Cargando…

Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia

Caring for children with a disability can cause a range of psychological and socioeconomic challenges for parents and caregivers, such as anxiety, depression, inability to find affordable and appropriate childcare, loss of income and expenses related to disability specific treatment. As part of a st...

Descripción completa

Detalles Bibliográficos
Autores principales: Asa, Gregorius Abanit, Fauk, Nelsensius Klau, Ward, Paul Russell, Hawke, Karen, Crutzen, Rik, Mwanri, Lillian
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8101963/
https://www.ncbi.nlm.nih.gov/pubmed/33956859
http://dx.doi.org/10.1371/journal.pone.0251274
_version_ 1783689034414948352
author Asa, Gregorius Abanit
Fauk, Nelsensius Klau
Ward, Paul Russell
Hawke, Karen
Crutzen, Rik
Mwanri, Lillian
author_facet Asa, Gregorius Abanit
Fauk, Nelsensius Klau
Ward, Paul Russell
Hawke, Karen
Crutzen, Rik
Mwanri, Lillian
author_sort Asa, Gregorius Abanit
collection PubMed
description Caring for children with a disability can cause a range of psychological and socioeconomic challenges for parents and caregivers, such as anxiety, depression, inability to find affordable and appropriate childcare, loss of income and expenses related to disability specific treatment. As part of a study exploring the impacts of childhood disability on mothers or female caregivers and families, and the copy strategies they used, this paper describes strategies employed by mothers or female caregivers to cope with challenges associated with childhood disability within their family in Belu district, Indonesia. A qualitative approach using one-on-one in-depth interviews was used to collect data from participants (n = 22) who were recruited using a combination of purposive and snowball sampling techniques. Interviews were recorded, transcribed verbatim and imported to NVivo 12 for analysis. A qualitative framework analysis was used to guide data analysis. The conceptual framework of coping strategies guided the conceptualisation and discussion of the findings. The findings showed that active psychological coping strategies, including cognitive or acceptance strategies, knowledge of both health condition and socio-academic related development of children with a disability, and family relationship and support, were used by the participants to cope with psychological challenges facing them. Self-reliance and religious/spiritual coping strategies were also utilised. Sociocultural strategies, such as social withdrawal or disengagement, professional support and culture-based support, were used by the participants to cope with social impacts, stigma, and discrimination associated with childhood disability. Participants also reported using financial strategies such as selling of family assets to cope with the economic challenges. The findings indicate the need for programs and interventions that address the needs of mothers and female caregivers and their families, to assist with effectively managing the significant challenges they face when caring for a child with a disability. Further studies are needed, with a larger number of participants and the inclusion of fathers or male caregivers, in order to better understand the broader coping experience of childhood disability impacts within families.
format Online
Article
Text
id pubmed-8101963
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Public Library of Science
record_format MEDLINE/PubMed
spelling pubmed-81019632021-05-17 Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia Asa, Gregorius Abanit Fauk, Nelsensius Klau Ward, Paul Russell Hawke, Karen Crutzen, Rik Mwanri, Lillian PLoS One Research Article Caring for children with a disability can cause a range of psychological and socioeconomic challenges for parents and caregivers, such as anxiety, depression, inability to find affordable and appropriate childcare, loss of income and expenses related to disability specific treatment. As part of a study exploring the impacts of childhood disability on mothers or female caregivers and families, and the copy strategies they used, this paper describes strategies employed by mothers or female caregivers to cope with challenges associated with childhood disability within their family in Belu district, Indonesia. A qualitative approach using one-on-one in-depth interviews was used to collect data from participants (n = 22) who were recruited using a combination of purposive and snowball sampling techniques. Interviews were recorded, transcribed verbatim and imported to NVivo 12 for analysis. A qualitative framework analysis was used to guide data analysis. The conceptual framework of coping strategies guided the conceptualisation and discussion of the findings. The findings showed that active psychological coping strategies, including cognitive or acceptance strategies, knowledge of both health condition and socio-academic related development of children with a disability, and family relationship and support, were used by the participants to cope with psychological challenges facing them. Self-reliance and religious/spiritual coping strategies were also utilised. Sociocultural strategies, such as social withdrawal or disengagement, professional support and culture-based support, were used by the participants to cope with social impacts, stigma, and discrimination associated with childhood disability. Participants also reported using financial strategies such as selling of family assets to cope with the economic challenges. The findings indicate the need for programs and interventions that address the needs of mothers and female caregivers and their families, to assist with effectively managing the significant challenges they face when caring for a child with a disability. Further studies are needed, with a larger number of participants and the inclusion of fathers or male caregivers, in order to better understand the broader coping experience of childhood disability impacts within families. Public Library of Science 2021-05-06 /pmc/articles/PMC8101963/ /pubmed/33956859 http://dx.doi.org/10.1371/journal.pone.0251274 Text en © 2021 Asa et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Asa, Gregorius Abanit
Fauk, Nelsensius Klau
Ward, Paul Russell
Hawke, Karen
Crutzen, Rik
Mwanri, Lillian
Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia
title Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia
title_full Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia
title_fullStr Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia
title_full_unstemmed Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia
title_short Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia
title_sort psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in belu district, indonesia
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8101963/
https://www.ncbi.nlm.nih.gov/pubmed/33956859
http://dx.doi.org/10.1371/journal.pone.0251274
work_keys_str_mv AT asagregoriusabanit psychologicalsocioculturalandeconomiccopingstrategiesofmothersorfemalecaregiversofchildrenwithadisabilityinbeludistrictindonesia
AT fauknelsensiusklau psychologicalsocioculturalandeconomiccopingstrategiesofmothersorfemalecaregiversofchildrenwithadisabilityinbeludistrictindonesia
AT wardpaulrussell psychologicalsocioculturalandeconomiccopingstrategiesofmothersorfemalecaregiversofchildrenwithadisabilityinbeludistrictindonesia
AT hawkekaren psychologicalsocioculturalandeconomiccopingstrategiesofmothersorfemalecaregiversofchildrenwithadisabilityinbeludistrictindonesia
AT crutzenrik psychologicalsocioculturalandeconomiccopingstrategiesofmothersorfemalecaregiversofchildrenwithadisabilityinbeludistrictindonesia
AT mwanrilillian psychologicalsocioculturalandeconomiccopingstrategiesofmothersorfemalecaregiversofchildrenwithadisabilityinbeludistrictindonesia