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Content analysis of identity challenges in patients with haemophilia: A qualitative study

AIMS: Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia. DESIGN: The present study has been designed and performed as a qualitative content analysis resear...

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Autores principales: Dolatkhah, Roya, Shabanloei, Reza, Ebrahimi, Hossein, Ghasempour, Mostafa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8046095/
https://www.ncbi.nlm.nih.gov/pubmed/33405396
http://dx.doi.org/10.1002/nop2.761
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author Dolatkhah, Roya
Shabanloei, Reza
Ebrahimi, Hossein
Ghasempour, Mostafa
author_facet Dolatkhah, Roya
Shabanloei, Reza
Ebrahimi, Hossein
Ghasempour, Mostafa
author_sort Dolatkhah, Roya
collection PubMed
description AIMS: Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia. DESIGN: The present study has been designed and performed as a qualitative content analysis research. METHODS: Participants were purposively selected from haemophilia patients referred to our clinic during one year, from March 2018 to April 2019. Data collection was done through semi‐structured, in‐depth interviews using purposeful sampling. Data were analysed based on Granheme and Landman method. The main categories were fear of rejection, losing social roles, discrimination and stigma and marriage breakdown. RESULTS: Patients with haemophilia encounter several challenges due to physical and social constraints caused by the disease. Such challenges result in disturbances in the self‐identity of the patients. CONCLUSION: According to the results of this study, the nurses should plan to have attention to the patients with haemophilia, based on more protection and better supports.
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spelling pubmed-80460952021-04-16 Content analysis of identity challenges in patients with haemophilia: A qualitative study Dolatkhah, Roya Shabanloei, Reza Ebrahimi, Hossein Ghasempour, Mostafa Nurs Open Research Articles AIMS: Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia. DESIGN: The present study has been designed and performed as a qualitative content analysis research. METHODS: Participants were purposively selected from haemophilia patients referred to our clinic during one year, from March 2018 to April 2019. Data collection was done through semi‐structured, in‐depth interviews using purposeful sampling. Data were analysed based on Granheme and Landman method. The main categories were fear of rejection, losing social roles, discrimination and stigma and marriage breakdown. RESULTS: Patients with haemophilia encounter several challenges due to physical and social constraints caused by the disease. Such challenges result in disturbances in the self‐identity of the patients. CONCLUSION: According to the results of this study, the nurses should plan to have attention to the patients with haemophilia, based on more protection and better supports. John Wiley and Sons Inc. 2021-01-06 /pmc/articles/PMC8046095/ /pubmed/33405396 http://dx.doi.org/10.1002/nop2.761 Text en © 2021 The Authors. Nursing Open published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Articles
Dolatkhah, Roya
Shabanloei, Reza
Ebrahimi, Hossein
Ghasempour, Mostafa
Content analysis of identity challenges in patients with haemophilia: A qualitative study
title Content analysis of identity challenges in patients with haemophilia: A qualitative study
title_full Content analysis of identity challenges in patients with haemophilia: A qualitative study
title_fullStr Content analysis of identity challenges in patients with haemophilia: A qualitative study
title_full_unstemmed Content analysis of identity challenges in patients with haemophilia: A qualitative study
title_short Content analysis of identity challenges in patients with haemophilia: A qualitative study
title_sort content analysis of identity challenges in patients with haemophilia: a qualitative study
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8046095/
https://www.ncbi.nlm.nih.gov/pubmed/33405396
http://dx.doi.org/10.1002/nop2.761
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