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Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility
Children with rare and common diseases now undergo whole genome sequencing (WGS) in clinical and research contexts. Parents sometimes request access to their child's raw genomic data, to pursue their own analyses or for onward sharing with health professionals and researchers. These requests ra...
| Autores principales: | , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Frontiers Media S.A.
2021
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8044527/ https://www.ncbi.nlm.nih.gov/pubmed/33868358 http://dx.doi.org/10.3389/fgene.2021.535340 |