Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility

Children with rare and common diseases now undergo whole genome sequencing (WGS) in clinical and research contexts. Parents sometimes request access to their child's raw genomic data, to pursue their own analyses or for onward sharing with health professionals and researchers. These requests ra...

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Detalles Bibliográficos
Autores principales: Beauvais, Michael J. S., Thorogood, Adrian M., Szego, Michael J., Sénécal, Karine, Zawati, Ma'n H., Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Genetics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8044527/
https://www.ncbi.nlm.nih.gov/pubmed/33868358
http://dx.doi.org/10.3389/fgene.2021.535340

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8044527/
https://www.ncbi.nlm.nih.gov/pubmed/33868358
http://dx.doi.org/10.3389/fgene.2021.535340

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