Cargando…

Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study

BACKGROUND: Multimodal recruitment strategies are a novel way to increase diversity in research populations. However, these methods have not been previously applied to understanding the prevalence of menstrual disorders such as polycystic ovary syndrome. OBJECTIVE: The purpose of this study was to t...

Descripción completa

Detalles Bibliográficos
Autores principales: Mahalingaiah, Shruthi, Cheng, J Jojo, Winter, Michael R, Rodriguez, Erika, Fruh, Victoria, Williams, Anna, Nguyen, MyMy, Madhavan, Rashmi, Karanja, Pascaline, MacRae, Jill, Konanki, Sai Charan, Lane, Kevin J, Aschengrau, Ann
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8087968/
https://www.ncbi.nlm.nih.gov/pubmed/33861203
http://dx.doi.org/10.2196/24716
_version_ 1783686763916558336
author Mahalingaiah, Shruthi
Cheng, J Jojo
Winter, Michael R
Rodriguez, Erika
Fruh, Victoria
Williams, Anna
Nguyen, MyMy
Madhavan, Rashmi
Karanja, Pascaline
MacRae, Jill
Konanki, Sai Charan
Lane, Kevin J
Aschengrau, Ann
author_facet Mahalingaiah, Shruthi
Cheng, J Jojo
Winter, Michael R
Rodriguez, Erika
Fruh, Victoria
Williams, Anna
Nguyen, MyMy
Madhavan, Rashmi
Karanja, Pascaline
MacRae, Jill
Konanki, Sai Charan
Lane, Kevin J
Aschengrau, Ann
author_sort Mahalingaiah, Shruthi
collection PubMed
description BACKGROUND: Multimodal recruitment strategies are a novel way to increase diversity in research populations. However, these methods have not been previously applied to understanding the prevalence of menstrual disorders such as polycystic ovary syndrome. OBJECTIVE: The purpose of this study was to test the feasibility of recruiting a diverse cohort to complete a web-based survey on ovulation and menstruation health. METHODS: We conducted the Ovulation and Menstruation Health Pilot Study using a REDCap web-based survey platform. We recruited 200 women from a clinical population, a community fair, and the internet. RESULTS: We recruited 438 women over 29 weeks between September 2017 and March 2018. After consent and eligibility determination, 345 enrolled, 278 started (clinic: n=43; community fair: n=61; internet: n=174), and 247 completed (clinic: n=28; community fair: n=60; internet: n=159) the survey. Among all participants, the median age was 25.0 (SD 6.0) years, mean BMI was 26.1 kg/m(2) (SD 6.6), 79.7% (216/271) had a college degree or higher, and 14.6% (37/254) reported a physician diagnosis of polycystic ovary syndrome. Race and ethnicity distributions were 64.7% (176/272) White, 11.8% (32/272) Black/African American, 7.7% (21/272) Latina/Hispanic, and 5.9% (16/272) Asian individuals; 9.9% (27/272) reported more than one race or ethnicity. The highest enrollment of Black/African American individuals was in clinic (17/42, 40.5%) compared to 1.6% (1/61) in the community fair and 8.3% (14/169) using the internet. Survey completion rates were highest among those who were recruited from the internet (159/174, 91.4%) and community fairs (60/61, 98.4%) compared to those recruited in clinic (28/43, 65.1%). CONCLUSIONS: Multimodal recruitment achieved target recruitment in a short time period and established a racially diverse cohort to study ovulation and menstruation health. There were greater enrollment and completion rates among those recruited via the internet and community fair.
format Online
Article
Text
id pubmed-8087968
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher JMIR Publications
record_format MEDLINE/PubMed
spelling pubmed-80879682021-05-07 Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study Mahalingaiah, Shruthi Cheng, J Jojo Winter, Michael R Rodriguez, Erika Fruh, Victoria Williams, Anna Nguyen, MyMy Madhavan, Rashmi Karanja, Pascaline MacRae, Jill Konanki, Sai Charan Lane, Kevin J Aschengrau, Ann J Med Internet Res Original Paper BACKGROUND: Multimodal recruitment strategies are a novel way to increase diversity in research populations. However, these methods have not been previously applied to understanding the prevalence of menstrual disorders such as polycystic ovary syndrome. OBJECTIVE: The purpose of this study was to test the feasibility of recruiting a diverse cohort to complete a web-based survey on ovulation and menstruation health. METHODS: We conducted the Ovulation and Menstruation Health Pilot Study using a REDCap web-based survey platform. We recruited 200 women from a clinical population, a community fair, and the internet. RESULTS: We recruited 438 women over 29 weeks between September 2017 and March 2018. After consent and eligibility determination, 345 enrolled, 278 started (clinic: n=43; community fair: n=61; internet: n=174), and 247 completed (clinic: n=28; community fair: n=60; internet: n=159) the survey. Among all participants, the median age was 25.0 (SD 6.0) years, mean BMI was 26.1 kg/m(2) (SD 6.6), 79.7% (216/271) had a college degree or higher, and 14.6% (37/254) reported a physician diagnosis of polycystic ovary syndrome. Race and ethnicity distributions were 64.7% (176/272) White, 11.8% (32/272) Black/African American, 7.7% (21/272) Latina/Hispanic, and 5.9% (16/272) Asian individuals; 9.9% (27/272) reported more than one race or ethnicity. The highest enrollment of Black/African American individuals was in clinic (17/42, 40.5%) compared to 1.6% (1/61) in the community fair and 8.3% (14/169) using the internet. Survey completion rates were highest among those who were recruited from the internet (159/174, 91.4%) and community fairs (60/61, 98.4%) compared to those recruited in clinic (28/43, 65.1%). CONCLUSIONS: Multimodal recruitment achieved target recruitment in a short time period and established a racially diverse cohort to study ovulation and menstruation health. There were greater enrollment and completion rates among those recruited via the internet and community fair. JMIR Publications 2021-04-16 /pmc/articles/PMC8087968/ /pubmed/33861203 http://dx.doi.org/10.2196/24716 Text en ©Shruthi Mahalingaiah, J Jojo Cheng, Michael R Winter, Erika Rodriguez, Victoria Fruh, Anna Williams, MyMy Nguyen, Rashmi Madhavan, Pascaline Karanja, Jill MacRae, Sai Charan Konanki, Kevin J Lane, Ann Aschengrau. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 16.04.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Original Paper
Mahalingaiah, Shruthi
Cheng, J Jojo
Winter, Michael R
Rodriguez, Erika
Fruh, Victoria
Williams, Anna
Nguyen, MyMy
Madhavan, Rashmi
Karanja, Pascaline
MacRae, Jill
Konanki, Sai Charan
Lane, Kevin J
Aschengrau, Ann
Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
title Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
title_full Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
title_fullStr Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
title_full_unstemmed Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
title_short Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
title_sort multimodal recruitment to study ovulation and menstruation health: internet-based survey pilot study
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8087968/
https://www.ncbi.nlm.nih.gov/pubmed/33861203
http://dx.doi.org/10.2196/24716
work_keys_str_mv AT mahalingaiahshruthi multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT chengjjojo multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT wintermichaelr multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT rodriguezerika multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT fruhvictoria multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT williamsanna multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT nguyenmymy multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT madhavanrashmi multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT karanjapascaline multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT macraejill multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT konankisaicharan multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT lanekevinj multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy
AT aschengrauann multimodalrecruitmenttostudyovulationandmenstruationhealthinternetbasedsurveypilotstudy