med Original Article BACKGROUND: Adrenal insufficiency (AI) is a rare and a dangerous disease requiring a life-long glucocorticoid replacement therapy with dose adjustment in stressful situations which is linked to patient's knowledge and understanding. The aim of this study was to explore AI patients understanding regarding their disease, risk factors of adrenal crisis, as well as their attitude in stressful situations. MATERIALS AND METHODS: We prospectively enrolled from October to January 2017, all patients with adrenal insufficiency (primary or secondary) treated and followed up in the Department of Endocrinology at University Hospital Center Hassan II of Fez. Patients were asked to fill out a questionnaire to assess their self-perceived subjective understanding to objectively evaluate their knowledge. RESULTS: A total of 55 AI patients participated in this study. Overall, 74% of patients had no sufficient understanding of their disease; more participants gave incorrect answers to how to act in different stressful situations. Eleven patients (20%) did not possess a “steroid warning card,” twenty-five patients (45%) had the injectable hydrocortisone (HC) set at home; 40% carried the HC required for the day with them. Globally, the patients self-perceived, subjective knowledge level was not good, a severe lack of knowledge had been identified concerning the knowledge of risk factors of AI. CONCLUSION: The present study shows the urgent need to develop a structured and continuous education of patients with adrenal insufficiency to improve their self-management of the disease. Wolters Kluwer - Medknow 2020 2020-11-25 /pmc/articles/PMC8015952/ /pubmed/33243948 http://dx.doi.org/10.4103/aam.aam_63_19 Text en Copyright: © 2020 Annals of African Medicine http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms. |
spellingShingle | Original Article Bouziane, Toumader Belmahi, Nadia Salhi, Houda El Ouahabi, Hanan Knowledge and Attitude of Patients with Adrenal Insufficiency |
title | Knowledge and Attitude of Patients with Adrenal Insufficiency |
title_full | Knowledge and Attitude of Patients with Adrenal Insufficiency |
title_fullStr | Knowledge and Attitude of Patients with Adrenal Insufficiency |
title_full_unstemmed | Knowledge and Attitude of Patients with Adrenal Insufficiency |
title_short | Knowledge and Attitude of Patients with Adrenal Insufficiency |
title_sort | knowledge and attitude of patients with adrenal insufficiency |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8015952/ https://www.ncbi.nlm.nih.gov/pubmed/33243948 http://dx.doi.org/10.4103/aam.aam_63_19 |
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