Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study

BACKGROUND: This study used quantitative and qualitative research methods to analyze how acute hepatic porphyria (AHP) affects patients with varying annualized porphyria attack rates. The overall impact of AHP on patients and caregivers, including their quality of life, was explored. The nature and...

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Detalles Bibliográficos
Autores principales: Gill, Liz, Burrell, Sue, Chamberlayne, John, Lombardelli, Stephen, Mora, Jordanna, Mason, Nicola, Schurer, Marieke, Merkel, Madeline, Meninger, Stephen, Ko, John J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8074407/
https://www.ncbi.nlm.nih.gov/pubmed/33902669
http://dx.doi.org/10.1186/s13023-021-01816-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8074407/
https://www.ncbi.nlm.nih.gov/pubmed/33902669
http://dx.doi.org/10.1186/s13023-021-01816-2

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