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Optimizing language for effective communication of gene therapy concepts with hemophilia patients: a qualitative study
BACKGROUND: For communities of people living with hemophilia and other genetic conditions, gene therapy could represent a paradigm shift in treatment strategies. As investigational therapeutic modalities such as gene therapy become more widely used and discussed, there is a critical need for all sta...
Autores principales: | Hart, Daniel P., Branchford, Brian R., Hendry, Sarah, Ledniczky, Robert, Sidonio, Robert F., Négrier, Claude, Kim, Michelle, Rice, Michelle, Minshall, Matthew, Arcé, Claire, Prince, Steve, Kelleher, Maria, Lee, Sharon |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8082836/ https://www.ncbi.nlm.nih.gov/pubmed/33910590 http://dx.doi.org/10.1186/s13023-020-01555-w |
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