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Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study

BACKGROUND: Multiple sclerosis (MS) is a chronic, neurodegenerative disease that causes a range of motor, sensory, and cognitive symptoms. Due to these symptoms, people with MS are at a high risk for falls, fall-related injuries, and reductions in quality of life. There is no cure for MS, and managi...

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Autores principales: Hsieh, Katherine, Fanning, Jason, Frechette, Mikaela, Sosnoff, Jacob
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8080269/
https://www.ncbi.nlm.nih.gov/pubmed/33749609
http://dx.doi.org/10.2196/25604
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author Hsieh, Katherine
Fanning, Jason
Frechette, Mikaela
Sosnoff, Jacob
author_facet Hsieh, Katherine
Fanning, Jason
Frechette, Mikaela
Sosnoff, Jacob
author_sort Hsieh, Katherine
collection PubMed
description BACKGROUND: Multiple sclerosis (MS) is a chronic, neurodegenerative disease that causes a range of motor, sensory, and cognitive symptoms. Due to these symptoms, people with MS are at a high risk for falls, fall-related injuries, and reductions in quality of life. There is no cure for MS, and managing symptoms and disease progression is important to maintain a high quality of life. Mobile health (mHealth) apps are commonly used by people with MS to help manage their health. However, there are limited health apps for people with MS designed to evaluate fall risk. A fall risk app can increase access to fall risk assessments and improve self-management. When designing mHealth apps, a user-centered approach is critical for improving use and adoption. OBJECTIVE: The purpose of this study is to undergo a user-centered approach to test and refine the usability of the app through an iterative design process. METHODS: The fall risk app Steady-MS is an extension of Steady, a fall risk app for older adults. Steady-MS consists of 2 components: a 25-item questionnaire about demographics and MS symptoms and 5 standing balance tasks. Data from the questionnaire and balance tasks were inputted into an algorithm to compute a fall risk score. Two iterations of semistructured interviews (n=5 participants per iteration) were performed to evaluate usability. People with MS used Steady-MS on a smartphone, thinking out loud. Interviews were recorded, transcribed, and developed into codes and themes. People with MS also completed the System Usability Scale. RESULTS: A total of 3 themes were identified: intuitive navigation, efficiency of use, and perceived value. Overall, the participants found Steady-MS efficient to use and useful to learn their fall risk score. There were challenges related to cognitive overload during the balance tasks. Modifications were made, and after the second iteration, people with MS reported that the app was intuitive and efficient. Average System Usability Scale scores were 95.5 in both iterations, representing excellent usability. CONCLUSIONS: Steady-MS is the first mHealth app for people with MS to assess their overall risk of falling and is usable by a subset of people with MS. People with MS found Steady-MS to be usable and useful for understanding their risk of falling. When developing future mHealth apps for people with MS, it is important to prevent cognitive overload through simple and clear instructions and present scores that are understood and interpreted correctly through visuals and text. These findings underscore the importance of user-centered design and provide a foundation for the future development of tools to assess and prevent scalable falls for people with MS. Future steps include understanding the validity of the fall risk algorithm and evaluating the clinical utility of the app.
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spelling pubmed-80802692021-05-06 Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study Hsieh, Katherine Fanning, Jason Frechette, Mikaela Sosnoff, Jacob JMIR Hum Factors Original Paper BACKGROUND: Multiple sclerosis (MS) is a chronic, neurodegenerative disease that causes a range of motor, sensory, and cognitive symptoms. Due to these symptoms, people with MS are at a high risk for falls, fall-related injuries, and reductions in quality of life. There is no cure for MS, and managing symptoms and disease progression is important to maintain a high quality of life. Mobile health (mHealth) apps are commonly used by people with MS to help manage their health. However, there are limited health apps for people with MS designed to evaluate fall risk. A fall risk app can increase access to fall risk assessments and improve self-management. When designing mHealth apps, a user-centered approach is critical for improving use and adoption. OBJECTIVE: The purpose of this study is to undergo a user-centered approach to test and refine the usability of the app through an iterative design process. METHODS: The fall risk app Steady-MS is an extension of Steady, a fall risk app for older adults. Steady-MS consists of 2 components: a 25-item questionnaire about demographics and MS symptoms and 5 standing balance tasks. Data from the questionnaire and balance tasks were inputted into an algorithm to compute a fall risk score. Two iterations of semistructured interviews (n=5 participants per iteration) were performed to evaluate usability. People with MS used Steady-MS on a smartphone, thinking out loud. Interviews were recorded, transcribed, and developed into codes and themes. People with MS also completed the System Usability Scale. RESULTS: A total of 3 themes were identified: intuitive navigation, efficiency of use, and perceived value. Overall, the participants found Steady-MS efficient to use and useful to learn their fall risk score. There were challenges related to cognitive overload during the balance tasks. Modifications were made, and after the second iteration, people with MS reported that the app was intuitive and efficient. Average System Usability Scale scores were 95.5 in both iterations, representing excellent usability. CONCLUSIONS: Steady-MS is the first mHealth app for people with MS to assess their overall risk of falling and is usable by a subset of people with MS. People with MS found Steady-MS to be usable and useful for understanding their risk of falling. When developing future mHealth apps for people with MS, it is important to prevent cognitive overload through simple and clear instructions and present scores that are understood and interpreted correctly through visuals and text. These findings underscore the importance of user-centered design and provide a foundation for the future development of tools to assess and prevent scalable falls for people with MS. Future steps include understanding the validity of the fall risk algorithm and evaluating the clinical utility of the app. JMIR Publications 2021-03-22 /pmc/articles/PMC8080269/ /pubmed/33749609 http://dx.doi.org/10.2196/25604 Text en ©Katherine Hsieh, Jason Fanning, Mikaela Frechette, Jacob Sosnoff. Originally published in JMIR Human Factors (http://humanfactors.jmir.org), 22.03.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Human Factors, is properly cited. The complete bibliographic information, a link to the original publication on http://humanfactors.jmir.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
Hsieh, Katherine
Fanning, Jason
Frechette, Mikaela
Sosnoff, Jacob
Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study
title Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study
title_full Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study
title_fullStr Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study
title_full_unstemmed Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study
title_short Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study
title_sort usability of a fall risk mhealth app for people with multiple sclerosis: mixed methods study
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8080269/
https://www.ncbi.nlm.nih.gov/pubmed/33749609
http://dx.doi.org/10.2196/25604
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