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A scoping Review of tools used to assess patient Complexity in rheumatic disease

OBJECTIVE: Patients with rheumatic diseases often have multiple comorbidities which may impact well‐being leading to high psychosocial complexity. This scoping review was undertaken to identify complexity measures/tools used in rheumatology that could help in planning and coordinating care. METHODS:...

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Autores principales: Hawker, Kara, Barnabe, Cheryl, Barber, Claire E.H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8077158/
https://www.ncbi.nlm.nih.gov/pubmed/33595914
http://dx.doi.org/10.1111/hex.13200
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author Hawker, Kara
Barnabe, Cheryl
Barber, Claire E.H.
author_facet Hawker, Kara
Barnabe, Cheryl
Barber, Claire E.H.
author_sort Hawker, Kara
collection PubMed
description OBJECTIVE: Patients with rheumatic diseases often have multiple comorbidities which may impact well‐being leading to high psychosocial complexity. This scoping review was undertaken to identify complexity measures/tools used in rheumatology that could help in planning and coordinating care. METHODS: MEDLINE, EMBASE and CINAHL were searched from database inception to 14 December 2019 using keywords and Medical Subject Headings for “care coordination”, “complexity” and selected rheumatic diseases and known complexity measures/tools. Articles describing the development or use of complexity measures/tools in patients with adult rheumatologic diagnoses were included regardless of study design. Included articles were evaluated for risk of bias where applicable. RESULTS: The search yielded 407 articles, 37 underwent full‐text review and 2 were identified during a hand search with 9 included articles. Only 2 complexity tools used in populations of adult patients with rheumatic disease were identified: the SLENQ and the INTERMED. The SLENQ is a 97‐item patient needs questionnaire developed for patients with systemic lupus (n = 1 study describing tool development) and applied in 5 cross‐sectional studies. Three studies (a practice article, trial and a cross‐sectional study) applied the INTERMED, a clinical interview to ascertain complexity and support coordinated care, in patients with rheumatologic diagnoses. CONCLUSIONS: There is limited information on the use of patient complexity measures/tools in rheumatology. Such tools could be applied to coordinate multidisciplinary care and improve patient experience and outcomes. PATIENT CONTRIBUTION: This scoping review will be presented to patient research partners involved in co‐designing a future study on patient complexity in rheumatic disease.
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spelling pubmed-80771582021-04-29 A scoping Review of tools used to assess patient Complexity in rheumatic disease Hawker, Kara Barnabe, Cheryl Barber, Claire E.H. Health Expect Original Research Papers OBJECTIVE: Patients with rheumatic diseases often have multiple comorbidities which may impact well‐being leading to high psychosocial complexity. This scoping review was undertaken to identify complexity measures/tools used in rheumatology that could help in planning and coordinating care. METHODS: MEDLINE, EMBASE and CINAHL were searched from database inception to 14 December 2019 using keywords and Medical Subject Headings for “care coordination”, “complexity” and selected rheumatic diseases and known complexity measures/tools. Articles describing the development or use of complexity measures/tools in patients with adult rheumatologic diagnoses were included regardless of study design. Included articles were evaluated for risk of bias where applicable. RESULTS: The search yielded 407 articles, 37 underwent full‐text review and 2 were identified during a hand search with 9 included articles. Only 2 complexity tools used in populations of adult patients with rheumatic disease were identified: the SLENQ and the INTERMED. The SLENQ is a 97‐item patient needs questionnaire developed for patients with systemic lupus (n = 1 study describing tool development) and applied in 5 cross‐sectional studies. Three studies (a practice article, trial and a cross‐sectional study) applied the INTERMED, a clinical interview to ascertain complexity and support coordinated care, in patients with rheumatologic diagnoses. CONCLUSIONS: There is limited information on the use of patient complexity measures/tools in rheumatology. Such tools could be applied to coordinate multidisciplinary care and improve patient experience and outcomes. PATIENT CONTRIBUTION: This scoping review will be presented to patient research partners involved in co‐designing a future study on patient complexity in rheumatic disease. John Wiley and Sons Inc. 2021-02-17 2021-04 /pmc/articles/PMC8077158/ /pubmed/33595914 http://dx.doi.org/10.1111/hex.13200 Text en © 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Papers
Hawker, Kara
Barnabe, Cheryl
Barber, Claire E.H.
A scoping Review of tools used to assess patient Complexity in rheumatic disease
title A scoping Review of tools used to assess patient Complexity in rheumatic disease
title_full A scoping Review of tools used to assess patient Complexity in rheumatic disease
title_fullStr A scoping Review of tools used to assess patient Complexity in rheumatic disease
title_full_unstemmed A scoping Review of tools used to assess patient Complexity in rheumatic disease
title_short A scoping Review of tools used to assess patient Complexity in rheumatic disease
title_sort scoping review of tools used to assess patient complexity in rheumatic disease
topic Original Research Papers
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8077158/
https://www.ncbi.nlm.nih.gov/pubmed/33595914
http://dx.doi.org/10.1111/hex.13200
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