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Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia
BACKGROUND: Suicide research aims to contribute to a better understanding of suicidal behaviour and its prevention. However, there are many ethical challenges in this research field, for example, regarding consent and potential risks to participants. While studies to-date have focused on the perspec...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8028799/ https://www.ncbi.nlm.nih.gov/pubmed/33827554 http://dx.doi.org/10.1186/s12910-021-00609-3 |
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author | Barnard, Emma Dempster, Georgia Krysinska, Karolina Reifels, Lennart Robinson, Jo Pirkis, Jane Andriessen, Karl |
author_facet | Barnard, Emma Dempster, Georgia Krysinska, Karolina Reifels, Lennart Robinson, Jo Pirkis, Jane Andriessen, Karl |
author_sort | Barnard, Emma |
collection | PubMed |
description | BACKGROUND: Suicide research aims to contribute to a better understanding of suicidal behaviour and its prevention. However, there are many ethical challenges in this research field, for example, regarding consent and potential risks to participants. While studies to-date have focused on the perspective of the researchers, this study aimed to investigate the views and experiences of members of Human Research Ethics Committees (HRECs) in dealing with suicide-related study applications. METHODS: This qualitative study entailed a thematic analysis using an inductive approach. We conducted semi-structured interviews with a purposive sample (N = 15) of HREC Chairs or their delegates from Australian research-intensive universities. The interview guide included questions regarding the ethical concerns and challenges in suicide-related research raised by HREC members, how they dealt with those challenges and what advice they could give to researchers. RESULTS: The analysis identified four main themes: (1) HREC members’ experiences of reviewing suicide-related study applications, (2) HREC members’ perceptions of suicide, suicide research, and study participants, (3) Complexity in HREC members’ decision-making processes, and (4) HREC members’ relationships with researchers. CONCLUSIONS: Reliance on ethical guidelines and dialogue with researchers are crucial in the assessment of suicide-related study applications. Both researchers and HREC members may benefit from guidance and resources on how to conduct ethically sound suicide-related studies. Developing working relationships will be likely to help HRECs to facilitate high quality, ethical suicide-related research and researchers to conduct such research. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12910-021-00609-3. |
format | Online Article Text |
id | pubmed-8028799 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-80287992021-04-09 Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia Barnard, Emma Dempster, Georgia Krysinska, Karolina Reifels, Lennart Robinson, Jo Pirkis, Jane Andriessen, Karl BMC Med Ethics Research Article BACKGROUND: Suicide research aims to contribute to a better understanding of suicidal behaviour and its prevention. However, there are many ethical challenges in this research field, for example, regarding consent and potential risks to participants. While studies to-date have focused on the perspective of the researchers, this study aimed to investigate the views and experiences of members of Human Research Ethics Committees (HRECs) in dealing with suicide-related study applications. METHODS: This qualitative study entailed a thematic analysis using an inductive approach. We conducted semi-structured interviews with a purposive sample (N = 15) of HREC Chairs or their delegates from Australian research-intensive universities. The interview guide included questions regarding the ethical concerns and challenges in suicide-related research raised by HREC members, how they dealt with those challenges and what advice they could give to researchers. RESULTS: The analysis identified four main themes: (1) HREC members’ experiences of reviewing suicide-related study applications, (2) HREC members’ perceptions of suicide, suicide research, and study participants, (3) Complexity in HREC members’ decision-making processes, and (4) HREC members’ relationships with researchers. CONCLUSIONS: Reliance on ethical guidelines and dialogue with researchers are crucial in the assessment of suicide-related study applications. Both researchers and HREC members may benefit from guidance and resources on how to conduct ethically sound suicide-related studies. Developing working relationships will be likely to help HRECs to facilitate high quality, ethical suicide-related research and researchers to conduct such research. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12910-021-00609-3. BioMed Central 2021-04-07 /pmc/articles/PMC8028799/ /pubmed/33827554 http://dx.doi.org/10.1186/s12910-021-00609-3 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Article Barnard, Emma Dempster, Georgia Krysinska, Karolina Reifels, Lennart Robinson, Jo Pirkis, Jane Andriessen, Karl Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia |
title | Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia |
title_full | Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia |
title_fullStr | Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia |
title_full_unstemmed | Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia |
title_short | Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia |
title_sort | ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in australia |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8028799/ https://www.ncbi.nlm.nih.gov/pubmed/33827554 http://dx.doi.org/10.1186/s12910-021-00609-3 |
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