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A scoping review of COVID-19 experiences of people living with dementia
OBJECTIVES: Compared with the general population, people living with dementia have been unequivocally affected by the COVID-19 pandemic. However, there is a paucity of knowledge on the COVID-19 impact on people with dementia and their care partners. The objective of this scoping review was to synthe...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8023523/ https://www.ncbi.nlm.nih.gov/pubmed/33825134 http://dx.doi.org/10.17269/s41997-021-00500-z |
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author | Bacsu, Juanita-Dawne R. O’Connell, Megan E. Webster, Claire Poole, Lisa Wighton, Mary Beth Sivananthan, Saskia |
author_facet | Bacsu, Juanita-Dawne R. O’Connell, Megan E. Webster, Claire Poole, Lisa Wighton, Mary Beth Sivananthan, Saskia |
author_sort | Bacsu, Juanita-Dawne R. |
collection | PubMed |
description | OBJECTIVES: Compared with the general population, people living with dementia have been unequivocally affected by the COVID-19 pandemic. However, there is a paucity of knowledge on the COVID-19 impact on people with dementia and their care partners. The objective of this scoping review was to synthesize the existing literature on the COVID-19 experiences of people with dementia and their care partners. METHODS: Following Arksey and O’Malley’s scoping review framework, we searched five electronic databases (Scopus, PubMed, CINAHL, EMBASE, and Web of Science) and an online search engine (Google Scholar). Inclusion criteria consisted of English-language articles focusing on the COVID-19 experiences of people with dementia and their care partners. SYNTHESIS: Twenty-one articles met our inclusion criteria: six letters to the editor, seven commentaries, and eight original research studies. In the literature, five main themes were identified: (i) care partner fatigue and burnout; (ii) lack of access to services and supports; (iii) worsening neuropsychiatric symptoms and cognitive function; (iv) coping with COVID-19; and (v) the need for more evidence-informed research. Factors such as living alone, having advanced dementia, and the length of confinement were found to exacerbate the impact of COVID-19. CONCLUSION: Urgent action is needed to support people living with dementia and their care partners in the pandemic. With little access to supports and services, people with dementia and their care partners are currently at a point of crisis. Collaboration and more evidence-informed research are critical to reducing mortality and supporting people with dementia during the pandemic. |
format | Online Article Text |
id | pubmed-8023523 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Springer International Publishing |
record_format | MEDLINE/PubMed |
spelling | pubmed-80235232021-04-07 A scoping review of COVID-19 experiences of people living with dementia Bacsu, Juanita-Dawne R. O’Connell, Megan E. Webster, Claire Poole, Lisa Wighton, Mary Beth Sivananthan, Saskia Can J Public Health Special Section on COVID-19: Systematic Review OBJECTIVES: Compared with the general population, people living with dementia have been unequivocally affected by the COVID-19 pandemic. However, there is a paucity of knowledge on the COVID-19 impact on people with dementia and their care partners. The objective of this scoping review was to synthesize the existing literature on the COVID-19 experiences of people with dementia and their care partners. METHODS: Following Arksey and O’Malley’s scoping review framework, we searched five electronic databases (Scopus, PubMed, CINAHL, EMBASE, and Web of Science) and an online search engine (Google Scholar). Inclusion criteria consisted of English-language articles focusing on the COVID-19 experiences of people with dementia and their care partners. SYNTHESIS: Twenty-one articles met our inclusion criteria: six letters to the editor, seven commentaries, and eight original research studies. In the literature, five main themes were identified: (i) care partner fatigue and burnout; (ii) lack of access to services and supports; (iii) worsening neuropsychiatric symptoms and cognitive function; (iv) coping with COVID-19; and (v) the need for more evidence-informed research. Factors such as living alone, having advanced dementia, and the length of confinement were found to exacerbate the impact of COVID-19. CONCLUSION: Urgent action is needed to support people living with dementia and their care partners in the pandemic. With little access to supports and services, people with dementia and their care partners are currently at a point of crisis. Collaboration and more evidence-informed research are critical to reducing mortality and supporting people with dementia during the pandemic. Springer International Publishing 2021-04-06 /pmc/articles/PMC8023523/ /pubmed/33825134 http://dx.doi.org/10.17269/s41997-021-00500-z Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Special Section on COVID-19: Systematic Review Bacsu, Juanita-Dawne R. O’Connell, Megan E. Webster, Claire Poole, Lisa Wighton, Mary Beth Sivananthan, Saskia A scoping review of COVID-19 experiences of people living with dementia |
title | A scoping review of COVID-19 experiences of people living with dementia |
title_full | A scoping review of COVID-19 experiences of people living with dementia |
title_fullStr | A scoping review of COVID-19 experiences of people living with dementia |
title_full_unstemmed | A scoping review of COVID-19 experiences of people living with dementia |
title_short | A scoping review of COVID-19 experiences of people living with dementia |
title_sort | scoping review of covid-19 experiences of people living with dementia |
topic | Special Section on COVID-19: Systematic Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8023523/ https://www.ncbi.nlm.nih.gov/pubmed/33825134 http://dx.doi.org/10.17269/s41997-021-00500-z |
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