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Rare disease awareness and perspectives of physicians in China: a questionnaire-based study

BACKGROUND: It is estimated that there are over 16.8 million rare disease patients in China, representing a significant challenge for the healthcare system and society. Rare disease patients often experience delayed diagnosis, misdiagnosis, or improper treatment, which may be due to the lack of rare...

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Detalles Bibliográficos
Autores principales: Li, Xuefeng, Zhang, Xiangyu, Zhang, Shu, Lu, Zijuan, Zhang, Jianyong, Zhou, Jincheng, Li, Bingzhe, Ou, Li
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8042908/
https://www.ncbi.nlm.nih.gov/pubmed/33849615
http://dx.doi.org/10.1186/s13023-021-01788-3