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Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice

The growth of autistic self-advocacy and the neurodiversity movement has brought about new ethical, theoretical and ideological debates within autism theory, research and practice. These debates have had genuine impact within some areas of autism research but their influence is less evident within e...

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Autores principales: Leadbitter, Kathy, Buckle, Karen Leneh, Ellis, Ceri, Dekker, Martijn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8075160/
https://www.ncbi.nlm.nih.gov/pubmed/33912110
http://dx.doi.org/10.3389/fpsyg.2021.635690
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author Leadbitter, Kathy
Buckle, Karen Leneh
Ellis, Ceri
Dekker, Martijn
author_facet Leadbitter, Kathy
Buckle, Karen Leneh
Ellis, Ceri
Dekker, Martijn
author_sort Leadbitter, Kathy
collection PubMed
description The growth of autistic self-advocacy and the neurodiversity movement has brought about new ethical, theoretical and ideological debates within autism theory, research and practice. These debates have had genuine impact within some areas of autism research but their influence is less evident within early intervention research. In this paper, we argue that all autism intervention stakeholders need to understand and actively engage with the views of autistic people and with neurodiversity as a concept and movement. In so doing, intervention researchers and practitioners are required to move away from a normative agenda and pay diligence to environmental goodness-of-fit, autistic developmental trajectories, internal drivers and experiences, and autistic prioritized intervention targets. Autism intervention researchers must respond to these debates by reframing effectiveness, developing tools to measure autistic prioritized outcomes, and forming partnerships with autistic people. There is a pressing need for increased reflection and articulation around how intervention practices align with a neurodiversity framework and greater emphasis within intervention programmes on natural developmental processes, coping strategies, autonomy, and well-being.
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spelling pubmed-80751602021-04-27 Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice Leadbitter, Kathy Buckle, Karen Leneh Ellis, Ceri Dekker, Martijn Front Psychol Psychology The growth of autistic self-advocacy and the neurodiversity movement has brought about new ethical, theoretical and ideological debates within autism theory, research and practice. These debates have had genuine impact within some areas of autism research but their influence is less evident within early intervention research. In this paper, we argue that all autism intervention stakeholders need to understand and actively engage with the views of autistic people and with neurodiversity as a concept and movement. In so doing, intervention researchers and practitioners are required to move away from a normative agenda and pay diligence to environmental goodness-of-fit, autistic developmental trajectories, internal drivers and experiences, and autistic prioritized intervention targets. Autism intervention researchers must respond to these debates by reframing effectiveness, developing tools to measure autistic prioritized outcomes, and forming partnerships with autistic people. There is a pressing need for increased reflection and articulation around how intervention practices align with a neurodiversity framework and greater emphasis within intervention programmes on natural developmental processes, coping strategies, autonomy, and well-being. Frontiers Media S.A. 2021-04-12 /pmc/articles/PMC8075160/ /pubmed/33912110 http://dx.doi.org/10.3389/fpsyg.2021.635690 Text en Copyright © 2021 Leadbitter, Buckle, Ellis and Dekker. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Psychology
Leadbitter, Kathy
Buckle, Karen Leneh
Ellis, Ceri
Dekker, Martijn
Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice
title Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice
title_full Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice
title_fullStr Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice
title_full_unstemmed Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice
title_short Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice
title_sort autistic self-advocacy and the neurodiversity movement: implications for autism early intervention research and practice
topic Psychology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8075160/
https://www.ncbi.nlm.nih.gov/pubmed/33912110
http://dx.doi.org/10.3389/fpsyg.2021.635690
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