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Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions

Patient-Powered Research Networks (PPRNs) are US-based registry infrastructures co-created by advocacy groups, patient research partners, academic investigators, and other healthcare stakeholders. Patient-Powered Research Networks collect information directly from patients to conduct and disseminate...

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Detalles Bibliográficos
Autores principales:	Nowell, W. Benjamin, Merkel, Peter A., McBurney, Robert N., Young, Kalen, Venkatachalam, Shilpa, Shaw, Dianne G., Dobes, Angela, Cerciello, Emily, Kolaczkowski, Laura, Curtis, Jeffrey R., Kappelman, Michael D.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer International Publishing 2021
Materias:	Practical Application
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8075709/ https://www.ncbi.nlm.nih.gov/pubmed/33904145 http://dx.doi.org/10.1007/s40271-021-00515-1

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