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Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
BACKGROUND: Multimodal recruitment strategies are a novel way to increase diversity in research populations. However, these methods have not been previously applied to understanding the prevalence of menstrual disorders such as polycystic ovary syndrome. OBJECTIVE: The purpose of this study was to t...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8087968/ https://www.ncbi.nlm.nih.gov/pubmed/33861203 http://dx.doi.org/10.2196/24716 |
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author | Mahalingaiah, Shruthi Cheng, J Jojo Winter, Michael R Rodriguez, Erika Fruh, Victoria Williams, Anna Nguyen, MyMy Madhavan, Rashmi Karanja, Pascaline MacRae, Jill Konanki, Sai Charan Lane, Kevin J Aschengrau, Ann |
author_facet | Mahalingaiah, Shruthi Cheng, J Jojo Winter, Michael R Rodriguez, Erika Fruh, Victoria Williams, Anna Nguyen, MyMy Madhavan, Rashmi Karanja, Pascaline MacRae, Jill Konanki, Sai Charan Lane, Kevin J Aschengrau, Ann |
author_sort | Mahalingaiah, Shruthi |
collection | PubMed |
description | BACKGROUND: Multimodal recruitment strategies are a novel way to increase diversity in research populations. However, these methods have not been previously applied to understanding the prevalence of menstrual disorders such as polycystic ovary syndrome. OBJECTIVE: The purpose of this study was to test the feasibility of recruiting a diverse cohort to complete a web-based survey on ovulation and menstruation health. METHODS: We conducted the Ovulation and Menstruation Health Pilot Study using a REDCap web-based survey platform. We recruited 200 women from a clinical population, a community fair, and the internet. RESULTS: We recruited 438 women over 29 weeks between September 2017 and March 2018. After consent and eligibility determination, 345 enrolled, 278 started (clinic: n=43; community fair: n=61; internet: n=174), and 247 completed (clinic: n=28; community fair: n=60; internet: n=159) the survey. Among all participants, the median age was 25.0 (SD 6.0) years, mean BMI was 26.1 kg/m(2) (SD 6.6), 79.7% (216/271) had a college degree or higher, and 14.6% (37/254) reported a physician diagnosis of polycystic ovary syndrome. Race and ethnicity distributions were 64.7% (176/272) White, 11.8% (32/272) Black/African American, 7.7% (21/272) Latina/Hispanic, and 5.9% (16/272) Asian individuals; 9.9% (27/272) reported more than one race or ethnicity. The highest enrollment of Black/African American individuals was in clinic (17/42, 40.5%) compared to 1.6% (1/61) in the community fair and 8.3% (14/169) using the internet. Survey completion rates were highest among those who were recruited from the internet (159/174, 91.4%) and community fairs (60/61, 98.4%) compared to those recruited in clinic (28/43, 65.1%). CONCLUSIONS: Multimodal recruitment achieved target recruitment in a short time period and established a racially diverse cohort to study ovulation and menstruation health. There were greater enrollment and completion rates among those recruited via the internet and community fair. |
format | Online Article Text |
id | pubmed-8087968 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-80879682021-05-07 Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study Mahalingaiah, Shruthi Cheng, J Jojo Winter, Michael R Rodriguez, Erika Fruh, Victoria Williams, Anna Nguyen, MyMy Madhavan, Rashmi Karanja, Pascaline MacRae, Jill Konanki, Sai Charan Lane, Kevin J Aschengrau, Ann J Med Internet Res Original Paper BACKGROUND: Multimodal recruitment strategies are a novel way to increase diversity in research populations. However, these methods have not been previously applied to understanding the prevalence of menstrual disorders such as polycystic ovary syndrome. OBJECTIVE: The purpose of this study was to test the feasibility of recruiting a diverse cohort to complete a web-based survey on ovulation and menstruation health. METHODS: We conducted the Ovulation and Menstruation Health Pilot Study using a REDCap web-based survey platform. We recruited 200 women from a clinical population, a community fair, and the internet. RESULTS: We recruited 438 women over 29 weeks between September 2017 and March 2018. After consent and eligibility determination, 345 enrolled, 278 started (clinic: n=43; community fair: n=61; internet: n=174), and 247 completed (clinic: n=28; community fair: n=60; internet: n=159) the survey. Among all participants, the median age was 25.0 (SD 6.0) years, mean BMI was 26.1 kg/m(2) (SD 6.6), 79.7% (216/271) had a college degree or higher, and 14.6% (37/254) reported a physician diagnosis of polycystic ovary syndrome. Race and ethnicity distributions were 64.7% (176/272) White, 11.8% (32/272) Black/African American, 7.7% (21/272) Latina/Hispanic, and 5.9% (16/272) Asian individuals; 9.9% (27/272) reported more than one race or ethnicity. The highest enrollment of Black/African American individuals was in clinic (17/42, 40.5%) compared to 1.6% (1/61) in the community fair and 8.3% (14/169) using the internet. Survey completion rates were highest among those who were recruited from the internet (159/174, 91.4%) and community fairs (60/61, 98.4%) compared to those recruited in clinic (28/43, 65.1%). CONCLUSIONS: Multimodal recruitment achieved target recruitment in a short time period and established a racially diverse cohort to study ovulation and menstruation health. There were greater enrollment and completion rates among those recruited via the internet and community fair. JMIR Publications 2021-04-16 /pmc/articles/PMC8087968/ /pubmed/33861203 http://dx.doi.org/10.2196/24716 Text en ©Shruthi Mahalingaiah, J Jojo Cheng, Michael R Winter, Erika Rodriguez, Victoria Fruh, Anna Williams, MyMy Nguyen, Rashmi Madhavan, Pascaline Karanja, Jill MacRae, Sai Charan Konanki, Kevin J Lane, Ann Aschengrau. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 16.04.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included. |
spellingShingle | Original Paper Mahalingaiah, Shruthi Cheng, J Jojo Winter, Michael R Rodriguez, Erika Fruh, Victoria Williams, Anna Nguyen, MyMy Madhavan, Rashmi Karanja, Pascaline MacRae, Jill Konanki, Sai Charan Lane, Kevin J Aschengrau, Ann Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study |
title | Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study |
title_full | Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study |
title_fullStr | Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study |
title_full_unstemmed | Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study |
title_short | Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study |
title_sort | multimodal recruitment to study ovulation and menstruation health: internet-based survey pilot study |
topic | Original Paper |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8087968/ https://www.ncbi.nlm.nih.gov/pubmed/33861203 http://dx.doi.org/10.2196/24716 |
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