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A scoping review of COVID-19 experiences of people living with dementia

OBJECTIVES: Compared with the general population, people living with dementia have been unequivocally affected by the COVID-19 pandemic. However, there is a paucity of knowledge on the COVID-19 impact on people with dementia and their care partners. The objective of this scoping review was to synthe...

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Autores principales: Bacsu, Juanita-Dawne R., O’Connell, Megan E., Webster, Claire, Poole, Lisa, Wighton, Mary Beth, Sivananthan, Saskia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8023523/
https://www.ncbi.nlm.nih.gov/pubmed/33825134
http://dx.doi.org/10.17269/s41997-021-00500-z
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author Bacsu, Juanita-Dawne R.
O’Connell, Megan E.
Webster, Claire
Poole, Lisa
Wighton, Mary Beth
Sivananthan, Saskia
author_facet Bacsu, Juanita-Dawne R.
O’Connell, Megan E.
Webster, Claire
Poole, Lisa
Wighton, Mary Beth
Sivananthan, Saskia
author_sort Bacsu, Juanita-Dawne R.
collection PubMed
description OBJECTIVES: Compared with the general population, people living with dementia have been unequivocally affected by the COVID-19 pandemic. However, there is a paucity of knowledge on the COVID-19 impact on people with dementia and their care partners. The objective of this scoping review was to synthesize the existing literature on the COVID-19 experiences of people with dementia and their care partners. METHODS: Following Arksey and O’Malley’s scoping review framework, we searched five electronic databases (Scopus, PubMed, CINAHL, EMBASE, and Web of Science) and an online search engine (Google Scholar). Inclusion criteria consisted of English-language articles focusing on the COVID-19 experiences of people with dementia and their care partners. SYNTHESIS: Twenty-one articles met our inclusion criteria: six letters to the editor, seven commentaries, and eight original research studies. In the literature, five main themes were identified: (i) care partner fatigue and burnout; (ii) lack of access to services and supports; (iii) worsening neuropsychiatric symptoms and cognitive function; (iv) coping with COVID-19; and (v) the need for more evidence-informed research. Factors such as living alone, having advanced dementia, and the length of confinement were found to exacerbate the impact of COVID-19. CONCLUSION: Urgent action is needed to support people living with dementia and their care partners in the pandemic. With little access to supports and services, people with dementia and their care partners are currently at a point of crisis. Collaboration and more evidence-informed research are critical to reducing mortality and supporting people with dementia during the pandemic.
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spelling pubmed-80235232021-04-07 A scoping review of COVID-19 experiences of people living with dementia Bacsu, Juanita-Dawne R. O’Connell, Megan E. Webster, Claire Poole, Lisa Wighton, Mary Beth Sivananthan, Saskia Can J Public Health Special Section on COVID-19: Systematic Review OBJECTIVES: Compared with the general population, people living with dementia have been unequivocally affected by the COVID-19 pandemic. However, there is a paucity of knowledge on the COVID-19 impact on people with dementia and their care partners. The objective of this scoping review was to synthesize the existing literature on the COVID-19 experiences of people with dementia and their care partners. METHODS: Following Arksey and O’Malley’s scoping review framework, we searched five electronic databases (Scopus, PubMed, CINAHL, EMBASE, and Web of Science) and an online search engine (Google Scholar). Inclusion criteria consisted of English-language articles focusing on the COVID-19 experiences of people with dementia and their care partners. SYNTHESIS: Twenty-one articles met our inclusion criteria: six letters to the editor, seven commentaries, and eight original research studies. In the literature, five main themes were identified: (i) care partner fatigue and burnout; (ii) lack of access to services and supports; (iii) worsening neuropsychiatric symptoms and cognitive function; (iv) coping with COVID-19; and (v) the need for more evidence-informed research. Factors such as living alone, having advanced dementia, and the length of confinement were found to exacerbate the impact of COVID-19. CONCLUSION: Urgent action is needed to support people living with dementia and their care partners in the pandemic. With little access to supports and services, people with dementia and their care partners are currently at a point of crisis. Collaboration and more evidence-informed research are critical to reducing mortality and supporting people with dementia during the pandemic. Springer International Publishing 2021-04-06 /pmc/articles/PMC8023523/ /pubmed/33825134 http://dx.doi.org/10.17269/s41997-021-00500-z Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Special Section on COVID-19: Systematic Review
Bacsu, Juanita-Dawne R.
O’Connell, Megan E.
Webster, Claire
Poole, Lisa
Wighton, Mary Beth
Sivananthan, Saskia
A scoping review of COVID-19 experiences of people living with dementia
title A scoping review of COVID-19 experiences of people living with dementia
title_full A scoping review of COVID-19 experiences of people living with dementia
title_fullStr A scoping review of COVID-19 experiences of people living with dementia
title_full_unstemmed A scoping review of COVID-19 experiences of people living with dementia
title_short A scoping review of COVID-19 experiences of people living with dementia
title_sort scoping review of covid-19 experiences of people living with dementia
topic Special Section on COVID-19: Systematic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8023523/
https://www.ncbi.nlm.nih.gov/pubmed/33825134
http://dx.doi.org/10.17269/s41997-021-00500-z
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