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Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study

BACKGROUND: Rapid implementation of Medical Assistance in Dying (MAiD) across care settings has challenged providers and organizations, including hospices, to develop and implement new modes of practice. The aim of this study was to examine the effects that legalization of MAiD has had on hospice ca...

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Autores principales: Freeman, Shannon, Banner, Davina, Ward, Valerie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8042896/
https://www.ncbi.nlm.nih.gov/pubmed/33845825
http://dx.doi.org/10.1186/s12904-021-00740-3
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author Freeman, Shannon
Banner, Davina
Ward, Valerie
author_facet Freeman, Shannon
Banner, Davina
Ward, Valerie
author_sort Freeman, Shannon
collection PubMed
description BACKGROUND: Rapid implementation of Medical Assistance in Dying (MAiD) across care settings has challenged providers and organizations, including hospices, to develop and implement new modes of practice. The aim of this study was to examine the effects that legalization of MAiD has had on hospice care provider roles within the non-provider context. METHODS: Eight in-depth semi-structured interviews were conducted and a qualitative descriptive approach used to examine hospice care providers experiences in a small western Canadian city. In the study context, patients who choose MAiD are cared for until immediately prior to the procedure when they are transferred off-site to undergo MAiD. Inductive and thematic analyses were undertaken. RESULTS: Participants experienced practical, philosophical, and professional challenges. Despite the overwhelming desire to support patient autonomy and decision-making, some interpreted patient choice for MAiD as rejection of the natural death experience at the hospice. Patient choice for MAiD initiated a new and different pathway of end-of-life care. While participants felt uncertain how best to support patients undergoing MAiD, they shared mixed optimism on how their care provider roles were evolving as their level of experience broadened. While implementation of MAiD was rapid, the introduction of practical and professional supports has remained slow to materialize, leaving many providers to navigate their own personal and professional positions and practices. CONCLUSION: Care providers require a multi-faceted range of clinical, legal, and logistical supports at the practice, organizational, and health system levels, to facilitate care delivery to those requesting and undergoing MAiD and to promote coordinated and holistic patient-centered care. The different pathway for those who chose MAiD may lead care providers to struggle with relational challenges and interpersonal unease. Further research may address how to support those undergoing MAiD within the hospice context.
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spelling pubmed-80428962021-04-14 Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study Freeman, Shannon Banner, Davina Ward, Valerie BMC Palliat Care Research Article BACKGROUND: Rapid implementation of Medical Assistance in Dying (MAiD) across care settings has challenged providers and organizations, including hospices, to develop and implement new modes of practice. The aim of this study was to examine the effects that legalization of MAiD has had on hospice care provider roles within the non-provider context. METHODS: Eight in-depth semi-structured interviews were conducted and a qualitative descriptive approach used to examine hospice care providers experiences in a small western Canadian city. In the study context, patients who choose MAiD are cared for until immediately prior to the procedure when they are transferred off-site to undergo MAiD. Inductive and thematic analyses were undertaken. RESULTS: Participants experienced practical, philosophical, and professional challenges. Despite the overwhelming desire to support patient autonomy and decision-making, some interpreted patient choice for MAiD as rejection of the natural death experience at the hospice. Patient choice for MAiD initiated a new and different pathway of end-of-life care. While participants felt uncertain how best to support patients undergoing MAiD, they shared mixed optimism on how their care provider roles were evolving as their level of experience broadened. While implementation of MAiD was rapid, the introduction of practical and professional supports has remained slow to materialize, leaving many providers to navigate their own personal and professional positions and practices. CONCLUSION: Care providers require a multi-faceted range of clinical, legal, and logistical supports at the practice, organizational, and health system levels, to facilitate care delivery to those requesting and undergoing MAiD and to promote coordinated and holistic patient-centered care. The different pathway for those who chose MAiD may lead care providers to struggle with relational challenges and interpersonal unease. Further research may address how to support those undergoing MAiD within the hospice context. BioMed Central 2021-04-12 /pmc/articles/PMC8042896/ /pubmed/33845825 http://dx.doi.org/10.1186/s12904-021-00740-3 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Freeman, Shannon
Banner, Davina
Ward, Valerie
Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
title Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
title_full Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
title_fullStr Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
title_full_unstemmed Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
title_short Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
title_sort hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8042896/
https://www.ncbi.nlm.nih.gov/pubmed/33845825
http://dx.doi.org/10.1186/s12904-021-00740-3
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