Access to patient oriented information—a baseline Endo-ERN survey among patients with rare endocrine disorders

AIM: To perform a baseline survey on condition-specific information access among patients/parents/caregivers with rare endocrine disorders (RD) in Europe. METHODS: Electronic invitation to participate in a survey (19 questions) was sent to 120 patient advocacy groups (PAGs), and further distributed...

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Detalles Bibliográficos
Autores principales: Iotova, Violeta, Schalin-Jäntti, Camilla, Bruegmann, Petra, Broesamle, Manuela, De Graaf, Johan, Bratina, Natasa, Tillmann, Vallo, Pereira, Alberto M., Hiort, Olaf
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2021
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8016814/
https://www.ncbi.nlm.nih.gov/pubmed/33599944
http://dx.doi.org/10.1007/s12020-021-02654-9

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