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A scoping Review of tools used to assess patient Complexity in rheumatic disease
OBJECTIVE: Patients with rheumatic diseases often have multiple comorbidities which may impact well‐being leading to high psychosocial complexity. This scoping review was undertaken to identify complexity measures/tools used in rheumatology that could help in planning and coordinating care. METHODS:...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8077158/ https://www.ncbi.nlm.nih.gov/pubmed/33595914 http://dx.doi.org/10.1111/hex.13200 |
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author | Hawker, Kara Barnabe, Cheryl Barber, Claire E.H. |
author_facet | Hawker, Kara Barnabe, Cheryl Barber, Claire E.H. |
author_sort | Hawker, Kara |
collection | PubMed |
description | OBJECTIVE: Patients with rheumatic diseases often have multiple comorbidities which may impact well‐being leading to high psychosocial complexity. This scoping review was undertaken to identify complexity measures/tools used in rheumatology that could help in planning and coordinating care. METHODS: MEDLINE, EMBASE and CINAHL were searched from database inception to 14 December 2019 using keywords and Medical Subject Headings for “care coordination”, “complexity” and selected rheumatic diseases and known complexity measures/tools. Articles describing the development or use of complexity measures/tools in patients with adult rheumatologic diagnoses were included regardless of study design. Included articles were evaluated for risk of bias where applicable. RESULTS: The search yielded 407 articles, 37 underwent full‐text review and 2 were identified during a hand search with 9 included articles. Only 2 complexity tools used in populations of adult patients with rheumatic disease were identified: the SLENQ and the INTERMED. The SLENQ is a 97‐item patient needs questionnaire developed for patients with systemic lupus (n = 1 study describing tool development) and applied in 5 cross‐sectional studies. Three studies (a practice article, trial and a cross‐sectional study) applied the INTERMED, a clinical interview to ascertain complexity and support coordinated care, in patients with rheumatologic diagnoses. CONCLUSIONS: There is limited information on the use of patient complexity measures/tools in rheumatology. Such tools could be applied to coordinate multidisciplinary care and improve patient experience and outcomes. PATIENT CONTRIBUTION: This scoping review will be presented to patient research partners involved in co‐designing a future study on patient complexity in rheumatic disease. |
format | Online Article Text |
id | pubmed-8077158 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-80771582021-04-29 A scoping Review of tools used to assess patient Complexity in rheumatic disease Hawker, Kara Barnabe, Cheryl Barber, Claire E.H. Health Expect Original Research Papers OBJECTIVE: Patients with rheumatic diseases often have multiple comorbidities which may impact well‐being leading to high psychosocial complexity. This scoping review was undertaken to identify complexity measures/tools used in rheumatology that could help in planning and coordinating care. METHODS: MEDLINE, EMBASE and CINAHL were searched from database inception to 14 December 2019 using keywords and Medical Subject Headings for “care coordination”, “complexity” and selected rheumatic diseases and known complexity measures/tools. Articles describing the development or use of complexity measures/tools in patients with adult rheumatologic diagnoses were included regardless of study design. Included articles were evaluated for risk of bias where applicable. RESULTS: The search yielded 407 articles, 37 underwent full‐text review and 2 were identified during a hand search with 9 included articles. Only 2 complexity tools used in populations of adult patients with rheumatic disease were identified: the SLENQ and the INTERMED. The SLENQ is a 97‐item patient needs questionnaire developed for patients with systemic lupus (n = 1 study describing tool development) and applied in 5 cross‐sectional studies. Three studies (a practice article, trial and a cross‐sectional study) applied the INTERMED, a clinical interview to ascertain complexity and support coordinated care, in patients with rheumatologic diagnoses. CONCLUSIONS: There is limited information on the use of patient complexity measures/tools in rheumatology. Such tools could be applied to coordinate multidisciplinary care and improve patient experience and outcomes. PATIENT CONTRIBUTION: This scoping review will be presented to patient research partners involved in co‐designing a future study on patient complexity in rheumatic disease. John Wiley and Sons Inc. 2021-02-17 2021-04 /pmc/articles/PMC8077158/ /pubmed/33595914 http://dx.doi.org/10.1111/hex.13200 Text en © 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Research Papers Hawker, Kara Barnabe, Cheryl Barber, Claire E.H. A scoping Review of tools used to assess patient Complexity in rheumatic disease |
title | A scoping Review of tools used to assess patient Complexity in rheumatic disease |
title_full | A scoping Review of tools used to assess patient Complexity in rheumatic disease |
title_fullStr | A scoping Review of tools used to assess patient Complexity in rheumatic disease |
title_full_unstemmed | A scoping Review of tools used to assess patient Complexity in rheumatic disease |
title_short | A scoping Review of tools used to assess patient Complexity in rheumatic disease |
title_sort | scoping review of tools used to assess patient complexity in rheumatic disease |
topic | Original Research Papers |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8077158/ https://www.ncbi.nlm.nih.gov/pubmed/33595914 http://dx.doi.org/10.1111/hex.13200 |
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