Cargando…

“Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers

BACKGROUND: During a disaster, home-based care fills the critical need for continuation of health care. Home-based care is intended to function using existing care delivery models, continuing to provide care for patients wherever they are located, including in shelters and hotels. Home-based care pr...

Descripción completa

Detalles Bibliográficos
Autores principales: Bell, Sue Anne, Krienke, Lydia K., Dickey, Sarah, De Vries, Raymond G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8033697/
https://www.ncbi.nlm.nih.gov/pubmed/33832424
http://dx.doi.org/10.1186/s12877-021-02159-0
_version_ 1783676448665501696
author Bell, Sue Anne
Krienke, Lydia K.
Dickey, Sarah
De Vries, Raymond G.
author_facet Bell, Sue Anne
Krienke, Lydia K.
Dickey, Sarah
De Vries, Raymond G.
author_sort Bell, Sue Anne
collection PubMed
description BACKGROUND: During a disaster, home-based care fills the critical need for continuation of health care. Home-based care is intended to function using existing care delivery models, continuing to provide care for patients wherever they are located, including in shelters and hotels. Home-based care providers are often the closest in contact with their patients —seeing them in place, even throughout a disaster— through which they develop a unique insight into aging in place during a disaster. The purpose of this study was to identify individual and community-level support needs of older adults after a disaster through the lens of home-based care providers. METHODS: Using qualitative inquiry, five focus groups were conducted with home-based care providers (n = 25) who provided in-home care during Hurricane Irma and Hurricane Harvey. Participants were identified by contacting home health agencies listed in an open-source database of agencies participating in Centers for Medicare and Medicaid Services programs. Data were coded using an abductive analytic approach, and larger themes were generated in light of existing theory. RESULTS: The results were distilled into eight themes that related to the importance of community and family, informal and formal supports throughout the disaster management cycle, maintaining autonomy during a disaster, and institutional and systemic barriers to obtaining assistance. CONCLUSIONS: In this study, home-based care providers described the challenges aging adults face in the response and recovery period after a large-scale disaster including maintaining continuity of care, encouraging individual preparedness, and accessing complex governmental support. Listening to home-based care providers offers new and important insights for developing interventions to address social and health needs for older adults aging in place after a large-scale disaster. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02159-0.
format Online
Article
Text
id pubmed-8033697
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-80336972021-04-09 “Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers Bell, Sue Anne Krienke, Lydia K. Dickey, Sarah De Vries, Raymond G. BMC Geriatr Research Article BACKGROUND: During a disaster, home-based care fills the critical need for continuation of health care. Home-based care is intended to function using existing care delivery models, continuing to provide care for patients wherever they are located, including in shelters and hotels. Home-based care providers are often the closest in contact with their patients —seeing them in place, even throughout a disaster— through which they develop a unique insight into aging in place during a disaster. The purpose of this study was to identify individual and community-level support needs of older adults after a disaster through the lens of home-based care providers. METHODS: Using qualitative inquiry, five focus groups were conducted with home-based care providers (n = 25) who provided in-home care during Hurricane Irma and Hurricane Harvey. Participants were identified by contacting home health agencies listed in an open-source database of agencies participating in Centers for Medicare and Medicaid Services programs. Data were coded using an abductive analytic approach, and larger themes were generated in light of existing theory. RESULTS: The results were distilled into eight themes that related to the importance of community and family, informal and formal supports throughout the disaster management cycle, maintaining autonomy during a disaster, and institutional and systemic barriers to obtaining assistance. CONCLUSIONS: In this study, home-based care providers described the challenges aging adults face in the response and recovery period after a large-scale disaster including maintaining continuity of care, encouraging individual preparedness, and accessing complex governmental support. Listening to home-based care providers offers new and important insights for developing interventions to address social and health needs for older adults aging in place after a large-scale disaster. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02159-0. BioMed Central 2021-04-08 /pmc/articles/PMC8033697/ /pubmed/33832424 http://dx.doi.org/10.1186/s12877-021-02159-0 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Bell, Sue Anne
Krienke, Lydia K.
Dickey, Sarah
De Vries, Raymond G.
“Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers
title “Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers
title_full “Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers
title_fullStr “Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers
title_full_unstemmed “Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers
title_short “Helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers
title_sort “helping fill that gap:” a qualitative study of aging in place after disaster through the lens of home-based care providers
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8033697/
https://www.ncbi.nlm.nih.gov/pubmed/33832424
http://dx.doi.org/10.1186/s12877-021-02159-0
work_keys_str_mv AT bellsueanne helpingfillthatgapaqualitativestudyofaginginplaceafterdisasterthroughthelensofhomebasedcareproviders
AT krienkelydiak helpingfillthatgapaqualitativestudyofaginginplaceafterdisasterthroughthelensofhomebasedcareproviders
AT dickeysarah helpingfillthatgapaqualitativestudyofaginginplaceafterdisasterthroughthelensofhomebasedcareproviders
AT devriesraymondg helpingfillthatgapaqualitativestudyofaginginplaceafterdisasterthroughthelensofhomebasedcareproviders