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Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol
Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individu...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8085894/ https://www.ncbi.nlm.nih.gov/pubmed/33981908 http://dx.doi.org/10.1016/j.conctc.2021.100765 |
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author | Akard, Terrah Foster Davis, Kelly Hills, Tracy Lense, Miriam Kim, Dana Webber, Rylie Dietrich, Mary S. Gilmer, Mary Jo |
author_facet | Akard, Terrah Foster Davis, Kelly Hills, Tracy Lense, Miriam Kim, Dana Webber, Rylie Dietrich, Mary S. Gilmer, Mary Jo |
author_sort | Akard, Terrah Foster |
collection | PubMed |
description | Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5–17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial (N = 25) is described. |
format | Online Article Text |
id | pubmed-8085894 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-80858942021-05-11 Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol Akard, Terrah Foster Davis, Kelly Hills, Tracy Lense, Miriam Kim, Dana Webber, Rylie Dietrich, Mary S. Gilmer, Mary Jo Contemp Clin Trials Commun Article Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5–17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial (N = 25) is described. Elsevier 2021-04-03 /pmc/articles/PMC8085894/ /pubmed/33981908 http://dx.doi.org/10.1016/j.conctc.2021.100765 Text en © 2021 Published by Elsevier Inc. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
spellingShingle | Article Akard, Terrah Foster Davis, Kelly Hills, Tracy Lense, Miriam Kim, Dana Webber, Rylie Dietrich, Mary S. Gilmer, Mary Jo Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
title | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
title_full | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
title_fullStr | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
title_full_unstemmed | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
title_short | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
title_sort | songwriting intervention for cognitively-impaired children with life-limiting conditions: study protocol |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8085894/ https://www.ncbi.nlm.nih.gov/pubmed/33981908 http://dx.doi.org/10.1016/j.conctc.2021.100765 |
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