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Mind Your Data: Privacy and Legal Matters in eHealth
The health care sector can benefit considerably from developments in digital technology. Consequently, eHealth applications are rapidly increasing in number and sophistication. For successful development and implementation of eHealth, it is paramount to guarantee the privacy and safety of patients a...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8075039/ https://www.ncbi.nlm.nih.gov/pubmed/33729163 http://dx.doi.org/10.2196/17456 |
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author | Zegers, Catharina M L Witteveen, Annemieke Schulte, Mieke H J Henrich, Julia F Vermeij, Anouk Klever, Brigit Dekker, Andre |
author_facet | Zegers, Catharina M L Witteveen, Annemieke Schulte, Mieke H J Henrich, Julia F Vermeij, Anouk Klever, Brigit Dekker, Andre |
author_sort | Zegers, Catharina M L |
collection | PubMed |
description | The health care sector can benefit considerably from developments in digital technology. Consequently, eHealth applications are rapidly increasing in number and sophistication. For successful development and implementation of eHealth, it is paramount to guarantee the privacy and safety of patients and their collected data. At the same time, anonymized data that are collected through eHealth could be used in the development of innovative and personalized diagnostic, prognostic, and treatment tools. To address the needs of researchers, health care providers, and eHealth developers for more information and practical tools to handle privacy and legal matters in eHealth, the Dutch national Digital Society Research Programme organized the “Mind Your Data: Privacy and Legal Matters in eHealth” conference. In this paper, we share the key take home messages from the conference based on the following five tradeoffs: (1) privacy versus independence, (2) informed consent versus convenience, (3) clinical research versus clinical routine data, (4) responsibility and standardization, and (5) privacy versus solidarity. |
format | Online Article Text |
id | pubmed-8075039 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-80750392021-05-06 Mind Your Data: Privacy and Legal Matters in eHealth Zegers, Catharina M L Witteveen, Annemieke Schulte, Mieke H J Henrich, Julia F Vermeij, Anouk Klever, Brigit Dekker, Andre JMIR Form Res Viewpoint The health care sector can benefit considerably from developments in digital technology. Consequently, eHealth applications are rapidly increasing in number and sophistication. For successful development and implementation of eHealth, it is paramount to guarantee the privacy and safety of patients and their collected data. At the same time, anonymized data that are collected through eHealth could be used in the development of innovative and personalized diagnostic, prognostic, and treatment tools. To address the needs of researchers, health care providers, and eHealth developers for more information and practical tools to handle privacy and legal matters in eHealth, the Dutch national Digital Society Research Programme organized the “Mind Your Data: Privacy and Legal Matters in eHealth” conference. In this paper, we share the key take home messages from the conference based on the following five tradeoffs: (1) privacy versus independence, (2) informed consent versus convenience, (3) clinical research versus clinical routine data, (4) responsibility and standardization, and (5) privacy versus solidarity. JMIR Publications 2021-03-17 /pmc/articles/PMC8075039/ /pubmed/33729163 http://dx.doi.org/10.2196/17456 Text en ©Catharina M L Zegers, Annemieke Witteveen, Mieke H J Schulte, Julia F Henrich, Anouk Vermeij, Brigit Klever, Andre Dekker. Originally published in JMIR Formative Research (http://formative.jmir.org), 17.03.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org, as well as this copyright and license information must be included. |
spellingShingle | Viewpoint Zegers, Catharina M L Witteveen, Annemieke Schulte, Mieke H J Henrich, Julia F Vermeij, Anouk Klever, Brigit Dekker, Andre Mind Your Data: Privacy and Legal Matters in eHealth |
title | Mind Your Data: Privacy and Legal Matters in eHealth |
title_full | Mind Your Data: Privacy and Legal Matters in eHealth |
title_fullStr | Mind Your Data: Privacy and Legal Matters in eHealth |
title_full_unstemmed | Mind Your Data: Privacy and Legal Matters in eHealth |
title_short | Mind Your Data: Privacy and Legal Matters in eHealth |
title_sort | mind your data: privacy and legal matters in ehealth |
topic | Viewpoint |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8075039/ https://www.ncbi.nlm.nih.gov/pubmed/33729163 http://dx.doi.org/10.2196/17456 |
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