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Content analysis of identity challenges in patients with haemophilia: A qualitative study
AIMS: Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia. DESIGN: The present study has been designed and performed as a qualitative content analysis resear...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8046095/ https://www.ncbi.nlm.nih.gov/pubmed/33405396 http://dx.doi.org/10.1002/nop2.761 |
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author | Dolatkhah, Roya Shabanloei, Reza Ebrahimi, Hossein Ghasempour, Mostafa |
author_facet | Dolatkhah, Roya Shabanloei, Reza Ebrahimi, Hossein Ghasempour, Mostafa |
author_sort | Dolatkhah, Roya |
collection | PubMed |
description | AIMS: Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia. DESIGN: The present study has been designed and performed as a qualitative content analysis research. METHODS: Participants were purposively selected from haemophilia patients referred to our clinic during one year, from March 2018 to April 2019. Data collection was done through semi‐structured, in‐depth interviews using purposeful sampling. Data were analysed based on Granheme and Landman method. The main categories were fear of rejection, losing social roles, discrimination and stigma and marriage breakdown. RESULTS: Patients with haemophilia encounter several challenges due to physical and social constraints caused by the disease. Such challenges result in disturbances in the self‐identity of the patients. CONCLUSION: According to the results of this study, the nurses should plan to have attention to the patients with haemophilia, based on more protection and better supports. |
format | Online Article Text |
id | pubmed-8046095 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-80460952021-04-16 Content analysis of identity challenges in patients with haemophilia: A qualitative study Dolatkhah, Roya Shabanloei, Reza Ebrahimi, Hossein Ghasempour, Mostafa Nurs Open Research Articles AIMS: Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia. DESIGN: The present study has been designed and performed as a qualitative content analysis research. METHODS: Participants were purposively selected from haemophilia patients referred to our clinic during one year, from March 2018 to April 2019. Data collection was done through semi‐structured, in‐depth interviews using purposeful sampling. Data were analysed based on Granheme and Landman method. The main categories were fear of rejection, losing social roles, discrimination and stigma and marriage breakdown. RESULTS: Patients with haemophilia encounter several challenges due to physical and social constraints caused by the disease. Such challenges result in disturbances in the self‐identity of the patients. CONCLUSION: According to the results of this study, the nurses should plan to have attention to the patients with haemophilia, based on more protection and better supports. John Wiley and Sons Inc. 2021-01-06 /pmc/articles/PMC8046095/ /pubmed/33405396 http://dx.doi.org/10.1002/nop2.761 Text en © 2021 The Authors. Nursing Open published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Articles Dolatkhah, Roya Shabanloei, Reza Ebrahimi, Hossein Ghasempour, Mostafa Content analysis of identity challenges in patients with haemophilia: A qualitative study |
title | Content analysis of identity challenges in patients with haemophilia: A qualitative study |
title_full | Content analysis of identity challenges in patients with haemophilia: A qualitative study |
title_fullStr | Content analysis of identity challenges in patients with haemophilia: A qualitative study |
title_full_unstemmed | Content analysis of identity challenges in patients with haemophilia: A qualitative study |
title_short | Content analysis of identity challenges in patients with haemophilia: A qualitative study |
title_sort | content analysis of identity challenges in patients with haemophilia: a qualitative study |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8046095/ https://www.ncbi.nlm.nih.gov/pubmed/33405396 http://dx.doi.org/10.1002/nop2.761 |
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