Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC)

Sickle cell disease (SCD) is a genetic disorder predominantly affecting people of African descent and is associated with significant morbidity and mortality. To improve SCD outcomes, the National Heart Lung and Blood Institute funded eight centers to participate in the SCD Implementation Consortium....

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Detalles Bibliográficos
Autores principales: Masese, Rita V., DeMartino, Terri, Bonnabeau, Emily, Burns, Ebony N., Preiss, Liliana, Varughese, Taniya, Nocek, Judith M., Lasley, Patricia, Chen, Yumei, Davila, Caroline, Nwosu, Chinonyelum, Scott, Samantha, Bowman, Latanya, Gordon, Lauren, Clesca, Cindy, Peters-Lawrence, Marlene, Melvin, Cathy, Shah, Nirmish, Tanabe, Paula
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2020
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8032811/
https://www.ncbi.nlm.nih.gov/pubmed/33034793
http://dx.doi.org/10.1007/s10903-020-01102-6

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