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Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper
INTRODUCTION: Health Data Research UK designated seven UK-based Hubs to facilitate health data use for research. PIONEER is the Hub in Acute Care. PIONEER delivered workshops where patients/public citizens agreed key principles to guide access to unconsented, anonymised, routinely collected health d...
Autores principales: | Gallier, Suzy, Price, Gary, Pandya, Hina, McCarmack, Gillian, James, Chris, Ruane, Bob, Forty, Laura, Crosby, Benjamin L, Atkin, Catherine, Evans, Ralph, Dunn, Kevin W, Marston, Eliot, Crawford, Clark, Levermore, Martin, Modhwadia, Shekha, Attwood, John, Perks, Stephen, Doal, Rima, Gkoutos, Georgios, Dormer, Richard, Rosser, Andy, Fanning, Hilary, Sapey, Elizabeth |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8051388/ https://www.ncbi.nlm.nih.gov/pubmed/33849921 http://dx.doi.org/10.1136/bmjhci-2020-100294 |
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